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Version devBuilt at: 2026-10-10 20:13:24 EDT

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@futurestand.bsky.socialOct 5, 2026, 10:37 PM

I was diagnosed with breast cancer seven years ago today, after routine screening found early #lobular #breastcancer on the mammogram, no lump or visible breast changes. Several months of treatment (surgery x2 + radiotherapy) and I’ve not had a recurrence. The UK has excellent NHS cancer care.

@dianeheditsian.bsky.socialOct 1, 2026, 8:44 PM

lobularbreastcancer.org/lbca-research-grantee-interview-exploring-what-drives-ilc-metastasis/ #bcsm, #lobularbreastcan #ILC, #lobular, #ILCAwareness, #learnaboutlobular
Christina Curtis & Deborah Rohmer: Important new ILC research and "how to's of good advocacy".

@doublewhammied.bsky.socialSep 24, 2026, 8:37 PM

Dr. Rachel Jankowitz talks about #lobular #breastcancer in premenopausal patients. Stays say 80-85% of ILC pts are postmenopausal; 10-15% are premenopausal. BUT at UCSF, 28% of #ILC pts were premenopausal; at Penn, 35% of ILC pts were premenopausal. #ILCSymposium @lobularbca.bsky.social #lobmob

@doublewhammied.bsky.socialSep 24, 2026, 6:54 PM

Guilford proposes using the term hereditary diffuse gastric & #lobular #breastcancer syndrome for those w/ #CDH1 mutation since many people who survive #gastric #cancer will develop #lobularBC. #ILCSymposium @lobularbca.bsky.social @elbcc-2018.bsky.social #bcsm #lobmob

@doublewhammied.bsky.socialSep 24, 2026, 6:45 PM

Keynote speaker Dr. Parry Guilford breaks down the similarities between #lobular #breastcancer and diffuse #gastriccancer via a hereditary #CDH1 mutation. #ILCSymposium. Good to know as we enter Hereditary Cancer Awareness Week! #bcsm @lobularbca.bsky.social

@doublewhammied.bsky.socialSep 24, 2026, 6:09 PM

Can artificial intelligence improve subtyping of #lobular #breastcancer? A look at subtypes & the possibility of reclassifying #ILC morphology. #ILCSymposium @lobularbca.bsky.social @lobularbcuk.bsky.social

@doublewhammied.bsky.socialSep 24, 2026, 5:31 PM

ILC #breastcancer lacks models. Dr. Adrien Lee talked about the development of #ILC patient derived organoids and cell lines, a project launched w/help from @fredhutch.org #lobular #BC advocate Leigh Pate, founder of @lobularbca.bsky.social, who died in 2022. #ILCSymposium. RIP and well done, Leigh!

@doublewhammied.bsky.socialSep 24, 2026, 4:47 PM

Gr8 debate at the #ILCSymposium as 2 whethr #chemo is helpful or not in #metastatic CLASSICAL #lobular #breastcancer. Dr. Rebecca Shatsky argues chemo failed 3 tests in #mILC: it's not superior, not durable, not biologically matched. Chemo shld be exception, not default. @lobularbca.bsky.social

@doublewhammied.bsky.socialSep 24, 2026, 3:32 PM

First up this morning, @fredhutch.org's translational researcher Dr. Kevin Cheung talking about the #metastatic "interactome" in #lobular #breastcancer #CanSky #ILCSymposium #bcsm @lobularbca.bsky.social @elbcc-2018.bsky.social @lobularbcuk.bsky.social

@doublewhammied.bsky.socialSep 23, 2026, 4:14 PM

Great news regarding #LARC, Lobular America Research Consortium, a new research collaboration between 18 institutions across America, all digging into #nolump #lobular #breastxancer. Thank you @mjsikora.bsky.social and #racheljankowitz for leading this initiative! #CanSky #bcsm #ILCSymposium

@warriormegsie.bsky.socialSep 15, 2026, 1:11 PM

11 years ago yesterday at 3:05pm ET, I got the cancer call while at work—a moment that changed the trajectory of my life & career.

Read my blog post: 3:05 PM: The Cancer Call That Changed Everything at warriormegsie.com/2026/09/14/3...

#cancer #lobular #ayacancer #racism #career