explore | Grilled Cheese

@woldry.bsky.social Oct 15, 2026, 8:46 PM

Discovered that some new (relatively minor) issues may well just be additional symptoms of my underlying #autoimmune disorder.

The fun never ends, does it.

#Sjogrens #spoonies

@chronicloaf.bsky.social Oct 15, 2026, 12:05 AM

#Moloch (2022) is playing next in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#Criptober #HauntedHouse #horror #ForTinu #MutualAidMovies #spoonies #DisabilityCommunity #mecfs #autistic

@kisabird.bsky.social Oct 14, 2026, 8:20 PM

Crashing badly this week and today particularly, so it's a big nesting day for me. So much so that even sitting up to crochet is too much on my body. So instead I'm curling up with a new book! #spoonies #booksky

The cover of The Iron Hex by Victoria Walsh.

@sararobitaille.bsky.social Oct 14, 2026, 7:27 PM

My fellow #spoonies, share this video I made with your friends and family to give them new greetings that aren't " Have a great day!" or "How are you?"

@lupuswarrior69.bsky.social Oct 14, 2026, 3:07 AM

#Spoonies if people only knew what we deal with. 🥺

@leah.myatproto.social Oct 12, 2026, 9:29 PM

Get excited, get joyful, get ready, and that includes you #Spoonies

@chronicloaf.bsky.social Oct 12, 2026, 12:59 AM

#TheShining is playing in the #ChronicLoaf stream

Then we're watching the sequel, #DoctorSleep

Hop in and enjoy this Stephen King Double Feature with us

mzelo.com/app/rooms/ch...

#Criptober #Mutation #spookyseason #horror #spoonies #cannabiscommunity #disability #longcovid #autism #ForTinu

@myseveralworlds.com Oct 9, 2026, 4:26 PM

Reminder: seasonal changes make disabled people feel like shit.

It has to do with the
barometric changes.
Or we're witches.
We'll never say.

Credit: Crutches&SpookySpice

#MySeveralWorlds #AutumnVibes #Spoonies #DisabledLife

Reminder: seasonal changes make disabled people feel like shit.

It has to do with the
barometric changes.
Or we're witches.
We'll never say.

Credit: Crutches&SpookySpice

#MySeveralWorlds #AutumnVibes #Spoonies #DisabledLife

@chronicloaf.bsky.social Oct 7, 2026, 2:08 AM

"The Angry Black Girl and Her Monster" movie is playing next in the #ChronicLoaf stream

Hop in and watch with us @ mzelo.com/app/rooms/ch...

#Criptober #spookyseason #ForTinu #disability #longcovid #autism #spoonies #horror #Mutation #Halloween

The Angry Black Girl and Her Monster movie poster

@tomkindlon.bsky.social Oct 6, 2026, 6:16 PM

10/
What fatigue in ME/CFS feels like

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS
"Bone crushing. Always. I mean always present. But the intensity fluctuates. But ALWAYS present.
When other symptoms of ME/CFS worsen, so does the intensity of fatigue increase...."
RESEARCH i (. SCO36942
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Oct 6, 2026, 4:56 PM

9/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS
"ME/CFS-related fatigue is very different from ordinary tiredness. It feels like my body has an extremely limited amount of energy available, and even very small amounts of physical or mental activity can use up far more energy than they should. It can feel like my whole body is heavy, weak and drained, as though I have run out of fuel. Resting or sleeping does not
reliably restore that energy....
RESEARCH UK SCO,6942
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Oct 6, 2026, 4:03 PM

8/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS
"...My hobbies went one by one, friends disappeared. Cooking, eating, showering, cleaning the house have all been reduced over time. I can rarely cook from scratch now, it's exhausting. I rarely go out and can't go far when I do, I can't drive far any more...."
Response from ME Research UK Symptom Saturday Fatigue Survey
hel% RESEARCH UK SCO369.42
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Oct 6, 2026, 3:10 PM

7/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

@tomkindlon.bsky.social Oct 6, 2026, 3:06 PM

8/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

$FATIGUE IN ME/CFS "Exhaustion in my bones. Like walking through treacle...." RESEARCH UK SCO36942 '\ INFORM. INFLUENCE. INVEST.$

@tomkindlon.bsky.social Oct 6, 2026, 2:14 PM

6/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS
"...I had to stop working, that had a huge impact on my mental health, I felt useless. My income and independence were gone and I felt like I wasn't a person who had anything to give anymore. I had to give up sports, hiking and anything that used my energy. My family life suffered, my partner became my carer. I couldn't do many things for my child and felt so guilty that she had a sick parent. Our lives changed from being very active to almost nothing...."
Response from ME Research UK Symptom Saturday Fatigue Survey
RESEARCH K ,CO36942
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Oct 6, 2026, 2:09 PM

7/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

$FATIGUE IN ME/CFS "Fatigue in ME/CFS is not tiredness as healthy people experience it. It is not tiredness after a busy day but more like the drained and weakened fatigue that healthy people would feel when they have a dose of flu and they are wiped out with all their strength gone...." 1414 RESEARCH UI SCC,6942 \ INFORM. INFLUENCE. INVEST.$

@tomkindlon.bsky.social Oct 6, 2026, 1:35 PM

6/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS
"Fatigue doesn't even begin to describe it. It feels like a whole body shut down...."
MI UK SCO36942
IN
FORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Oct 6, 2026, 1:08 PM

5/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS
"I struggled through by pacing myself & a sympathetic system that allowed me up to 6 months unpaid leave , but I couldn't care for my daughters in the way I wanted to"
Response from ME Research UK Symptom Saturday Fatigue Survey
RESEARCH UK SCO36942
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Oct 6, 2026, 11:42 AM

4/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS
"...The change to a completely sedentary lifestyle is a major challenge and I am missing out on my retirement and not enjoying it. I can no longer engage with the same circle of friends. Adjusting to living with the condition is depressing."
Response from ME Research UK Symptom Saturday Fatigue Survey
RESEARCH UK ,C0692
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Oct 6, 2026, 11:30 AM

5/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

$FATIGUE IN ME/CFS "Remember the time you were so exhausted you couldn't wait to go to sleep? I feel like that everyday. The difference is that when I wake up, I feel the same. Remember when you came down with the flu and felt like you were hungover, your head throbbed, you had no energy, and everything hurt? I feel like that everyday." RESEARCH UK SCO36942 \ INFORM. INFLUENCE. INVEST.$