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@ibdsuperheroes.bsky.socialOct 10, 2026, 8:01 AM

#WorldMentalHealthDay

Let's talk, listen & support better mental health together.

Living with #IBD impacts emotional wellbeing. 2026 theme: "Lived experiences heard: real voices, real change".

Listen & share: www.mentalhealth.org.uk/our-work/cam...

#Crohns #Colitis

@aj44brown.bsky.socialOct 9, 2026, 9:05 AM

#NowListening #42 Hakeem's story: how a Crohn's diagnosis shaped a career change to mental health nursing from Wrestling the Octopus IBD on CastBox castbox.fm/x/3Nb4B

#Crohns #Colitis

@aj44brown.bsky.socialOct 6, 2026, 9:04 AM

I have just had my second sit on the toilet this morning. No rectal bleeding, which has been the case since Friday. #Crohns 🚽 💩 🧻

@ibdsuperheroes.bsky.socialOct 5, 2026, 12:47 PM

#IBD isn't just physical; it affects mental health too.

Living with #InflammatoryBowelDisease brings emotional challenges, but you don't have to face them alone 💜 Check out our mental health resources 👉 tinyurl.com/IBDSHMHSupport

#Crohns #Colitis #IBDSuperHeroes

@crohns-disease.org.ukOct 3, 2026, 5:31 AM

Mornings with Crohn’s? Let’s change the script! From ‘I have to’ to ‘I choose to’. Create a soothing ritual that makes mornings peaceful. What’s your morning mantra? #Crohns #Routine https://crhns.uk/morningroutineforcrohns1791005432

@aj44brown.bsky.socialOct 2, 2026, 2:05 PM

I have just been to the Health Centre to collect a white form. They want another stool sample. #Crohns

@epigenometech.bsky.socialOct 2, 2026, 7:46 AM

Epigenetics Update - Single-cell analysis of chromatin accessibility in the human intestine identifies regulatory programs and clarifies genetic associations in Crohn's disease www.nature.com/articles/s41...

Anindita Basu/Sebastian Pott in Nat Genet

#Epigenetics #Crohns
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epigenometech.com

@ibdsuperheroes.bsky.socialSep 30, 2026, 4:49 PM

💜 Living with #IBD can feel isolating, but you do not have to do it alone.

Our #IBDSuperHeroes Facebook group is a safe space to connect, share tips & find support from fellow #IBDWarriors who get it!

Join us: www.facebook.com/groups/ibdsuperheroes

#Crohns #Colitis

@mythsa.bsky.socialSep 29, 2026, 11:37 PM

Weird medical issues my whole life.

Belly button bleed.
Crohns diagnosed by ER.
STREP in bladder (2025).
Strep multiple times a year as a teenager.
Oversized bladder.
Iritis from an allergy.

NOW, I'm a senior citizen who has Tonsillitis.

🤣🤣🤣🤣🤣🤣🤣🤣🤣
#GenX #Crohns #Weird

@ibdsuperheroes.bsky.socialSep 29, 2026, 10:01 AM

On #WorldHeartDay, we highlight how systemic inflammation in #IBD can affect the whole body, including cardiovascular wellness.

Taking care of your overall health while managing #Crohns and #Colitis is so important! 💜

#IBDSuperHeroes

@aj44brown.bsky.socialSep 29, 2026, 9:22 AM

Update - I have completed a FIT (Fae cal Immunochemical Test) and taken it to the Health Centre.

Bleeding again when I got the sample at about 6 in the morning. No bleeding when I went again at 8. Smaller 💩in the toilet. #Crohns

@buckingcryptid.bsky.socialSep 28, 2026, 10:27 PM

Hey there everyone, I am finally back on #ko-fi working on those health update posts and I have a new goal running for expected expenses from all the medical appointments.
As always, Thank you for the #support!
#transgender #crohns #awareness #health #charity
#fundraiser
ko-fi.com/buckingcryptid

@aj44brown.bsky.socialSep 28, 2026, 9:57 AM

Heading for the Health Centre in the next hour. I have experienced bleeding while excreting 💩over the weekend and twice this morning. #Crohns

@ibdsuperheroes.bsky.socialSep 27, 2026, 4:28 PM

#ChronicIllness fatigue isn't just being tired, it is bone-deep exhaustion caused by systemic inflammation. For those with #IBD, #Crohns, or #Colitis, sleep doesn't always reset the clock!💜

#IBDSuperHeroes #IBDawareness #CrohnsDisease #UlcerativeColitis

@ibdsuperheroes.bsky.socialSep 25, 2026, 4:17 PM

Newly diagnosed or living with #IBD for years? Discover real-life advice, practical tips, and shared wisdom from our community of #IBDSuperHeroes living with #Crohns and #Colitis 💜

👉 tinyurl.com/IBDSHCommuni...

#IBDawareness

@ibdsuperheroes.bsky.socialSep 22, 2026, 2:55 PM

Happy #AutumnEquinox! 🍂 Settle into the new season as the days begin to cool down.

Seasonal changes can affect energy levels and well-being when managing #IBD. Remember to rest, wrap up warm, and give yourself space to recharge as we transition into cosy autumn days

#Crohns #Colitis #IBDawareness

@aj44brown.bsky.socialSep 21, 2026, 10:00 AM

Annual Blood Test done. Blood pressure and pulse are OK #Crohns

@aj44brown.bsky.socialSep 21, 2026, 7:59 AM

Online early this morning. Off to the Health Centre at about 10 for my Annual Blood Test. #Crohns

@ibdsuperheroes.bsky.socialSep 20, 2026, 4:50 PM

Wishing a meaningful and peaceful #YomKippur to all observing in our community. May your day be gentle, safe, and filled with reflection and good health. G'mar Chatimah Tovah. 🕊️ #YomKippur2026 #IBD #Crohns #Colitis

@aj44brown.bsky.socialSep 19, 2026, 9:09 AM

I have my Annual Blood Test on Monday. I have just received my third reminder since I booked it. #Crohns

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