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@pscsupport.bsky.socialOct 10, 2026, 9:01 AM

Recognising the need for psychological support duringn the liver transplant journey is critical. Following Mark Chatterleyโ€™s presentation at #BASL2026, he caught up with Dr. Yeoman to discuss why mental health support must be central to clinical care. #WorldMentalHealthDay #PSCSupport #LetsBeatPSC

@pscsupport.bsky.socialOct 9, 2026, 9:00 AM

A record-breaking milestone for #TeamPSCSupport this Sunday! 34 runners are representing us across the #RoyalParksHalf & #AmsterdamHalf, our largest single-day team EVER! From researchers & patients to family, friends & corporate teams, our community shows up BIG. Good luck everyone! #LetsBeatPSC

@pscsupport.bsky.socialOct 7, 2026, 8:15 AM

Itโ€™s #BASL2026 and we're on the ground all week! Why are we here? To fly the PSC flag: building relationships with clinicians & researchers to ensure the patient voice is impossible to ignore. Watch this space & subscribe to stay in the loop: buff.ly/BYvqkzi #PSCSupport #LiverDisease #LetsBeatPSC

@pscsupport.bsky.socialOct 6, 2026, 9:00 AM

Huge congratulations and a massive thank you to Shane and Regina, who smashed the Antrim Coast Half Marathon and raised an incredible ยฃ1,484 for PSC Support! Explore our places in major events today, and join the team: buff.ly/yemzd3M
#PSCSupport #AntrimCoastHalfMarathon #TeamPSCSupport #LetsBeatPSC

@pscsupport.bsky.socialOct 5, 2026, 2:01 PM

Mark (PSC Support Head of Ops & Finace and liver recipient) & Liz (Donor family member) represented our community at the @NHSBT Patient & Donor Engagement Policy meeting last week. NHSBT is working to ensure lived experience directly shapes decision-making. #PatientVoices #LetsBeatPSC

@pscsupport.bsky.socialOct 4, 2026, 8:15 AM

With around 8 in 10 people with PSC also living with IBD, understanding PSC-IBD is vital for our community. Our latest session offers expert insights on management, symptoms, and ongoing care of #PSCIBD.
๐Ÿ‘‰ Watch the PSC-IBD session here: buff.ly/Jc0uOHd
#PSCSupport #LetsBeatPSC

@pscsupport.bsky.socialOct 3, 2026, 7:45 AM

Clinical definitions do not always capture the daily reality of living with #PSC.
The International #PSCTreatment Evidence Survey gathers true real-world lived experiences to build accurate clinical guidance.
Help bridge the knowledge gap: buff.ly/xF4UJEX
#LetsBeatPSC #RareDisease

@pscsupport.bsky.socialOct 2, 2026, 8:45 AM

PSC affects everyone differently. Some people remain stable for years, others experience progressive liver scarring or face serious complications such as cancer. Dr Ghada Nouairia breaks down results from her study: buff.ly/vK12JRP
#LetsBeatPSC #PSCResearch #LiverDisease #RareDisease #PSC

@pscsupport.bsky.socialSep 30, 2026, 8:45 AM

URGENT: Clinical trial data alone won't get new PSC treatments approved. Regulators (like @MHRAgovuk & FDA) need real-world evidence from patients & caregivers to evaluate new therapies.

Your voice is vital to building this evidence. ๐Ÿ‘‡ buff.ly/ifIS3mC #LetsBeatPSC #primarysclerosingcholangitis

@pscsupport.bsky.socialSep 27, 2026, 9:00 AM

20 minutes today, could pave the way to finding effective treatments for PSC. This International #PSCTreatment Evidence Survey is collecting critical data that will help shape trial designs, clinical guidelines & research priorities for years to come.
โžก๏ธ buff.ly/3KZjqaZ #LetsBeatPSC

@pscsupport.bsky.socialSep 25, 2026, 8:45 AM

Every patientโ€™s experience deserves to be heard, measured, and improved.
๐Ÿ’ฌ Talk to your loved ones about organ donation today.
โœ๏ธ Register your wishes with @NHSOrganDonor.

#LetsBeatPSC #OrganDonationWeek #DonateLife

@pscsupport.bsky.socialSep 23, 2026, 8:45 AM

This #OrganDonationWeek, read Daniel's inspiring journey of living with PSC & receiving a life-saving liver transplant ๐Ÿ’™

Transplants save lives. ๐Ÿ’— Speak to your loved ones and register your decision with @NHSOrganDonor today.

Daniel's story: buff.ly/xfzFM3b

#LetsBeatPSC #DonateLife

@pscsupport.bsky.socialSep 22, 2026, 9:01 AM

This #OrganDonationWeek we're sharing Maja's story, from an unexpected PSC diagnosis to a life-saving liver transplant just 2 months ago.
โžก๏ธ buff.ly/YewZS4w #LetsBeatPSC #LiverRecipient #OrganDonation @nhsorgandonor

@pscsupport.bsky.socialSep 21, 2026, 9:01 AM

This #OrganDonationWeek, weโ€™re sharing stories from our community ๐Ÿ’™ Diagnosed with PSC at 23, Katie went from liver failure at 28 to a second chance at life at 30 thanks to a donorโ€™s kindness. Read her story & find out how to register your decision: buff.ly/3NBiCoo
#LetsBeatPSC #OrganDonation

@pscsupport.bsky.socialSep 20, 2026, 6:01 PM

Good luck Gillian and John, who are cycling London to Paris starting 23rd September! Join us in wishing them smooth roads, clear skies, and strong tailwinds! Show support by dropping a ๐Ÿ’™ in the comments or donating:
pscsupport.enthuse.com/pf/john-gill... #TeamPSCSupport #LetsBeatPSC

@pscsupport.bsky.socialSep 19, 2026, 8:00 AM

Registration is OPEN for our PSC Support Info Day! Join us to learn, ask questions, & connect with others. Featuring expert talks from Prof Emma Culver & Dr Deepak Joshi.
๐Ÿ“ London
๐Ÿ—“๏ธ Sat 5 Dec
Book your place: buff.ly/gqRVfK8
#LetsBeatPSC #PSC Support

@pscsupport.bsky.socialSep 16, 2026, 12:01 PM

Living with #PSC often means managing unpredictable energy levels and severe #fatigue, a symptom that isn't always visible to others.

If you're navigating fatigue you don't have to figure it out by yourself.

For info, guidance & support visit us at pscsupport.org.uk. #ChronicFatigue #LetsBeatPSC

@pscsupport.bsky.socialSep 14, 2026, 7:45 AM

Today at 7pm UK time! Still time to register for our free Ask the Expert webinar on PSC & IBD, featuring Dr Rimmer & Dr Chandni Radia + a live Q&A.
๐Ÿ—“๏ธ TONIGHT | โฐ 7pm UK
๐Ÿ“ Live on Zoom
Secure your spot now ๐Ÿ‘‡
us06web.zoom.us/webinar/regi... #LetsBeatPSC #PSCIBD #AskTheExpert

@pscsupport.bsky.socialSep 13, 2026, 8:30 AM

Have you been offered access to a clinical trial for PSC?

This short is from a special PSC Support Ask the Expert session with international PSC experts who mapped out the road to effective treatments.

Full session & extracts: buff.ly/7n8DkNC #LetsBeatPSC #PSCSupport

@pscsupport.bsky.socialSep 12, 2026, 8:15 AM

With few hills or inclines, Barcelona Marathon course is flat and fast, and suits first time runners, or those going for a PB! Plus it's a great excuse to explore this unique city while raising much needed funds for #PSCSupport.
โžก๏ธ runforcharity.com/charity-regi... #LetsBeatPSC #TeamPSCSupport

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