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@asgct.bsky.socialSep 23, 2026, 4:27 PM

Join the 2026 NORD Breakthrough Summit, Oct. 25–27 in Washington, D.C.! ASGCT staff will be there to connect you with patient education resources and discuss the latest policies affecting rare disease research and individuals. Learn more ➡️ nordsummit.org

#NORDSummit #RareDisease

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@nordrare.bsky.socialSep 11, 2026, 1:16 PM

Leaders from the NORD #RareDisease Centers of Excellence will take the stage at October's #NORDSummit to share how they're tackling the field’s most pressing challenges: shortening time to diagnosis, improving coordinated care and advancing innovative research. Learn more & join us at nordsummit.org

October 25-27, Washington, D.C. Rare Disease Centers of Excellence in Action: Advancing Diagnosis, Care, and Research. Speakers: Dr. Beth Kozel of Nationwide Children's Hospital, Dr. John Morren of Cleveland Clinic, Dr. Natasha Shur of Children's National Hospital, and moderator Marybeth McAfee of NORD.