#ActuallyAutistic #AutisticAcceptance #AutisticAppreciation #DoubleEmpathyProblem #NEISVoid

I slept really well last night…
…according to the various apps & devices that track my sleep - how I feel I slept is a whole other matter
CW: #SuicidalIdeation
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"There are people who are struggling with this single thought right now, “To kill or not to kill myself?”..Isn’t that pathetic? They should..Do something, anything, except lie there drenched in the excrement of #SelfPity.": buff.ly/pfSc90I
"There was a time when u could kindly ask people to park better so you can get yr #wheelchair past on the pavement, now we are just the entitled few..& they have a right to park wherever they want.": buff.ly/ZOmZbxh
by @RaisieBay.bsky.social
#NEisVoid #disability #disabled #spoonie #ChronicPain
It ultimately comes down to lazy writing that perpetuates stereotypes. If we want to have more disabled characters on screen, writers must get curious about the lived experiences of people with disabilities.
To the shock of absolutely no one (except maybe the allergist I saw yesterday,) my labs show I’m not allergic to things I knew I wasn’t allergic to & my tryptase was where it should be since I wasn’t mid-reaction.
Thanks to my horrible BCBS exchange insurance the bill was “only” $400.
#BobsBurgers Halloween episodes are playing in the #ChronicLoaf stream
#Criptober #HauntedHouse #ForTinu #animation #NEISvoid #mecfs #wakenbake #cannabisculture #ChronicPain #disabled #longcovid
"I have seen..many other #medical specialists [too]. I have even sought out various #doctors within the same field for 2nd, 3rd & 4th opinions. It is amusing how much an #opinion can cost, seeing that they are often unwanted on a regular day.": buff.ly/dUPPgJE
"My #dental #bills have been outrageous. I take good care of my #teeth, but they’re doomed. #Sjogrens causes me to have a very #DryMouth. My teeth were crumbling before I even got the.. #diagnosis.": buff.ly/nSE1AuD
by ehrmanlisa1
#ChronicIllness #SjogrensDisease #ChronicPain #dentist #NEisVoid
"I’ve learned that sometimes the deepest #wounds aren’t caused by #illness. They’re caused by #disbelief. A dismissive comment can undo more than a bad flare. A raised eyebrow from someone u trusted can sit with u longer than the #migraine itself": buff.ly/v1uh23A
"we’re #exhausted. Not just from the #PEM. From explaining it over & over to people who think they know better..Which, if you think about it, is rather the whole problem.": buff.ly/tydQbXg
by @darthfoo.bsky.social
#ChronicFatigue #ableism #disabled #NEisVoid #ChronicPain #ChronicallyIll
It is OCD Awareness Week, in the middle of Dysautonomia Awareness Month, and I couldn't be more aware of either if I tried.
The OCD so loves to blame me for having POTS, triggering POTS... Perhaps I trigger my POTS on purpose, because I'm lazy?
Thanks, OCD.
"Have you tried yoga? Have you seen a #doctor? A better #WorkLifeBalance will help you. Let me tell you about the diet that my auntie’s neighbour tried, and they got better" (Chiasmus of #ChronicIllness): buff.ly/xZzGwfh
by Katherine
#NEisVoid #UnsolicitedAdvice #ChronicPain #spoonie #disabled
"You’re expected to be inspiring or invisible. #Sick people are often reduced to two roles: heroic overcomer or quiet sufferer. Both of those erase the complexity of your real life.": buff.ly/8kYL77f
by @thethrivingspoonie.com
#ChronicIllness #NEisVoid #disability #InvisibleIllness #ableism
"I belong to that strange strain of #humanity that spends a lot of time #horizontal. By simply rotating down that 90-degree angle, life's possibilities flounder. I become flaky, distant, & unavailable.": buff.ly/POfTiZC
by @robinboardman.com
#NEisVoid #ChronicFatigue #pwME #ChronicIllness #spoonie
I think one of the hardest things about some chronic conditions, including mine, is accepting that you’ll always be in pain. There’s no getting rid of it, just getting it as manageable as possible.
The worst is when you’re constantly having new pain, so you can never quite get used to it…
#NEISVoid
"I’ve often been asked #ignorant #questions. I have a very expressive face so I have to work hard to keep that in check, but people make it very difficult to remain neutral sometimes.": buff.ly/fIFTt1L
Featuring: roysamuelgeorge
#communication #ChronicIllness #NEisVoid #disability #RareDisease