@healthwatchbh.bsky.socialAre you looking for advice or information about health & social care? We can share information, advice, or signpost you to local services.
Get in touch:
01273 234 040
[email protected]
healthwatchbrightonandhove.co.uk/contact-us
#Healthwatch #PatientVoice #IndependentVoice #healthwatchmatters
@europeanlung.bsky.socialπ« Today is #ChronicCoughDay.
Chronic cough can affect sleep, work, relationships and quality of life.
π Learn more about chronic cough and how to get involved through our Patient Advisory Group: https://bit.ly/4jm3kou
#WCCD2026 #ChronicCough #PatientVoice @EuroRespSoc
@europeanlung.bsky.socialπ£ Happening tomorrow!
Join the ELF Annual Stakeholder Meeting and help shape our priorities for 2027 and beyond.
Meet our new Chair and Vice Chair, hear highlights from the past year and share your views on the future of ELF.
@fertilityeurope.bsky.socialFertility Europe was pleased to bring the patient perspective to the PTMRiE Scientific Symposium 2026 in ΕwinoujΕcie.
Our Secretary, Bojana Santic, was invited to speak on βInfertility care: What still needs to be done? Patientsβ perspective.β
#PatientVoice
@europeanlung.bsky.socialβ° Just 3 days left to register: https://bit.ly/4AXo2l7
What should ELF focus on in 2027 and beyond?
Join our online annual stakeholder meeting and help shape future priorities for patients, carers and the wider lung health community.
@europeanlung.bsky.socialπ£ One week to go: https://us02web.zoom.us/meeting/register/n2DTwrvoQhKwX7xNyek30A#/registration
Want to influence the European Lung Foundation's future priorities and activities?
Join our Annual Stakeholder Meeting online on 15 October and help shape the future of lung health!
@psych-strata.bsky.socialWhy do patient voices matter in mental health research?
People with lived experience bring insights that data alone cannot capture.
Learn more: psych-strata.eu
#PsychSTRATA #PatientVoice #MentalHealth
@broadinstitute.org @kingscollegelondon.bsky.social @mpi-psychiatry.bsky.social @uni-muenster.de
@teamtouchdesign.bsky.socialA powerful patient story that is changing healthcare conversations. Join our free #LexisLetter webinar on 15 October and hear from Lexi's family, NHS leaders and the team behind the project.
π Register: https://tinyurl.com/426cvk5h
π¬ https://ow.ly/rOys50ZBp5Z
#PatientExperience #PatientVoice #NHS
@ikccorg.bsky.socialπ The 5th Global Patient Survey on Kidney Cancer
This year marks an important milestone: 10 years of collecting data on the experiences of people living with kidney cancer. π
Your experience matters. Add your voice and take part in the survey today: buff.ly/7mCplWI
@teamtouchdesign.bsky.socialA powerful patient story that is changing healthcare conversations. Join our free #LexisLetter webinar on 15 October and hear from Lexi's family, NHS leaders and the team behind the project.
π Register: https://ow.ly/2pnj50ZBpkc
π¬ https://ow.ly/cuRw50ZBpke
#PatientExperience #PatientVoice #NHS
@ipopi.bsky.socialIPOPI was pleased to join the K-POINT scientific forum in Rome on 29β30 September, bringing together international experts in immunology and hema-oncology to discuss some of the key challenges in PIDs and SIDs.
@kidneycareuk.bsky.socialIt's been a busy few days at the Labour Party Conference. We were there to make sure kidney disease & the experiences of our patient community remain firmly on the health agenda. We continue to champion the voices of those affected & push for the changes that matter.
#PatientVoice
@buttahflyk.bsky.social... messaging can come across as insensitive or hurtful to patients, and how pharma and industry leaders can do better.
π¦
#AWNY26 #ChronicIllness #PatientAdvocacy #PatientVoice #SpoonieSky
newyork2026.advertisingweek.com/aw/schedule/...
@carolefogg.bsky.socialthis is brilliant #PatientVoice
@mi4innovates.bsky.socialπ€Meet Ildiko Mehes at the 8th MI4 Symposium.
Attorney, healthcare leader, IBD advocate, and parent, Ildiko will share the patient perspective in her talk: "It's Time to Change Tack in IBD Thinking."
@pscsupport.bsky.socialFor #NationalPoetryDay, a community member diagnosed with PSC & UC at 13 shares how writing poetry in hospital waiting rooms became a vital outlet.
Watch & listen to them read their moving poem set to a sun-dappled backdrop π
#PatientVoice #PSCSupport
@teamtouchdesign.bsky.socialA powerful patient story that is changing healthcare conversations. Join our free #LexisLetter webinar on 15 October and hear from Lexi's family, NHS leaders and the team behind the project.
π Register: https://tinyurl.com/426cvk5h
π¬ https://ow.ly/rOys50ZBp5Z
#PatientExperience #PatientVoice #NHS
@autopix.bsky.socialπΊ Watch it directly on our YouTube channel:
https://www.youtube.com/@AutoPiXproject
Donβt miss it!
#AutoPiX #IHI #ArtificialIntelligence #AI #Rheumatology #PatientEngagement #DigitalHealth #MedicalImaging #ClinicalResearch #PatientVoice #PRP
@longcoviduk.bsky.socialπ Please support the APPG if you can by writing to your MP and encouraging them to attend this meeting!
#LongCovid #APPG #LongCovidAwareness #Parliament #PatientVoice #LongCovidUK
@melanomafocus.bsky.socialOnline engagement events are also taking place on 14 October for children and young people, and on 15 October for everyone else.
Your experience matters. Help shape the future of cancer care in Wales π
#MelanomaFocus #CancerCare #Wales #CancerSupport #PatientVoice
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