@curedravet.bsky.social🔬 Tonight at 7 PM ET: What’s happening now in Dravet syndrome research and clinical trials?
Join DSF for our next State of the Foundation Town Hall and stay connected to where the field stands today.
🔗 Join tonight’s update ➞ tr.ee/dsf-town-hal...
@mackeithpress.bsky.socialFamilies report that heatwaves can worsen seizures in children with Dravet syndrome, adding to caregiver burden and limiting participation
#DravetSyndrome #Epilepsy #Seizures #RareDisease
onlinelibrary.wiley.com/doi/10.1111/...
@curedravet.bsky.socialProgress in #DravetSyndrome is not the work of one person, organization, or breakthrough. The progress we see today was built by all of you—together.
On #WorldGratitudeDay, Mary Anne Meskis shares a message of gratitude for everyone moving this mission forward.
@curedravet.bsky.social🔬 Join DSF on Sept. 29 at 7 PM ET for our 2nd State of the Foundation Town Hall.
We’ll share an update focused on current Dravet syndrome research and clinical trials.
🔗 Register to join us → tr.ee/dsf-town-hal...
@pharmaphorum.bsky.socialRight after reporting encouraging data with its #Dravetsyndrome #genetherapy, #EncodedTherapeutics has raised an impressive $275 million to take the programme into a pivotal trial.
@mlegitericyoung.bsky.socialDay 2 -High School - other than 3 seizures Cooper had another amazing day at school.
All 4’s again
FYI- He’s already crushing Dads high school GPA. 🤦♂️😂
More prayers were answered with today’s blessings !!!
#CooperStrong #DravetSyndrome
#epilepsy #specialneeds #blessed #love