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@infusionaccessfoundation.orgOct 19, 2026, 6:05 PM

Using a copay card and suddenly got a huge bill halfway through the year? A copay accumulator might be why. Swipe to learn how they work and how to protect yourself.

#HealthLiteracyMonth #CopayAccumulator #PatientAdvocacy #AccessToCare

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@buttahflyk.bsky.socialOct 19, 2026, 2:02 PM

I’ll be co-hosting the November episode of the @ifaiarthritis.bsky.social podcast w/ Leila P.L. Valete, @chroniceileen, and James Hollens.

We'll be talking about the recent term "sickfluencer" and how it impacts real patients.
🦋
aiarthritis.org/podcast
#aiarthritis #ChronicIllness #PatientAdvocacy

AiArthritis 360 Podcast
Sunday, November 1
aiarthritis.org/podcast

The term "sickfluencer" has become part of a larger conversation on social media about people who publicly share their experiences living with chronic illness.

While patient creators can play an important role in raising awareness, building community, and helping others feel less alone, they may also face scrutiny, accusations, and questions about their credibility or motivations.

At the same time, there are legitimate conversations to be had about misinformation, monetization, transparency, and the responsibilities that come with sharing health-related content.

This episode brings together three chronic illness content creators to explore these issues through their own lived experiences and perspectives.

The goal isn't necessarily to agree on everything, but to have an open, thoughtful conversation about patient storytelling, advocacy, accountability, and the impact of the "sickfluencer" narrative.
@soltiresearch.bsky.socialOct 19, 2026, 9:43 AM

🔬¿Y si, para avanzar en la investigación, necesitáramos también una nueva mirada? La de quienes conocen la enfermedad en primera persona y transforman su experiencia en conocimiento. Esa es la fuerza del #PatientAdvocacy. #UnLugarMuchasVoces #DMCM2026  #CáncerDeMama #beSOLTI #PatientXpert

@smartpatient.bsky.socialOct 18, 2026, 7:00 PM

Tip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.

#PatientAdvocacy #ChronicIllness #HealthTracking

H@healthflare.orgOct 18, 2026, 4:06 PM

Informed Patient by @grimalkina.bsky.social is now on the Open Health Index. It interviews you before it searches, weighs the evidence, and gives you questions for your care team. We love this work. Thank you!

openhealthindex.org/tools/inform...

#PatientAdvocacy #ChronicIllness

@smartpatient.bsky.socialOct 18, 2026, 2:00 PM

If your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.

#ChronicIllness #PatientAdvocacy #Spoonie

@digestivecancerseu.bsky.socialOct 18, 2026, 12:06 PM

Today, during the 2nd day of #UEGWeek2026 in Barcelona, @myueg.bsky.social launched its new Patient Representatives Advisory Board (PRAB), with Zorana Maravic joining as a representative of Digestive Cancers Europe. #PatientAdvocacy #DigestiveHealth

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@smartpatient.bsky.socialOct 17, 2026, 11:00 PM

If your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.

#ChronicIllness #PatientAdvocacy #Spoonie

@health-wrregion.bsky.socialOct 17, 2026, 12:21 AM

Changing the Game to Win the Case
While a court recently ruled that the government's denial lacked proper justification and demanded a review, Health Minister Sylvia Jones’ office responded by rewriting the rules entirely.
#PatientAdvocacy #HealthEquity #OntarioHealth #OHIP #CancerSupport

@smartpatient.bsky.socialOct 16, 2026, 10:31 PM

If your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.

#ChronicIllness #PatientAdvocacy #Spoonie

@infusionaccessfoundation.orgOct 16, 2026, 5:47 PM

Ever been told you have to "fail first" on a medication before your insurance will cover the one your doctor prescribed? That's step therapy. Swipe to learn what it means and what you can do about it.

#HealthLiteracyMonth #StepTherapy #PatientAdvocacy #AccessToCare

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@ikccorg.bsky.socialOct 16, 2026, 12:02 PM

Thank you, Michael, Anne and Bryan, for being part of this journey and for the lasting impact you continue to make.

#IKCC #KidneyCancer #PatientAdvocacy

@chronicallies.bsky.socialOct 15, 2026, 5:58 PM

#CriticalAppraisal, #ChronicAllies, #PatientAdvocacy #ChronicIllness #Post-ViralIllness #MECFS #LongCovid #POTS #MCAS

@chronicallies.bsky.socialOct 15, 2026, 5:58 PM

Be your own health detective! Watch our new video to learn a practical 6-step checklist for critically appraising health claims, vetting online sources, and protecting your baseline: 🔗 youtu.be/aS3RSqCTzBw

#CriticalAppraisal, #ChronicAllies, #PatientAdvocacy #ChronicIllness #Post-ViralIllness

@prblg.bsky.socialOct 15, 2026, 1:14 PM

A cancer diagnosis brings a flood of questions
🔗 Read the full post and register for free
healthfitnessregime.com/cancer-chemo...

#IntegrativeOncology #CancerSupport #ChemoTips #CancerNutrition #PatientAdvocacy

@ikccorg.bsky.socialOct 15, 2026, 11:02 AM

Events like this create valuable opportunities to strengthen patient advocacy, exchange expertise and work towards better and more equitable kidney cancer care worldwide.

We are grateful for their support and commitment to the kidney cancer community.

#IKCC #KidneyCancer #PatientAdvocacy

@preeclampsia.orgOct 14, 2026, 10:06 PM

Turning this shared vision into action will take all of us. We hope to carry the same collaborative spirit into this next chapter. Together, we can drive change and help prevent maternal and newborn loss worldwide.

#Preeclampsia #MaternalHealth #PatientAdvocacy #GlobalRoadmap #QualityImprovement

@dollarfor.bsky.socialOct 14, 2026, 6:41 PM

Medical debt can put so much more than your finances on hold.

That’s what financial relief can really mean: room to move forward. 🧡

#DollarFor #medicaldebt #patientadvocacy #patienttestimonial #thankyou

@ifaiarthritis.bsky.socialOct 14, 2026, 5:00 PM

Advocacy isn't always a big public moment. 📣 Sometimes it's asking another question, requesting support, or speaking up when something doesn't feel right. Every voice matters. 💬 What's one way you've advocated for yourself? #AiArthritis #PatientAdvocacy

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@ikccorg.bsky.socialOct 14, 2026, 11:02 AM

Thank you, Dr Ilbawi, for sharing your expertise and contributing to the Summit.

#IKCC #KidneyCancer #WHO #CancerControl #PatientAdvocacy

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