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@thesumairafdn.bsky.socialOct 2, 2026, 4:27 PM

¿Usted o un ser querido vive con NMOSD?

Acompáñenos en nuestro webinar "Comprendiendo el anticuerpo AQP4 en #NMOSD" con la Dra. Pilar Perachino.

Conozca el papel del AQP4 en el diagnóstico y tratamiento del NMOSD y participe con sus preguntas en vivo.
us02web.zoom.us/webinar/regi...

@thesumairafdn.bsky.socialOct 2, 2026, 2:26 PM

New consensus-based paper in @SclerosisAnd explores the current status of #NMOSD and #MOGAD management in #LATAM.

Main challenges: delayed diagnosis, misdiagnosis, unequal access, variable testing, low access to newer therapies.

Read the summary: www.sumairafoundation.org/summaries/nm...

@thesumairafdn.bsky.socialSep 23, 2026, 8:18 PM

TSF PINK CARPET 🩷 Meet the Farleys – a mother-daughter duo from Kentucky.

Hear them share what it’s really like navigating an #NMOSD diagnosis as a family, and why community makes all the difference.

youtu.be/qePSeI1KaF0

@thesumairafdn.bsky.socialSep 22, 2026, 3:31 PM

1️⃣-month countdown begins today!

The @ECTRIMS Patient Community Day is the largest in-person gathering of #MOGAD, #MS and #NMOSD patients. Join us in-person in Toronto or online from anywhere in the world:

🎟 www.ectrimspatientcommunity.eu/registration

@thesumairafdn.bsky.socialSep 16, 2026, 9:03 PM

"Ari is your new bestie, helping you regain time and have a greater sense of control of your health"

Meet Kayla, #NMOSD patient, who recently started using Ari. In this video, she shares some of her favorite features of Ari.

Sign up for free today: citizenhealth.com/sumaira

@thesumairafdn.bsky.socialSep 15, 2026, 7:56 PM

🌴 Conozcan a nuestros valientes panelistas, pacientes y cuidadores! 🌺

Únanse a pacientes, cuidadores y familias de las comunidades #CIDP, #MG, #MOGAD y #NMOSD para un día de educación, conexión y apoyo.

¡26 de septiembre! tinyurl.com/TSFMiami2026ES

@thesumairafdn.bsky.socialSep 15, 2026, 7:55 PM

🌴 Meet our courageous patient & caregiver panelists at Miami Patient Day! 🌺

Join patients, caregivers & families from the #CIDP, #MG, #MOGAD & #NMOSD communities for a day of education, connection & support. Sept. 26!

Register: tinyurl.com/TSFMiami2026

@thesumairafdn.bsky.socialSep 15, 2026, 3:10 PM

Two heads. One body.

🐍Sheila’s #NMOSD journey took her from frightening symptoms and misdiagnosis to a life-changing diagnosis and ultimately, defiance. More than 5 years later, she’s still walking forward.

Read her story. www.sumairafoundation.org/a-two-headed...

@thesumairafdn.bsky.socialSep 14, 2026, 7:25 PM

🌎 New consensus review reveals major gaps in #NMOSD & #MOGAD care across LatAm: delayed diagnosis, misdiagnosis as MS, limited access to gold-standard antibody testing & unequal access to effective therapies. 2 priorities: better testing + better access.
www.msard-journal.com/article/S221...

@thesumairafdn.bsky.socialSep 9, 2026, 3:53 PM

Meet our courageous patient & caregiver panelists at Michigan Patient Day on September 19th! 🌳

Join patients, caregivers & families from the #CIDP, #MG, #MMN, #MOGAD & #NMOSD communities for a day of education, connection & support.

Register: tinyurl.com/TSFMichigan