š Thank you to everyone who helped make Stillās Disease visibleāand to Novartis + Sobi for supporting Stillās Disease Awareness Day 2026.
The 47 hours may be ending. The listening and action continue.
@ifaiarthritis.bsky.social
@ifaiarthritis.bsky.socialš Thank you to everyone who helped make Stillās Disease visibleāand to Novartis + Sobi for supporting Stillās Disease Awareness Day 2026.
The 47 hours may be ending. The listening and action continue.
@ifaiarthritis.bsky.socialMoving from pediatric to adult care can mean new providers, terminology, insurance and responsibilities. What has been the biggest challenge for you or your loved one? What would have made it easier? All AiArthritis communities can answer.
@ifaiarthritis.bsky.socialPeople are talking about Stillās Disease today. We want people living it to lead the conversation.
Whatās one thing you wish more people understood about life with Stillās?
Share with #MyStills #IWontBeStill #StillsDay and tag @ifaiarthritis. zurl.co/vxdY1
@ifaiarthritis.bsky.socialAiArthritis diseases affect more than physical health. What area of life has been affected most: emotional well-being, relationships, school, work, finances, family life or something else? What support is still missing?
@ifaiarthritis.bsky.socialš„ Today is Stillās Disease Awareness Day.
Stillās Disease may be rare. Our experiences shouldnāt be invisible.
Share. Listen. Learn. Amplify.
š I Wonāt Be Still.
#IWontBeStill #StillsDay #MyStills #StillsDisease zurl.co/vxdY1
@ifaiarthritis.bsky.socialDistance. Limited specialist knowledge. Delayed referrals. Insurance barriers. What has made it hardest to get appropriate care, and what would have improved your experience? All AiArthritis communities are invited.
@ifaiarthritis.bsky.socialDiagnosis rarely comes down to one moment. What symptom, event, test result or pattern finally helped lead to yours? Were earlier signs missed or misunderstood? All AiArthritis patients and care partners can answer.
@ifaiarthritis.bsky.socialš„ The 47 hours begin now.
Across the globe, weāre making Stillās Disease visible through awareness, lived experience, connection & action.
š I Wonāt Be Still. Will you?
#IWontBeStill #StillsDay #MyStills https://www.zurl.co/OdeFD
@ifaiarthritis.bsky.socialFor Stillās Disease Awareness Day, weāre showing how differently AiArthritis diseases can affect daily life. Which 3 symptoms or complications affect you most? Share your diagnosis if comfortable.
@ifaiarthritis.bsky.socialš„ Why the dragon? š
Its fire reflects Stillās high-spiking fevers. Its colors echo rashes that can appear & fade. Its strength represents a community determined to be seen and heard.