Grilled Cheese

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Lipodystrophy United graphic titled “EL-PFDD Summary.” It reports approximately 100 in-person attendees and 400 online attendees. Participant type is listed as CGL 9.4%, FPL 77%, AGL 3.1%, unknown 6.25%, unsure 3.1%, and other 1.56%. Age ranges are 18 or under 3%, ages 18–34 25.4%, 35–49 41.8%, 50–64 25.4%, and 65 or older 4.5%. When asked how much lipodystrophy interfered with daily life in the past 12 months, 43.1% said extremely, 43.1% significantly, 13.8% moderately, and 0% minimally or not at all. Words used to describe living with lipodystrophy include exhausting, lonely, debilitating, frustrating, overwhelming, tiring, and hellish. The graphic also notes that 62% chose fatigue or pain as the one symptom they would remove with a magic wand, and 87% reported that lipodystrophy significantly or extremely interferes with daily life.
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