Even after all these years with MS, I still forget the cost of “just an appointment.”

My MS clinic is 80 km away in downtown Toronto. Rush-hour drive, MRI, long drive home.

Then I wake up hurting and wonder why.

Duh.

#MultipleSclerosis #MSLife #Disability

Nauseous with fatigue all day, until fully waking up around 7pm #MSLife

After two IVs and one blood draw in three days, my veins are pretty beaten up. I had the husband take photos and I was going to post one, but...ew.

#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune

Healing is hard. My body healing from anything taps me out and makes all my physical symptoms worse. My teeth and gums need to hurry the hell up and heal. I'm exhausted.

#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune

Stop comparing your MS journey here: https://bit.ly/4ga7bRV

#MSAwareness #ThisIsMS #MSLife #MSCommunity #MSSupport #MSFighter #MSNewsToday #Bionews

The benefits of cats in MS life: https://bit.ly/3Vr7cas

#MSAwareness #ThisIsMS #MSLife #MSCommunity #MSSupport #MSFighter #MSNewsToday #Bionews

Why my cat helps when living with MS: https://bit.ly/3Vr7cas

#MSAwareness #ThisIsMS #MSLife #MSCommunity #MSSupport #MSFighter #MSNewsToday #Bionews

How I remember to take my MS medications: https://bit.ly/3JUTCto

#MSAwareness #ThisIsMS #MSLife #MSCommunity #MSSupport #MSFighter #MSNewsToday #Bionews

Weathering life's storms while living with MS: https://bit.ly/4lQv9CO

#MSAwareness #ThisIsMS #MSLife #MSCommunity #MSSupport #MSFighter #MSNewsToday #Bionews

I still want to feel included with MS: https://bit.ly/4g396YD

#MSAwareness #ThisIsMS #MSLife #MSCommunity #MSSupport #MSFighter #MSNewsToday #Bionews

I am having a very hard time recovering from this trip. My limbs feel like lead. My eyes want to close. The #fatigue is next level. I need to get over this. Fast.

#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune #mssucks

It’s been a quiet couple of days.

Building my website, helping my daughter with school, and apparently destroying my back sitting on uncomfortable bar stools hanging out with family over the weekend.

That’s a full enough life for me. LOL.

#SimpleLife #MultipleSclerosis #MSLife

MS mental health ups and downs: https://bit.ly/3JYADOA

#MSAwareness #ThisIsMS #MSLife #MSCommunity #MSSupport #MSFighter #MSNewsToday #Bionews

Facing stigma in the invisible MS struggle: https://bit.ly/4mQ4oQc

#MSAwareness #ThisIsMS #MSLife #MSCommunity #MSSupport #MSFighter #MSNewsToday #Bionews

Heat and MS - Managing frustrating symptoms: https://bit.ly/4fWcG6u

#MSAwareness #ThisIsMS #MSLife #MSCommunity #MSSupport #MSFighter #MSNewsToday #Bionews

Today’s profound observation about life with MS:

I got nothing, man.

Working on my website. Thinking about tattoos. Watching the world. Living my life.

Sometimes MS is the lens. Sometimes life is just life.

#MultipleSclerosis #MSLife #Disability #LifeWithMS #NotesFromAChangedLife

Sometimes I get too caught up worrying about people who make me feel forgotten.

Then I look around: teaching my daughter to drive, planning my girls’ futures, coming home to my wife.

The people who really matter are already here.

Life can distract you from your wins.

#MSLife

Learning to be present means remembering that even when MS changes what we can do, there is still so much life happening right now. https://bit.ly/4gMzUNc

#MSAwareness #ThisIsMS #MSLife #MSCommunity #MSSupport #MSFighter #MSNewsToday #Bionews   
   

Living with MS can mean changing our expectations, beliefs, and even our plans as we learn more about our bodies and how the disease affects us. https://bit.ly/4h7ZM7F

#MSAwareness #ThisIsMS #MSLife #MSCommunity #MSSupport #MSFighter #MSNewsToday #Bionews