El abordaje del #NMOSD va más allá de controlar los brotes. Quince expertos de distintas disciplinas se reúnen para promover una atención integral que contemple el bienestar físico, cognitivo y emocional de quienes viven con esta enfermedad.

El abordaje del #NMOSD va más allá de controlar los brotes. Quince expertos de distintas disciplinas se reúnen para promover una atención integral que contemple el bienestar físico, cognitivo y emocional de quienes viven con esta enfermedad.
¿Usted o un ser querido vive con NMOSD?
Acompáñenos en nuestro webinar "Comprendiendo el anticuerpo AQP4 en #NMOSD" con la Dra. Pilar Perachino.
Conozca el papel del AQP4 en el diagnóstico y tratamiento del NMOSD y participe con sus preguntas en vivo.
us02web.zoom.us/webinar/regi...
New consensus-based paper in @SclerosisAnd explores the current status of #NMOSD and #MOGAD management in #LATAM.
Main challenges: delayed diagnosis, misdiagnosis, unequal access, variable testing, low access to newer therapies.
Read the summary: www.sumairafoundation.org/summaries/nm...
TSF PINK CARPET 🩷 Meet the Farleys – a mother-daughter duo from Kentucky.
Hear them share what it’s really like navigating an #NMOSD diagnosis as a family, and why community makes all the difference.
"Ari is your new bestie, helping you regain time and have a greater sense of control of your health"
Meet Kayla, #NMOSD patient, who recently started using Ari. In this video, she shares some of her favorite features of Ari.
Sign up for free today: citizenhealth.com/sumaira
🌴 Conozcan a nuestros valientes panelistas, pacientes y cuidadores! 🌺
Únanse a pacientes, cuidadores y familias de las comunidades #CIDP, #MG, #MOGAD y #NMOSD para un día de educación, conexión y apoyo.
¡26 de septiembre! tinyurl.com/TSFMiami2026ES
🌴 Meet our courageous patient & caregiver panelists at Miami Patient Day! 🌺
Join patients, caregivers & families from the #CIDP, #MG, #MOGAD & #NMOSD communities for a day of education, connection & support. Sept. 26!
Register: tinyurl.com/TSFMiami2026
Two heads. One body.
🐍Sheila’s #NMOSD journey took her from frightening symptoms and misdiagnosis to a life-changing diagnosis and ultimately, defiance. More than 5 years later, she’s still walking forward.
Read her story. www.sumairafoundation.org/a-two-headed...
🌎 New consensus review reveals major gaps in #NMOSD & #MOGAD care across LatAm: delayed diagnosis, misdiagnosis as MS, limited access to gold-standard antibody testing & unequal access to effective therapies. 2 priorities: better testing + better access.
www.msard-journal.com/article/S221...