@pheopara.bsky.social💚 Step Five Matters: You Don't Have to Do This Alone.
Living with PPGL? Pheo Para Alliance offers peer support, trusted resources, and patient navigation to help you move forward.
🤝 Find your community:
pheopara.org/community/re...
@pheopara.bsky.social💚 Peer Support Meeting — Tomorrow!
You don’t have to navigate the PPGL journey alone. Connect with others who understand, share experiences, and find support.
🕘 9 AM PT | 10 AM MT | 11 AM CT | 12 PM ET
🔗 Register through the link in our bio.
@pheopara.bsky.social💚 Join us September 24 for our Bi-Monthly Support Meeting—a space for the PPGL community to connect, share experiences, and support one another.
🕘 9 AM PT / 12 PM ET
Register:
www.zeffy.com/en-US/ticket...
@pheopara.bsky.social💚 What does hope mean to you?
This Saturday at the Circle of Hope Gala, we’re creating a Pheo Para Hope Wall featuring messages from our community.
💬 Tell us what hope means to you, and we’ll add your message to the wall.
@pheopara.bsky.social🔬 PPGL Scientific Forum — September 15, 2026
Research, progress and hope for the pheochromocytoma and paraganglioma community. 💚
@pheopara.bsky.social💚 Our Caregiver Support Meeting is tomorrow!
Join fellow caregivers for a supportive space to connect and support one another.
📅 Monday, September 14
🔗 Register:
www.zeffy.com/en-US/ticket...
@pheopara.bsky.social💚 Our next Caregiver Support Meeting is Monday, September 14.
Connect with fellow caregivers, share experiences, and find support from people who understand the caregiver journey.
Register: www.zeffy.com/en-US/ticket...
@pheopara.bsky.social10 days until the Circle of Hope Gala! 🧡
Join the Pheo Para Alliance community in Boston on September 19 for an evening of hope, connection, and impact.
🎟️ Tickets:
www.zeffy.com/en-US/ticket...
@pheopara.bsky.social🏁 Missed a Pheo Para Awareness Week webinar?
The recordings are now available on demand. Catch up on educational sessions and expert resources on Pheo Para.
🎥 Watch: pheopara.org/clinicians/v...
@pheopara.bsky.socialYou don’t have to navigate the Pheo Para journey alone. 💚
Connect with the Pheo Para Alliance community for support, resources, and opportunities to get involved.
💬 What support has meant the most to you?
Join us: www.zeffy.com/en-US/newsle...
@pheopara.bsky.socialClinical trials aren’t just a “last resort.” They exist across different stages of disease.
Jonathan Pascal, NP and PPGL patient, explains clinical trial phases and how patients can explore their options.
🔬 Learn more: pheopara.org/find-clinical-trials