We had a wonderful talk from Raewyn Burroughs neurophysio about PEM and pacing this morning.

#longcovid #pacing #PEM

Paced like a BOSS this afternoon (teaching).

#Pacing to avoid overexertion and #PEM

#LongCovid

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

Long story short:

Walking the mile downhill and then back up to school for the end of the day blew my daily Pacepoints budget 👇

Funk Band 🎶 rehearsal just slowed me down, but I will need proper REST this evening.

Same field trip again tomorrow morning 🤔

#Pacing #LongCovid

Midday Tuesday. Under half of today's 'Moderate' movement budget used, despite two treadmill sessions.

Resisting the urge to start preparing for Ofsted tomorrow; as soon as I switch-on to the Inspection there'll be no coming out again 🙏

My #Dysautonomia is under control.

#LongCovid #Pacing

'Pauli Pauli' as a wise Kenyan man once told me (as we climbed Mount Kenya).

'Slowly Slowly'

Just five minutes on the treadmill for my gym cardio warm-up.

#Ofsted inspection at school for me tomorrow, including a long walk to the coast and back at the end of the day.

#Pacing #LongCovid

Pacing And Progression - Tuning infinite gameplay loops

https://docs.google.com/document/d/1qfdoKELsKZFnnuKf1vBz0xZ28GMzNjvJnATPgpe5fr0

#Pacing #Progression #InfiniteGame #GameLoop #Design

Mission accomplished 🙏

Heartrate back down.

Pacing line falling further behind my daily Pacesetter 😊

#Pacing to avoid overexertion and the #PEM symptoms that come with my #LongCovid

#LongCovidTeacher

Monday 06:30am

A well-paced weekend

Visible Health: Stable and Improving

EliteHRV 8 out of 10 Readiness and PNS/SNS balance very good

KubiosHRV Normal Readiness for me: 64%

#LongCovid #Pacing

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

ON PERCEIVED TIME

Does the current hour feel like it is dragging, or rushing past you?

Put the phone face down. Count to sixty without a clock, and see how your internal rhythm aligns.

#TimePerception #Pacing

4pm. Home. And still not used a single PacePoint all day.

This is the danger of a Parasympathetic Swing! I've done so much today, albeit very slowly and with lots of resting on my telescopic stool 🙏

#Pacing to avoid overexertion and debilitating #PEM symptoms associated with my #LongCovid

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

Decided to attend our orchestra rehearsal. Parked just outside, so just a few additional steps. All very relaxing.

Back behind my #VisibleHealth pacesetter line 😎

#TubaPlayer #LongCovid #Pacing

8/

From today. I should say that I do sometimes get orange bits during the sleep period, certainly if I need to go to the bathroom but also the odd bit of orange on some nights.

#pacing #mecfs

Früher konnte Pacing heißen: Spaziergang oder Telefonat? Heute: Telefonieren oder mich morgens mit Hilfe waschen? Mein Spielraum ist kleiner geworden. Was das mit meinem Pacing macht, erzähle ich in meinem neuen Blogbeitrag.
pacing-mecfs.de/150-beitraeg...
#MECFS #Pacing

" #Naming what is actually going on — You have chronic #sicknesses. It is not your #fault. It’s not for lack of effort or sleep that u can’t do all the things. I’m #sick; it's not my fault I can’t do all the things.": buff.ly/xZzGwfh

#ChronicIllness #ChronicPain #disabled #depression #pacing

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

ON PERCEIVED TIME

Does the current hour feel like it is dragging, or rushing past you?

Put the phone face down. Count to sixty without a clock, and see how your internal rhythm aligns.

#TimePerception #Pacing