We had a wonderful talk from Raewyn Burroughs neurophysio about PEM and pacing this morning.
@lcsupportaotearoa.bsky.social
@lcsupportaotearoa.bsky.socialWe had a wonderful talk from Raewyn Burroughs neurophysio about PEM and pacing this morning.
@airiredcat.bsky.socialHeute an der Uniwiese langgelaufen und da haben Studis Hobbyhorsing betrieben, Wikingerschach gespielt, und sich gegenseitig huckepack getragen und ich vermisse das Studisein und Gesundsein und einfach auf der Wiese mit Freunden sitzen. 🥹
Einmal im Kreis laufen war schon zu viel.
@workwellfoundation.bsky.socialLATEST NEWS ON TODD'S SUBSTACK
ME/CFS is characterized by post-exertional malaise. PEM is variously defined, but it involves an abnormal multi-system & multi-symptom response to often-trivial levels of exertion.
Read more: conta.cc/4rQWitY
#MECFS #LongCOVID #PEM #Science @sunsopeningband.bsky.social
@benking01.bsky.social
@semg.bsky.social🔜Ya falta menos para esta Jornada organizada por #SEMG y la Asociación de Personas con Encefalomielitis Miálgica (#PEM):
🥼Más allá de la Fatiga: Diagnóstico diferencial de la Encefalomielitis Miálgica (#EM/#SFC)
🗓️26 de octubre de 2026
⏰️ 18.00 a 19:30 h.
👩⚕️/💻️ Formato híbrido (presencial y online)
@benking01.bsky.socialRested well. 06:45 Thursday 🤞
Visible Health Stable - although Resting HR is slightly elevated
EliteHRV 10 out of 10 Readiness and PNS/SNS Balanced
KubiosHRV Readiness on the Lower end of my 'Normal'
Dare I believe that I'm going to escape debilitating #PEM symptoms? 🤞
@swastrosarah.bsky.social
@tomkindlon.bsky.social2/
From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team
pmc.ncbi.nlm.nih.gov/articles/PMC...
@bettinagrande.bsky.social
@tanukirypeaches.bsky.socialToo many faces? Not enough faces? I don't know...
But hey, at least it looks like it's coming together nicely 😅
Maybe her butts too high...
@oudais.bsky.social
@achronicvoice.com"we’re #exhausted. Not just from the #PEM. From explaining it over & over to people who think they know better..Which, if you think about it, is rather the whole problem.": buff.ly/tydQbXg
by @darthfoo.bsky.social
#ChronicFatigue #ableism #disabled #NEisVoid #ChronicPain #ChronicallyIll
@benking01.bsky.socialMission accomplished 🙏
Heartrate back down.
Pacing line falling further behind my daily Pacesetter 😊
#Pacing to avoid overexertion and the #PEM symptoms that come with my #LongCovid
@benking01.bsky.social4pm. Home. And still not used a single PacePoint all day.
This is the danger of a Parasympathetic Swing! I've done so much today, albeit very slowly and with lots of resting on my telescopic stool 🙏
#Pacing to avoid overexertion and debilitating #PEM symptoms associated with my #LongCovid
@tomkindlon.bsky.social2/
POST-EXERTIONAL MALAISE (PEM) IN ME/CFS
![POST-EXERTIONAL MALAISE (PEM) IN ME/CFS
PEM is the delayed worsening of symptoms, such as cognitive dysfunction and fatigue, following minimal physical and/or mental exertion. It often has a profound impact on daily activities.
ME/CFS research highlights:
• Lower threshold for anaerobic respiration / lactic acid (lactate) production. Elevated lactate at rest associated with more severe PEM.
• Sodium-potassium pump dysfunction in skeletal muscle may impair mitochondria and contribute to PEM.
• Increased activation of certain brain regions post-exercise may be associated with PEM.
Although these studies have limitations, they provide a foundation for future research.
PEM is the hallmark feature of ME/CFS
•
INFORM. INFLUENCE. INVEST. Full overview and references at [tinyurl.com/PEMsymptomsat]
1111111 111141 RESEARCH UK 00030042](https://cdn.bsky.app/img/feed_fullsize/plain/did:plc:43rudsv62fuwsmnk7oppgtdy/bafkreia64fgqvjgwsucybgi3ct4jxfdfpdr3zfytsbwqv5mpxh6iweurdi@jpeg)
@tomkindlon.bsky.social2/
What post-exertional malaise (PEM) in ME/CFS feels like
@swastrosarah.bsky.socialI've been hoping a newer country, like Ireland or New Zealand would lead the way on safe medical management of #ME. Take a look at this, given by microbiologist Prof Warren Tate, findings linking epigenetics with #PEM in NZ.
Thanks to ANZMES for making it public www.youtube.com/watch?v=giis...
@tomkindlon.bsky.socialFrom the popular Diploma Duck account on IG, FB and probably elsewhere
“ME/CFS (explained by ducks)” (58 seconds)
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #PEM
@benking01.bsky.socialA reminder to anyone who, like me, is trying to work out what on Earth is going on inside our #LongCovid bodies:
Pacing as I do and keeping within my daily 'energy envelopes' for Movement (KiActiv) and PacePoints (Visible Health) I am keeping free of Post-Exertional-Malaise #PEM symptoms 🎉