"Patients have to be there at the table to co-decide with the other stakeholders." 🤝
Our take-home message: every time there is a new mechanism or a new governance, patients have to be at the table.
@hlm4rare.bsky.social
@hlm4rare.bsky.social"Patients have to be there at the table to co-decide with the other stakeholders." 🤝
Our take-home message: every time there is a new mechanism or a new governance, patients have to be at the table.
@hlm4rare.bsky.social#RareDiseases are "an opportunity for innovation", not a cost. 📊
For the ERNs, cross-border registries are "not a choice", but a methodological requirement: there are not enough patients in one country.
A common ethical framework? "Yes, we need it."
@hlm4rare.bsky.social"Access starts with a proper diagnosis."
The way forward: faster decisions on what goes into newborn screening panels, more discussion on newborn screening, and a rare disease action plan, key for both diagnosis and other therapies.
👉 hlm4rare.eu
@hlm4rare.bsky.social"Europe does not lack clinical expertise." 🔬
Holm Graessner's message: we can do this now. We have what we need in place. What we need is trust, and the resources to deliver.
👉 Follow our work: hlm4rare.eu
@hlm4rare.bsky.social"If not now, when?" Maurizio Scarpa's answer: it's now. ⏳
Because a child born in Vilnius, Valencia or Vienna should have the same chance, not one that depends on their postcode.
👉 Follow our work: hlm4rare.eu
@womeningh.bsky.socialAt #EHFG2026, Dr. Magda Robalo Correia e Silva, Executive Director a.i. of Women in Global Health, joined leaders in a breakfast discussion on accelerating action for women’s health and keeping it firmly on the global agenda.
@womeningh.bsky.social“Redistributing power” must include women’s health.
At #EHFG2026, Dr. Magda Robalo Correia e Silva, Executive Director of Women in Global Health, called for women’s health to be better measured & prioritized.
Watch the full session here:
@ean.org🧠 Protecting brain health is an investment in Europe’s future.
At #EHFG2026, EAN, the Brain Health Mission and HEAL explored how Europe can stay competitive while preserving health and environmental safeguards.
▶️ Watch the full session here: buff.ly/3q5Z86G
@gasteinforum.bsky.social📺 Live now at #EHFG2026
✅ Health sovereignty, global solidarity & the WHO: ehfg.live/stage/kursaa...
@gasteinforum.bsky.socialHealth sovereignty is a contested term.
The closing #EHFG2026 plenary today at 12:45 will explore how Europe can pursue strategic autonomy while fulfilling its responsibilities within a shared global health ecosystem.
Join the discussion online 👉 bit.ly/4wMj6Mm
@gasteinforum.bsky.social📺 Live now at #EHFG2026
✅ Regulatory sandboxes as innovation partnerships: ehfg.live/stage/confer...
✅ The implementation gap: ehfg.live/stage/kursaa...
@obshealth.bsky.social☀️ #EHFG2026 is drawing to a close, with one important discussion still ahead. Plenary 3 on health sovereignty, global solidarity and WHO.
A new #Eurohealth article argues sovereignty is better understood as capability than control 👉 https://bit.ly/3TFMsyD
@gasteinforum.bsky.social📺 Live now at #EHFG2026
✅ Shaping resilient generations: ehfg.live/stage/confer...
@gasteinforum.bsky.social
@gasteinforum.bsky.socialPublic health professionals need more than evidence to influence political debates.
Join ASPHER, ASPPH, and Young Forum Gastein today at #EHFG2026, 1 October, from 18:00–19:30, to turn Public Health Diplomacy into practice.
@gasteinforum.bsky.social📺 Live now at #EHFG2026
✅ Transforming for health and security: ehfg.live/stage/kursaa...
✅ The regulatory shield: ehfg.live/stage/confer...
@gasteinforum.bsky.socialUkraine’s health system is transforming under extraordinary pressure.
📅 Join WHO Ukraine today at #EHFG2026 from 16:15 for a discussion on what Europe can learn from Ukraine’s experience of health reform, resilience, and crisis-driven innovation ➡ bit.ly/4wMj6Mm
@gasteinforum.bsky.social⏳ Starting soon! Is environmental regulation a barrier to competitiveness – or Europe’s strategic asset?
EAN & HEAL will explore how environmental protections can safeguard brain health, strengthen resilience, and support Europe’s future at #EHFG2026.
Register to join ➡️ bit.ly/4wMj6Mm
@gasteinforum.bsky.social📺 Live now at #EHFG2026
✅ Europe's health security as strategic defence: ehfg.live/stage/kursaa...
@anntics.bsky.social