Advocacy isn't always a big public moment. š£ Sometimes it's asking another question, requesting support, or speaking up when something doesn't feel right. Every voice matters. š¬ What's one way you've advocated for yourself? #AiArthritis #PatientAdvocacy
Real change starts with listening to patients. ā¤ļø Your support helps AiArthritis turn lived experiences into patient-led resources, education, advocacy, and research. Help us make being heard matter. #AiArthritis zurl.co/AfvmZ
Sickfluencer or patient advocate?
We're bringing 3 chronic illness creators together on the AiArthritis 360 Podcast to discuss the debate!
š¬ What makes you trust a creator? What concerns you?
Share your thoughts to help shape our episode! š
š October 12 is World Arthritis Day!
Arthritis isn't one disease! Unlike osteoarthritis, AiArthritis diseases involve immune dysfunction and can affect the whole bodyānot just joints.
š¬ What do you wish others understood?
#WorldArthritisDay #AiArthritis #Autoimmune #Autoinflammatory
š§ Mental health is part of the AiArthritis experience, too. Pain, fatigue, flares & uncertainty can take an emotional toll. This #WorldMentalHealthDay, letās make space for the mental AND physical impact.
#AiArthritis #MentalHealth #Autoimmune #Autoinflammatory #Arthritis zurl.co/1nQtX
š¼ How do you navigate work or school when pain, fatigue, brain fog & flares are unpredictable?
In this episode of AiArthritis Voices 360, we talk about the realities of working, learning & living with AiArthritisāand why flexibility matters.
š§ Tune in! #AiArthritis
October is full of opportunities to raise awareness & amplify patient voices.
From arthritis and psoriasis to mental health, invisible disabilities, employment & occupational therapy - these experiences are all connected to life with AiArthritis diseases.
For many of us with chronic pain, 1ā10 doesn't tell the whole story. Sometimes an image, color, sound, or word says more.
For #PainAwarenessMonth: How would you describe your pain without using a number?
š£ Advocate for Change.
Too many patients spend years being told their symptoms are something else. If thatās where you are, the pattern youāre experiencing is worth recordingāand your voice is worth sharing.
š¬ Share your experience.
Has your AiArthritis disease affected your work, education, career goals, or finances?
We want to hear YOUR experience.
š¬ Tell us in the replies: What's one impact you wish more people understood?
Take our lived experience survey: bit.ly/workandschoo...
September is Pain Awareness Month.
AiArthritis pain can be more than joint paināand its impact can reach every part of life.
š¬ Which is harder to explain: your pain or its impact?
š§ Brain fog is more than forgetfulness. Losing your train of thought, struggling for words, or feeling like your brain canāt keep up can be part of living with AiArthritis diseases.
š¬ Has your healthcare team ever talked to you about brain fog? bit.ly/aiarthritis-...
Chronic pain is more than a number. Pain can be shaped by inflammation, fatigue, sleep, stress & moreāand can persist even when disease is controlled.
š§ zurl.co/wTNNo
šØš¦ September is Arthritis Awareness Month in Canada.
AiArthritis diseases can affect the whole bodyānot just the joints.
š¬ What do you wish people understood about your symptoms?
Health policy can be complicated. Understanding how it affects you shouldnāt have to be.
Explore the Knowledge = Empowerment web-based hub for patient-led policy education and ways to take action. No download needed.
š« Today is Interstitial Lung Disease (ILD) Day.
For people with some AiArthritis diseases, systemic inflammation can affect the lungsānot just the joints.
š¬ Has lung health ever been discussed as part of your care?
#ILDDay #AiArthritis #Autoimmune #Autoinflammatory #Arthritis #LungHealth
September 14ā18 is Rheumatoid Arthritis Awareness Week.
RA is more than joint pain. Itās a systemic autoimmune disease that can affect the whole bodyāwith symptoms others may never see.
š¬ What do you wish more people understood about RA?
š Thank you to everyone who helped make Stillās Disease visibleāand to Novartis + Sobi for supporting Stillās Disease Awareness Day 2026.
The 47 hours may be ending. The listening and action continue.
Moving from pediatric to adult care can mean new providers, terminology, insurance and responsibilities. What has been the biggest challenge for you or your loved one? What would have made it easier? All AiArthritis communities can answer.
People are talking about Stillās Disease today. We want people living it to lead the conversation.
Whatās one thing you wish more people understood about life with Stillās?
Share with #MyStills #IWontBeStill #StillsDay and tag @ifaiarthritis. zurl.co/vxdY1
