Larger ”stuff” was removed from the house yesterday. Today I donate loads of smaller items (china, glassware) to charity. Some pictures will go in mum’s care home room. The rest will be disposed of appropriately. #carer role is an ongoing onslaught.

“Stuff” has been shifted. Other stuff is ready to shift. I need to clear out stuff. #carer clear outs are awful - the smells, the notes, the unexpected reminders - it’s all vile.

Just had videocall with elderly #caree. We have the same chat every time I call. But we manage to have a laugh too which I think is good for us all. #carer

"Styles warns that the state is failing to acknowledge the real cost of #carers not getting breaks. "It costs far more to replace a #carer after they reach breaking point than to fund a weekly or annual break in the first place"": buff.ly/Un76l82

#healthcare #burnout #caregivers #UnpaidLabor

"I had to be confined to a #wheelchair ..& my #mother became my hands & legs. What this means is that there is zero #privacy ..I needed her assistance to move around, fetch things, take a shower, get dressed & even..[had t o be] spoonfed.": buff.ly/9U2DM1A

#ChronicPain #disability #NEisVoid #carer

This is still ongoing for me. I cleared mum’s home and rehomed as much as I could two years ago. Still got too much here and the constant reminders of her past with the items (and, worse, the smell) plus paperwork, photos, evidence of her decline, is awful. #dementia #carer

Spent six hours tidying, cleaning and filing. Plus filling up bags of rubbish and ‘stuff for shredding’ this is what 3+ years of being on standby as a distant #carer does for you.

Still more to do… but it’s a start. #BureaucraticBurden

📰 Carer’s allowance scandal victims could wait until 2054 for justice, charities warn

An estimated 25,000 carers could receive full or partial refunds.

Source: The Guardian | Read story

💬 How do you see this impacting users?

#TechBluesky #Carer #Justice

❓ What if your experiences as a #parent or #carer could help improve mental health research for children and young people?

In a new blog, Renal shares her journey from feeling unsure about research to becoming an advocate for patients and carers shaping research projects.

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