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@ifaiarthritis.bsky.social

@ifaiarthritis.bsky.social

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@ifaiarthritis.bsky.socialOct 14, 2026, 5:00 PM

Advocacy isn't always a big public moment. šŸ“£ Sometimes it's asking another question, requesting support, or speaking up when something doesn't feel right. Every voice matters. šŸ’¬ What's one way you've advocated for yourself? #AiArthritis #PatientAdvocacy

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@ifaiarthritis.bsky.socialOct 13, 2026, 5:00 PM

Real change starts with listening to patients. ā¤ļø Your support helps AiArthritis turn lived experiences into patient-led resources, education, advocacy, and research. Help us make being heard matter. #AiArthritis zurl.co/AfvmZ

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@ifaiarthritis.bsky.socialOct 13, 2026, 6:01 AM

Sickfluencer or patient advocate?

We're bringing 3 chronic illness creators together on the AiArthritis 360 Podcast to discuss the debate!

šŸ’¬ What makes you trust a creator? What concerns you?

Share your thoughts to help shape our episode! šŸ‘‡

#AiArthritis #PatientAdvocacy

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@ifaiarthritis.bsky.socialOct 12, 2026, 5:18 PM

šŸŒŽ October 12 is World Arthritis Day!

Arthritis isn't one disease! Unlike osteoarthritis, AiArthritis diseases involve immune dysfunction and can affect the whole body—not just joints.
šŸ’¬ What do you wish others understood?

#WorldArthritisDay #AiArthritis #Autoimmune #Autoinflammatory

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@ifaiarthritis.bsky.socialOct 10, 2026, 5:00 AM

🧠 Mental health is part of the AiArthritis experience, too. Pain, fatigue, flares & uncertainty can take an emotional toll. This #WorldMentalHealthDay, let’s make space for the mental AND physical impact.

#AiArthritis #MentalHealth #Autoimmune #Autoinflammatory #Arthritis zurl.co/1nQtX

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@ifaiarthritis.bsky.socialOct 9, 2026, 12:38 PM

šŸ’¼ How do you navigate work or school when pain, fatigue, brain fog & flares are unpredictable?
In this episode of AiArthritis Voices 360, we talk about the realities of working, learning & living with AiArthritis—and why flexibility matters.
šŸŽ§ Tune in! #AiArthritis

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@ifaiarthritis.bsky.socialOct 1, 2026, 12:30 PM

October is full of opportunities to raise awareness & amplify patient voices.

From arthritis and psoriasis to mental health, invisible disabilities, employment & occupational therapy - these experiences are all connected to life with AiArthritis diseases.

#AiArthritis #Awareness

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@ifaiarthritis.bsky.socialSep 30, 2026, 1:20 PM

For many of us with chronic pain, 1–10 doesn't tell the whole story. Sometimes an image, color, sound, or word says more.
For #PainAwarenessMonth: How would you describe your pain without using a number?

@ifaiarthritis.bsky.socialSep 29, 2026, 9:07 PM

šŸ“£ Advocate for Change.

Too many patients spend years being told their symptoms are something else. If that’s where you are, the pattern you’re experiencing is worth recording—and your voice is worth sharing.

šŸ’¬ Share your experience.

#AiArthritis #Autoimmune #Autoinflammatory

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@ifaiarthritis.bsky.socialSep 28, 2026, 11:28 PM

Has your AiArthritis disease affected your work, education, career goals, or finances?

We want to hear YOUR experience.

šŸ’¬ Tell us in the replies: What's one impact you wish more people understood?
Take our lived experience survey: bit.ly/workandschoo...

@ifaiarthritis.bsky.socialSep 24, 2026, 4:00 PM

September is Pain Awareness Month.

AiArthritis pain can be more than joint pain—and its impact can reach every part of life.

šŸ’¬ Which is harder to explain: your pain or its impact?

#AiArthritis #Autoimmune #Autoinflammatory #Arthritis

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@ifaiarthritis.bsky.socialSep 22, 2026, 4:00 PM

🧠 Brain fog is more than forgetfulness. Losing your train of thought, struggling for words, or feeling like your brain can’t keep up can be part of living with AiArthritis diseases.

šŸ’¬ Has your healthcare team ever talked to you about brain fog? bit.ly/aiarthritis-...

#AiArthritis #BrainFog

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@ifaiarthritis.bsky.socialSep 22, 2026, 4:00 PM

Chronic pain is more than a number. Pain can be shaped by inflammation, fatigue, sleep, stress & more—and can persist even when disease is controlled.

šŸŽ§ zurl.co/wTNNo

#AiArthritis #Autoimmune #Autoinflammatory #Arthritis

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@ifaiarthritis.bsky.socialSep 21, 2026, 4:00 PM

šŸ‡ØšŸ‡¦ September is Arthritis Awareness Month in Canada.

AiArthritis diseases can affect the whole body—not just the joints.

šŸ’¬ What do you wish people understood about your symptoms?

#AiArthritis #Autoimmune #Autoinflammatory #Arthritis

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@ifaiarthritis.bsky.socialSep 18, 2026, 10:00 PM

Health policy can be complicated. Understanding how it affects you shouldn’t have to be.

Explore the Knowledge = Empowerment web-based hub for patient-led policy education and ways to take action. No download needed.

#Autoimmune #Autoinflammatory #Arthritis zurl.co/XMC9P

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@ifaiarthritis.bsky.socialSep 16, 2026, 3:00 PM

🫁 Today is Interstitial Lung Disease (ILD) Day.

For people with some AiArthritis diseases, systemic inflammation can affect the lungs—not just the joints.

šŸ’¬ Has lung health ever been discussed as part of your care?

#ILDDay #AiArthritis #Autoimmune #Autoinflammatory #Arthritis #LungHealth

@ifaiarthritis.bsky.socialSep 14, 2026, 8:00 PM

September 14–18 is Rheumatoid Arthritis Awareness Week.

RA is more than joint pain. It’s a systemic autoimmune disease that can affect the whole body—with symptoms others may never see.

šŸ’¬ What do you wish more people understood about RA?

#RAAwarenessWeek #AiArthritis #Autoimmune #Arthritis

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@ifaiarthritis.bsky.socialSep 8, 2026, 3:00 PM

šŸ’œ Thank you to everyone who helped make Still’s Disease visible—and to Novartis + Sobi for supporting Still’s Disease Awareness Day 2026.

The 47 hours may be ending. The listening and action continue.

#IWontBeStill #StillsDay #MyStills zurl.co/vxdY1

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@ifaiarthritis.bsky.socialSep 8, 2026, 2:00 AM

Moving from pediatric to adult care can mean new providers, terminology, insurance and responsibilities. What has been the biggest challenge for you or your loved one? What would have made it easier? All AiArthritis communities can answer.

#IWontBeStill

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@ifaiarthritis.bsky.socialSep 7, 2026, 10:00 PM

People are talking about Still’s Disease today. We want people living it to lead the conversation.

What’s one thing you wish more people understood about life with Still’s?

Share with #MyStills #IWontBeStill #StillsDay and tag @ifaiarthritis. zurl.co/vxdY1

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