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@oxfordpsychiatry.bsky.social Sep 9, 2026, 2:36 PM

What does it mean to be a #LivedExperienceScientist?

Professor Clare Mackay shares three things she's learned since revealing she lives with hair pulling disorder, a type of body-focused repetitive behaviour (BFRB), which she now researches.

tinyurl.com/53f8xuvh

@claremackay.bsky.social

“…I thought I was simply sharing something personal that might start a conversation and help a few people feel less alone. Looking back, I realise it was the start of changing the way I design, conduct and communicate science. Science helps us see patterns and test theories, and lived experience helps us focus on the questions that matter most to the people we're trying to help. We need both.” Professor Clare Mackay, Professor of Neuroscience

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