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@amcsupport.bsky.socialOct 5, 2026, 5:52 PM

Research, collaboration & community in Philadelphia!

At #AACPDM, our team shared research on bringing lived and professional experience together to develop rehabilitation recommendations, followed by a Philly dinner!

Thank you to everyone involved!

#AMCSI #AMCStrong #Arthrogryposis #AMCResearch

A collection of photos from the AACPDM Annual Meeting in Philadelphia featuring members of the research team presenting their work on co-developing rehabilitation recommendations with people who have lived and professional experience, participating in a conference panel, and gathering with AMCSI representatives, colleagues, and friends for dinner in Philadelphia. Arthrogryposis Multiplex Congenita, AMC, Arthrogryposis, AMCSI, Arthrogryposis Multiplex Congenita Support Inc., AACPDM, AACPDM Annual Meeting, AMC research, Arthrogryposis research, rehabilitation recommendations, rehabilitation research, lived experience in healthcare, patient lived experience, patient engagement, patient partners, co-developed healthcare research, disability research, rehabilitation medicine, AMC rehabilitation, Arthrogryposis rehabilitation, patient-centered research, healthcare collaboration, second medical opinion, AMC Learning Modules, AMC resources, AMC Community, disability advocacy, Philadelphia AACPDM, AMCSI research, Arthrogryposis healthcare, patient professional collaboration, AMCStrong, lived experience, patient advocacy, healthcare research, disability healthcare, rehabilitation recommendations for Arthrogryposis. AMCSI representatives, researchers, healthcare professionals, and community members at the AACPDM Annual Meeting in Philadelphia, including photos of the research team presenting on co-developed rehabilitation recommendations and gathering together for dinner.A collection of photos from the AACPDM Annual Meeting in Philadelphia featuring members of the research team presenting their work on co-developing rehabilitation recommendations with people who have lived and professional experience, participating in a conference panel, and gathering with AMCSI representatives, colleagues, and friends for dinner in Philadelphia. Arthrogryposis Multiplex Congenita, AMC, Arthrogryposis, AMCSI, Arthrogryposis Multiplex Congenita Support Inc., AACPDM, AACPDM Annual Meeting, AMC research, Arthrogryposis research, rehabilitation recommendations, rehabilitation research, lived experience in healthcare, patient lived experience, patient engagement, patient partners, co-developed healthcare research, disability research, rehabilitation medicine, AMC rehabilitation, Arthrogryposis rehabilitation, patient-centered research, healthcare collaboration, second medical opinion, AMC Learning Modules, AMC resources, AMC Community, disability advocacy, Philadelphia AACPDM, AMCSI research, Arthrogryposis healthcare, patient professional collaboration, AMCStrong, lived experience, patient advocacy, healthcare research, disability healthcare, rehabilitation recommendations for Arthrogryposis. AMCSI representatives, researchers, healthcare professionals, and community members at the AACPDM Annual Meeting in Philadelphia, including photos of the research team presenting on co-developed rehabilitation recommendations and gathering together for dinner.A collection of photos from the AACPDM Annual Meeting in Philadelphia featuring members of the research team presenting their work on co-developing rehabilitation recommendations with people who have lived and professional experience, participating in a conference panel, and gathering with AMCSI representatives, colleagues, and friends for dinner in Philadelphia. Arthrogryposis Multiplex Congenita, AMC, Arthrogryposis, AMCSI, Arthrogryposis Multiplex Congenita Support Inc., AACPDM, AACPDM Annual Meeting, AMC research, Arthrogryposis research, rehabilitation recommendations, rehabilitation research, lived experience in healthcare, patient lived experience, patient engagement, patient partners, co-developed healthcare research, disability research, rehabilitation medicine, AMC rehabilitation, Arthrogryposis rehabilitation, patient-centered research, healthcare collaboration, second medical opinion, AMC Learning Modules, AMC resources, AMC Community, disability advocacy, Philadelphia AACPDM, AMCSI research, Arthrogryposis healthcare, patient professional collaboration, AMCStrong, lived experience, patient advocacy, healthcare research, disability healthcare, rehabilitation recommendations for Arthrogryposis. AMCSI representatives, researchers, healthcare professionals, and community members at the AACPDM Annual Meeting in Philadelphia, including photos of the research team presenting on co-developed rehabilitation recommendations and gathering together for dinner.
@amcsupport.bsky.socialSep 21, 2026, 11:56 PM

šŸ’™šŸŽ¶ A huge thank you to Valerie Pepe for another amazing AMC Fall Music Festival!

Thank you to the musicians, attendees & everyone who came out to support AMCSI and the AMC Community! šŸ’™

To learn about her event, please visit:
amcsupport.org/vals-amc-fal...

#AMCSI #AMCStrong #Arthrogryposis

Photos from Valerie Pepeā€™s AMC Fall Music Festival at Rabā€™s Country Lanes in Staten Island show a lively evening of music, friendship, and support for the AMC Community. Images include smiling attendees posing together, Valerie with another attendees, guests gathered throughout the venue, and musicians performing live on stage under colorful lights. The photos capture the people, live entertainment, and welcoming atmosphere of the fundraising event benefiting AMCSI. #SupportAMCSI, #Arthrogryposis, #LiveMusic, #StatenIsland, Valerie Pepe AMC Fall Music Festival, AMC Fall Music Festival, Arthrogryposis Multiplex Congenita, Arthrogryposis Multiplex Congenita Support Inc, AMCSI, AMC Community, AMC awareness, AMC fundraiser, support AMCSI, Valerie Pepe, Rabā€™s Country Lanes, Staten Island fundraiser, Staten Island live music, AMC fundraising event, disability community, live music fundraiser, 25 Missions, The Kitchen, Mr Hood, Lukabrazi, AMCStrong, Arthrogryposis support Photos from Valerie Pepeā€™s AMC Fall Music Festival at Rabā€™s Country Lanes in Staten Island featuring smiling attendees, members of the AMC Community, Valerie, guests gathered for the event, and bands performing live music on stage in support of AMCSI.Photos from Valerie Pepeā€™s AMC Fall Music Festival at Rabā€™s Country Lanes in Staten Island show a lively evening of music, friendship, and support for the AMC Community. Images include smiling attendees posing together, Valerie with another attendees, guests gathered throughout the venue, and musicians performing live on stage under colorful lights. The photos capture the people, live entertainment, and welcoming atmosphere of the fundraising event benefiting AMCSI. #SupportAMCSI, #Arthrogryposis, #LiveMusic, #StatenIsland, Valerie Pepe AMC Fall Music Festival, AMC Fall Music Festival, Arthrogryposis Multiplex Congenita, Arthrogryposis Multiplex Congenita Support Inc, AMCSI, AMC Community, AMC awareness, AMC fundraiser, support AMCSI, Valerie Pepe, Rabā€™s Country Lanes, Staten Island fundraiser, Staten Island live music, AMC fundraising event, disability community, live music fundraiser, 25 Missions, The Kitchen, Mr Hood, Lukabrazi, AMCStrong, Arthrogryposis support Photos from Valerie Pepeā€™s AMC Fall Music Festival at Rabā€™s Country Lanes in Staten Island featuring smiling attendees, members of the AMC Community, Valerie, guests gathered for the event, and bands performing live music on stage in support of AMCSI.Photos from Valerie Pepeā€™s AMC Fall Music Festival at Rabā€™s Country Lanes in Staten Island show a lively evening of music, friendship, and support for the AMC Community. Images include smiling attendees posing together, Valerie with another attendees, guests gathered throughout the venue, and musicians performing live on stage under colorful lights. The photos capture the people, live entertainment, and welcoming atmosphere of the fundraising event benefiting AMCSI. #SupportAMCSI, #Arthrogryposis, #LiveMusic, #StatenIsland, Valerie Pepe AMC Fall Music Festival, AMC Fall Music Festival, Arthrogryposis Multiplex Congenita, Arthrogryposis Multiplex Congenita Support Inc, AMCSI, AMC Community, AMC awareness, AMC fundraiser, support AMCSI, Valerie Pepe, Rabā€™s Country Lanes, Staten Island fundraiser, Staten Island live music, AMC fundraising event, disability community, live music fundraiser, 25 Missions, The Kitchen, Mr Hood, Lukabrazi, AMCStrong, Arthrogryposis support Photos from Valerie Pepeā€™s AMC Fall Music Festival at Rabā€™s Country Lanes in Staten Island featuring smiling attendees, members of the AMC Community, Valerie, guests gathered for the event, and bands performing live music on stage in support of AMCSI.Photos from Valerie Pepeā€™s AMC Fall Music Festival at Rabā€™s Country Lanes in Staten Island show a lively evening of music, friendship, and support for the AMC Community. Images include smiling attendees posing together, Valerie with another attendees, guests gathered throughout the venue, and musicians performing live on stage under colorful lights. The photos capture the people, live entertainment, and welcoming atmosphere of the fundraising event benefiting AMCSI. #SupportAMCSI, #Arthrogryposis, #LiveMusic, #StatenIsland, Valerie Pepe AMC Fall Music Festival, AMC Fall Music Festival, Arthrogryposis Multiplex Congenita, Arthrogryposis Multiplex Congenita Support Inc, AMCSI, AMC Community, AMC awareness, AMC fundraiser, support AMCSI, Valerie Pepe, Rabā€™s Country Lanes, Staten Island fundraiser, Staten Island live music, AMC fundraising event, disability community, live music fundraiser, 25 Missions, The Kitchen, Mr Hood, Lukabrazi, AMCStrong, Arthrogryposis support Photos from Valerie Pepeā€™s AMC Fall Music Festival at Rabā€™s Country Lanes in Staten Island featuring smiling attendees, members of the AMC Community, Valerie, guests gathered for the event, and bands performing live music on stage in support of AMCSI.
@amcsupport.bsky.socialSep 21, 2026, 5:11 PM

šŸ Bee Unmistakable Monday šŸ’™

Every photo shared, conversation started & connection made helps bring greater visibility to AMC.

Be seen. Be heard. Be unmistakably you. šŸ’™šŸ

Learn more: amcsupport.org

#AMCStrong #BeeUnmistakableMonday #Arthrogryposis #AMCAwareness

A smiling member of the AMC Community is pictured at an AMCSI conference wearing a blue shirt, white sweater, and an AMC Awareness conference lanyard. The AMCSI logo appears in the upper-right corner, while AMCSI social media information and the hashtag #BeeUnmistakableMonday appear across the bottom of the image. The candid portrait captures a welcoming moment of connection within the AMC Community. Arthrogryposis, Arthrogryposis Multiplex Congenita, AMC, AMC awareness, Arthrogryposis awareness, AMC community, Arthrogryposis support, Arthrogryposis Multiplex Congenita support, AMCSI, Arthrogryposis Multiplex Congenita Support Inc., AMC resources, AMC support organization, AMC families, adults with AMC, children with AMC, living with Arthrogryposis, AMC conference, AMCSI conference, disability community, disability awareness, Bee Unmistakable Monday, AMCStrong, Support AMCSI Smiling AMC Community member wearing an AMC Awareness lanyard at an AMCSI conference for Bee Unmistakable Monday.
@amcsupport.bsky.socialSep 9, 2026, 12:01 PM

Ways to Give Wednesday šŸ’™

Honor the memory of someone with AMC through AMCSIā€™s Memorial Page, Memory Tree, Slideshow & Scrapbook.

šŸ”— amcsupport.org/amc-memorials/

#AMCMemorials #Arthrogryposis #GiveInTribute

A blue AMCSI ā€œGive In Tributeā€ memorial graphic featuring a bright sky with clouds and rays of sunlight. In the center, a white heart containing the AMCSI footprints symbol is surrounded by a pair of white angel wings. The graphic reads, ā€œHonoring the life of someone with AMC is a meaningful way to keep their memory close to our community.ā€ The AMCSI logo appears at the top, with information directing viewers to the AMCSI Memorials webpage at the bottom. Arthrogryposis Multiplex Congenita, AMC, Arthrogryposis, AMCSI, Arthrogryposis Multiplex Congenita Support Inc., AMC memorials, AMC Memorial Page, Give In Tribute, AMC tribute donation, memorial tribute, AMC Community, AMC remembrance, honoring someone with AMC, AMCSI Memorials, AMC Bereavement Grant, bereavement support, AMCSI Annual Conference, AMC Memory Tree, AMC Memorial Slideshow, AMC Memorial Scrapbook, disability community AMCSI Give In Tribute graphic with white angel wings surrounding a heart and AMC footprints against a blue sky, promoting memorials honoring members of the AMC Community.