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@nfbot.bsky.socialOct 16, 2026, 10:40 AM

Watch the recording of our NF1 & GIST webinar. Learn what you need to know about NF1-associated GIST. bit.ly/NF1-GIST-Rec... #NF1 #GIST #Neurofibromatosis #YouAreNotAlone

@liferaftgroup.bsky.socialOct 15, 2026, 5:57 PM

Watch the recording of our NF1 & GIST webinar. Learn what you need to know about NF1-associated GIST. bit.ly/NF1-GIST-Rec... #NF1 #GIST #Neurofibromatosis #YouAreNotAlone

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@nfbot.bsky.socialOct 14, 2026, 10:43 AM

🧩Editor's Choice Age-Specific #ADHD and Internalizing/Externalizing Comorbidity in #Children with #Neurofibromatosis Type 1: A Multi-Site Study 🧑‍⚕️by Dan Liu, Pam Wolters, Yang Hou et al. Link📎 www.mdpi.com/2072-6694/18...

@cancers-mdpi.bsky.socialOct 14, 2026, 7:10 AM

🧩Editor's Choice

Age-Specific #ADHD and Internalizing/Externalizing Comorbidity in #Children with #Neurofibromatosis Type 1: A Multi-Site Study
🧑‍⚕️by Dan Liu, Pam Wolters, Yang Hou et al.
Link📎 www.mdpi.com/2072-6694/18...

Figure 1. Age-Varying Associations between Attention Deficit/Hyperactivity Disorder Symptoms and Internalizing Problems. Note. These figures present age-specific associations between the following variables: (A). inattention and internalizing; (B). hyperactivity/impulsivity and internalizing. The y-axis represents regression coefficient estimates derived from T-score–scaled (M = 50, SD = 10) predictor and outcome. Statistically significant associations between variables are indicated by 95% confidence intervals (CIs) that do not include zero. Significant age differences are indicated by non-overlapping 95% CIs between specific age points.
@nfbot.bsky.socialOct 7, 2026, 10:40 AM

#JAACAP #metaanalysis finds children with #neurofibromatosis type 1 have more severe #ADHD symptoms than the general population. #FSUCOM #raredisease #EndNF https://twp.ai/4iwvk8

@jaacapjournals.bsky.socialOct 6, 2026, 5:49 PM

#JAACAP #metaanalysis finds children with #neurofibromatosis type 1 have more severe #ADHD symptoms than the general population. #FSUCOM #raredisease #EndNF
https://twp.ai/4iwvk8

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@nfbot.bsky.socialSep 30, 2026, 10:40 AM

Cherry angiomas occurred more frequently in patients with #neurofibromatosis type 1 compared with control patients at rates of 48% vs 18%. Read more: https://www.dermatologyadvisor.com/news/cherry-angiomas-may-be-unrecognized-manifestation-neurofibromatosis-1

@dermatologyadvisor.bsky.socialSep 29, 2026, 5:45 PM

Cherry angiomas occurred more frequently in patients with #neurofibromatosis type 1 compared with control patients at rates of 48% vs 18%.

Read more: https://www.dermatologyadvisor.com/news/cherry-angiomas-may-be-unrecognized-manifestation-neurofibromatosis-1/

@nfbot.bsky.socialSep 10, 2026, 1:33 PM

This report demonstrates the role of choroidal imaging in the evaluation of patients suspected of gliomas or neurofibromatosis type 1 (NF1), particularly in the absence of Leisch nodules. bit.ly/cjo_choroida... #Ophthalmology #Neurofibromatosis

@cjo-jco.bsky.socialSep 10, 2026, 12:09 PM

This report demonstrates the role of choroidal imaging in the evaluation of patients suspected of gliomas or neurofibromatosis type 1 (NF1), particularly in the absence of Leisch nodules.

bit.ly/cjo_choroida...

#Ophthalmology #Neurofibromatosis

@nfbot.bsky.socialSep 7, 2026, 12:33 PM

#Merck #Ezmekly #NHSuse #HEOR #MarketAccess #MerckKGaA #Neurofibromatosis #NF1 #NFItherapy #rarediseases #Reimbursement #NICE #oralMEKinhibitor #plexiformneurofibromas #PN #PNassociatedwithNF1 #paediatrics #MHRA #NICEfinaldraftguidance #paediatricNF1patients

@4040rec.bsky.socialSep 7, 2026, 12:13 PM

#Merck #Ezmekly #NHSuse #HEOR #MarketAccess #MerckKGaA #Neurofibromatosis #NF1 #NFItherapy #rarediseases #Reimbursement #NICE #oralMEKinhibitor #plexiformneurofibromas #PN #PNassociatedwithNF1 #paediatrics #MHRA #NICEfinaldraftguidance #paediatricNF1patients #ReNeutrial #PNlesions
zurl.co/8MUea

@nfbot.bsky.socialSep 5, 2026, 7:33 AM

Angiomas en cereza representan una manifestación vascular previamente no reconocida de la neurofibromatosis tipo 1 #neurofibromatosis #angioma jamanetwork.com/journals/jam...