Grilled Cheese

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@walesgenepark.bsky.socialSep 9, 2026, 10:42 AM

We’re delighted to be at the #FutureforRare Summit 2026.

Today’s event brings together the #RareDisease community to explore what a successor policy to the UK Rare Disease Framework should look like.

It’s set to be an exciting day, and we’re pleased to be here with @lifearc.bsky.social.

#Genomics

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@lifearc.bsky.socialSep 9, 2026, 8:56 AM

What should the future look like for people living with rare conditions?

With Genetic Alliance UK and Newcastle University, we've brought together the rare disease community to help shape the next generation of UK rare disease policy at the #FutureForRare summit.

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