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@hdreach.bsky.socialOct 10, 2026, 3:30 PM

REMINDER NEXT WEEK: Our quarterly AVL meetup is back. Erika will be ready to greet you and will be bringing pumpkins and paint πŸŽƒ So we hope to see you there! If you can, please RSVP via Heylo and get all the updates there.

www.hdreach.org/community/ev... πŸ’™πŸ’œ #HDreach #ReachForHope

@hdreach.bsky.socialOct 8, 2026, 1:30 PM

REMINDER NEXT WEEK: We are providing Pumpkins and Paint πŸŽƒ Walk-ins are welcome, however please register if you can. If there are no signups, the event will be cancelled. Check HEYLO for updates!
Sign up here: www.hdreach.org/community/ev...
πŸ’™πŸ’œ
#HDreach #ReachForHope #ReachingForHope

@hdreach.bsky.socialOct 7, 2026, 2:02 PM

Are you thinking about genetic testing for HD but aren't sure where to start? Join our open chat room alongside HD Genetics. No need to sign up, just click the link to join during our meeting time, 12:30pm - 1pm ET. We are here to guide you and support you! πŸ’™ 🧬
Doxy.me/HDgenetics

#HDreach

@hdreach.bsky.socialOct 3, 2026, 2:02 PM

⛳️ Only 2 days to go!

A huge thank you to our Gold Sponsor, Angels of the Abbey, for supporting the Cindy Canning Memorial Drive Hope Home Golf Tournament! πŸ’™

Thank you for helping us Drive Hope Home!

See you October 5! πŸŒοΈβ€β™€οΈ

#HDReach #DriveHopeHome #HuntingtonsDisease #GolfTournament #HDHeroes

@hdreach.bsky.socialOct 2, 2026, 6:00 PM

REMINDER NEXT WEEK: We are providing Pumpkins and Paint πŸŽƒ Walk-ins are welcome, however please register if you can. If there are no signups, the event will be cancelled. Check HEYLO for updates!
Sign up here: www.hdreach.org/community/ev...
πŸ’™πŸ’œ
#HDreach #ReachForHope #ReachingForHope

@hdreach.bsky.socialOct 2, 2026, 1:45 PM

⛳️ Just 3 days until the Cindy Canning Memorial Drive Hope Home Golf Tournament!

#HDReach #DriveHopeHome #HuntingtonsDisease #GolfTournament #HDHeroes

@hdreach.bsky.socialOct 1, 2026, 1:02 PM

*REMINDER next week is Winston Salem meetup, a week earlier than usual! Join us for our in person events and virtual events for the month of October. We can't wait to see you there. πŸ’™ For more information, checkout www.hdreach.org/community/ev... #HDreach #ReachForHope #ReachingForHope

@hdreach.bsky.socialSep 30, 2026, 12:02 PM

A huge thank you to our Silver Sponsors for supporting this year’s tournament and helping HD Reach continue providing support, resources, and hope to families affected by Huntington’s disease. πŸ’™

#HDReach #DriveHopeHome #HuntingtonsDisease #GolfTournament #HDHeroes

@hdreach.bsky.socialSep 25, 2026, 7:31 PM

Brandi is in Houston for the HSG conference! Always great to connect with others in the HD community, learn what's happening in research and care, and bring new ideas back. πŸ’™

#HDReachΒ #ReachForHopeΒ #ReachingForHopeΒ #curehdΒ #curejhdΒ #rarediseaseΒ #huntingtonsdiseaseΒ #hdΒ #jhdΒ #huntingtons

@hdreach.bsky.socialSep 25, 2026, 1:01 PM

A special thank you to our 2026 specialty sponsors! β›³οΈπŸ’™

Thank you to our Closest to the Pin, Longest Drive, 19th Hole, and Drink Cart Sponsors for helping make the Cindy Canning Memorial Drive Hope Home Golf Tournament such a fun day for our golfers!

#HDReach #DriveHopeHome #HuntingtonsDisease

@hdreach.bsky.socialSep 24, 2026, 1:04 PM

OUR BEACH RAFFLE IS BACK! β˜€οΈ Get your tickets today! (Link in bio)

Winner will be drawn on October 5th at our 2026 Cindy Canning Memorial Drive Hope Home Tournament. You do NOT need to be present to win!
drive-hope-home-golf-tournament.perfectgolfevent.com/registration...
#HDReach #ReachForHope πŸ’™

@hdreach.bsky.socialSep 23, 2026, 1:04 PM

RDU: See y'all at the Boot Room tonight!

Check HEYLO for updates on all of our meetups! www.hdreach.org/community/ev... πŸ’™πŸ’œ #HDreach #ReachForHope #raredisease #huntingtonsdisease

@hdreach.bsky.socialSep 15, 2026, 1:03 PM

LAST CALL!

We’re excited to announce the 2026 Cindy Canning Memorial Drive Hope Home Tournament, happening Monday, October 5th at 12 Oaks in Holly Springs for the 3rd year in a row!

Register and learn more here:
www.hdreachgolf.com

#HDReach #DriveHopeHome #CindyCanningMemorial #goldforHD πŸ’™

@hdreach.bsky.socialSep 9, 2026, 1:03 PM

WS & CLT: We hope to see you tonight. Walk-ins are welcome, however please register if you can. If there are no signups, the event will be cancelled. Check HEYLO for updates!
Sign up here: www.hdreach.org/community/ev...
πŸ’™πŸ’œ
#HDreach #ReachForHope #ReachingForHope

@hdreach.bsky.socialSep 8, 2026, 1:03 PM

WILMINGTON: We hope to see you tonight. Walk-ins are welcome, however please register if you can. If there are no signups, the event will be cancelled. Check HEYLO for updates!
www.hdreach.org/community/ev...
πŸ’™πŸ’œ
#HDreach #ReachForHope #ReachingForHope #curehd #curejhd

@hdreach.bsky.socialSep 6, 2026, 6:01 PM

Meetup Reminders for THIS WEEK. Come build community and make connections with us. Sign up here: www.hdreach.org/community/ev... πŸ’™πŸ’œ Walkins are welcome, however please register if you can. If there are no signups, the event will be cancelled. UPDATES ARE SENT VIA HEYLO! #HDreach #ReachForHope

@hdreach.bsky.socialSep 3, 2026, 12:15 PM

AMT-130 Moves Forward in Regulatory Review uniqure.gcs-web.com/news-release...
#HDReachΒ #ReachForHopeΒ #ReachingForHopeΒ #curehdΒ #curejhdΒ #rarediseaseΒ #huntingtonsdiseaseΒ #hdΒ #jhdΒ #huntingtonsΒ #letstalkabouthd