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@bbmrieric.bsky.socialOct 8, 2026, 9:37 AM

Today with news from:
#Bioindustry40
#biobank.cy
#CANDLE
#canSERV
#EPND
#EPPerMed
#ERDERA
@ericforum.bsky.social
@cancerinfoportal.bsky.social
#GDI
#ISIDORe
#PERIFORMANCE
#PRIMTECH3R
#RISCALE
#QUANTUM
#UNCANConnect

πŸ”— Article link: buff.ly/ACv4qUr

🧡 2/2

@cnag-eu.bsky.socialOct 7, 2026, 11:14 AM

πŸ“’ Save the date!
πŸ—“οΈ 21 October | @erdera.bsky.social Annual Open Session

πŸ‘‰ As a partner in this EU-funded project, CNAG invites you to discover how innovation, collaboration and novel trial methodologies are advancing rare disease research

πŸ“ Register: loom.ly/j7dWpj4
#RareDiseases #ERDERA #CNAG

@erdera.bsky.socialOct 7, 2026, 7:20 AM

πŸ“£ Have you registered? On 21 October, ERDERA will host its Annual Open Session, a special anniversary event exploring how innovation, collaboration and novel trial methodologies are advancing rare disease research.
βœ… Free to attend πŸ“ Find out more & register: https://loom.ly/j7dWpj4
#ERDERA

@erdera.bsky.socialOct 1, 2026, 7:20 AM

πŸ† Celebrate the people and initiatives making a difference in rare diseases.
Join the 15th #EURORDIS Black Pearl Awards on 24 Feb 2026, held in Brussels & online as part of #RareDiseaseDay celebrations.
πŸŽ₯ Online participation is free.
πŸ‘‰ https://loom.ly/ClRoNdc
#RareDiseases #ERDERA

@erdera.bsky.socialSep 30, 2026, 6:16 AM

⏳ The deadline is approaching!
Want to expand your knowledge, connect with experts and help drive progress in rare diseases?
Apply for the Open Academy x ERDERA Schools 2027 before 16 October.
πŸ“ Barcelona, 7-10 June 2027
πŸ”— Apply now: https://loom.ly/uZ0Iz8M
#ERDERA #RareDiseases

@erdera.bsky.socialSep 29, 2026, 7:22 AM

Can AI really deliver for rare diseases? πŸ€– Join ERDERA at #WODCEurope 2026 for the pre-congress workshop "AI for Rare Diseases: From Promise to Practice". A lively debate on where AI can accelerate research and therapy development. πŸ‘‰ Read more: https://loom.ly/FQvdeRY
#ERDERA #RareDiseases #AI

@bbmrieric.bsky.socialSep 24, 2026, 7:22 AM

πŸ‘‹ Welcome back to #ProjectThursday

We collect biobanking news for you here every Thursday in one article.

Read it here: buff.ly/AsO2lEG

Today with news from:
#AHEAD
#CANDLE
@nextgentraining.bsky.social (#CaBRIOH)
#GDI
#EPPerMed
#ERDERA
@ericforum.bsky.social
#ISIDORe

πŸ‘‹ See you next week πŸ’™πŸ§‘

@bbmrieric.bsky.socialSep 17, 2026, 10:29 AM

πŸ’‘ Welcome back to our #ProjectThursday

We collect the latest news from the biobanking world for you here in one article.
Enjoy! 🀝

❗️ Article: buff.ly/DkHqiwN

Today news from:
#Bioindustry40
#ERDERA
#CANDLE
#EPND
#EPPerMed
@ericforum.bsky.social
#RISCALE
#QUANTUM

πŸ‘‹ See you here next week! πŸ’™πŸ§‘

@erdera.bsky.socialSep 15, 2026, 7:01 AM

πŸ‘Ά September is #NewbornScreening Awareness Month. Across Europe, access to comprehensive newborn screening remains uneven, contributing to avoidable inequalities in diagnosis and care.
Learn more in ERDERA's latest #ScientificPillπŸ‘‰ https://loom.ly/28UA3H8
#RareDiseases #ERDERA #HealthEquity

@eurordis.bsky.socialSep 14, 2026, 3:01 PM

πŸ€– How can data & AI work better for people living with rare diseases?

Day 1 of our #EURORDISOpenAcademy x #ERDERA training explored trusted data, AI, drug repurposing, patient registries & more.

πŸ“Έ A few moments from our first day in Barcelona!

A woman speaking into a microphone during a meeting with attendees seated around tables in a modern conference room.A diverse group of people attentively listening in a modern conference room with wooden walls and large windows.Woman standing and speaking into a microphone during a meeting in a modern room with wood and black diagonal wall panels.Adults attentively listening during a seminar in a modern conference room with wood and black diagonal wall panels.
@erdera.bsky.socialSep 14, 2026, 10:23 AM

πŸš€ Working on a #RareDisease innovation?
Learn what investors look for and how to pitch your project effectively at ERDERA's upcoming webinar. πŸ“… 16 Sept 2026 ⏰ 11:00 CEST πŸ’» Online
Researchers, venture builders & VCs share practical insights.
πŸ”— Register: https://loom.ly/zp3wAJM
#ERDERA

@erdera.bsky.socialSep 10, 2026, 9:40 AM

πŸ“¬ Miss the September newsletter? Catch up on the latest updates and highlights from across ERDERA and the rare disease research community. Read it here πŸ‘‰ https://loom.ly/VxVn5mI
πŸ“© Don’t miss the next issue, subscribe now: https://loom.ly/TFRXEBY
#ERDERA #RareDiseases

@bbmrieric.bsky.socialSep 10, 2026, 7:45 AM

πŸ’‘ Welcome back to our #ProjectThursday

We collect the latest news from the biobanking world for you here in one article.
Enjoy! 🀝

Today with news from: buff.ly/DpVFWOu

#AHEAD
#biobankcy
#ERDERA
#EPPerMed
@ericforum.bsky.social
#PERIFORMANCE

πŸ‘‹ See you here next week! πŸ’™πŸ§‘