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Grilled Cheese is a product of Village Compute

Version devBuilt at: 2026-10-15 18:51:49 EDT

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@coupdegraz7.bsky.socialOct 16, 2026, 1:26 AM

#COVID #AfterCOVID #LongCOVID #CleanIndoorAir #RespiratorsInHealthcare

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@tomkindlon.bsky.socialOct 16, 2026, 12:59 AM

"My Reasonable Adjustment for Work and Education Plan: Guidance for Employers / Tutors" (5 pages)

suffolkfed.org.uk/wp-content/u...

#MEcfs #LongCovid #PwME #CFS #MyalgicEncephalomyelitis

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My Reasonable Adjustment for Work and Education Plan Guidance for Employers / Tutors 1. A Guide to the Reasonable Adjustment for Work and Education Plan This Reasonable Adjustment for Work and Education Plan is a personalised, practical tool designed to foster a supportive and productive partnership between an individual managing Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) or Long Covid, and their employer or educational institution. This document aims to facilitate open, constructive dialogue about what helps the individual stay well, what might cause their symptoms to worsen, and what support can be put in place to enable them to thrive. The purpose of this plan is not to present a list of demands, but to create a shared understanding. It is a proactive tool that empowers the individual to articulate their needs and self-management strategies, while enabling managers, HR representatives, and educators to provide effective, reasonable support. By working together, it is possible to create an environment where a valued employee or student can continue to contribute their unique skills and talents, maintaining both their wellbeing and their productivity. It is crucial to recognize that ME/CFS and Long Covid are fluctuating diseases. An individual's capacity and support needs can change from day to day or week to week. Therefore, this reasonable adjustment plan should be treated as a living document. It provides a solid foundation for an initial conversation and agreement, but it should be reviewed regularly—for example, on a quarterly basis—to ensure it remains relevant and continues to meet the needs of both the individual and the organisation. Finally, this plan is a personal and confidential document. The individual who completes it owns the information within. It should only be shared with their express permission and handled with the same level of confidentiality as any other sensitive health information, such as an Occ…
@chronicloaf.bsky.socialOct 16, 2026, 12:44 AM

We're doing a #Criptober #ThrowbackThursday triple feature in the #ChronicLoaf stream today

#TheExorcist, #TheAmittyvilleHorror, and #Poltergeist are playing back to back tonight

mzelo.com/app/rooms/ch...

#HauntedHouse #CriptoberWeek2 #disability #longcovid #FilmSky #spookyseason #classicmovies

The Exorcist movie poster The Amityville Horror movie posterPoltergeist movie poster
@lcsupportaotearoa.bsky.socialOct 16, 2026, 12:39 AM

We had a wonderful talk from Raewyn Burroughs neurophysio about PEM and pacing this morning.

#longcovid #pacing #PEM

@achronicvoice.comOct 16, 2026, 12:30 AM

Twenty bodies. One thread of #movement. Unbound is a short #dance #film created by individuals living with #MECFS &/or #LongCOVID, exploring the tension between constraint and expression, stillness and vitality.”: buff.ly/BamzfQF

via @liapas.bsky.social
#pwME #ChronicIllness #disability #dancers

@longcovidweb.bsky.socialOct 16, 2026, 12:00 AM

Thank you for joining us on Day 1 of the 2026 #LCWSymposium!

Tomorrow begins with a keynote by Dr. Todd Davenport exploring an important question in #LongCOVID care: “Is Exercise Always Medicine? Understanding the Role of Post-Exertional Malaise in Long COVID.”

We look forward to tomorrow!

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@chronicloaf.bsky.socialOct 15, 2026, 9:43 PM

Hop into the #ChronicLoaf stream to catch a replay "Late Night with the Devil" in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#Criptober #Mutation #HauntedHouse #horror #spookyseason #ForTinu #FilmDis #Disability #longcovid #autism

Late Night with the Devil movie poster
@publichealthaction.bsky.socialOct 15, 2026, 9:32 PM

Dr. Verduzco-Gutierrez's specialties include brain injury and long COVID. We are so grateful to her for sharing her thoughts and for her care and advocacy.

#covidisntover #longcovid #healthyindoorair

National Hispanic Heritage Month What inspires you to keep going? My patients inspire me to keep going. I’m a very empathetic person and I want to be able to help as many people as possible. I’m very passionate about what I do. National Hispanic Heritage Month What inspires you to keep going? Finally, I really am passionate about health equity and making sure as many people get the right kind of rehabilitation they deserve. That is because my grandfather had a stroke when I was younger and didn’t get proper rehab for it despite being a veteran and having Medicare insurance.National Hispanic Heritage Month If you were to talk with ten-year-old you, what would you say? To my 10 year-old so I would say: - Don’t be so stressed out - Get your high functioning ADHD treated earlier - Don’t be afraid to ask for helpNational Hispanic Heritage Month Thank you, Monica, for your care and advocacy!
@violetblue.bsky.socialOct 15, 2026, 9:16 PM

-Aotearoa friends: Auckland #LongCovid trial is still recruiting and reimburses $700 NZD
-profile on a Covid-safer school (!) in Minnesota
-"havoc" is spreading Covid in Canada (Edmonton) hospitals
-Spain currently has highest C19 positivity worldwide

Deets + links: www.patreon.com/violetblue/p...

@airiredcat.bsky.socialOct 15, 2026, 9:15 PM

Heute an der Uniwiese langgelaufen und da haben Studis Hobbyhorsing betrieben, Wikingerschach gespielt, und sich gegenseitig huckepack getragen und ich vermisse das Studisein und Gesundsein und einfach auf der Wiese mit Freunden sitzen. 🥹

Einmal im Kreis laufen war schon zu viel.

#PEM #LongCovid

@longcovidweb.bsky.socialOct 15, 2026, 9:00 PM

The 2026 #LCWSymposium Virtual Art Gallery brings creative works from people with lived experience of #LongCOVID into the conversation.

Visit the Resources tab in Whova or click below to explore this year’s gallery: www.longcovidweb.ca/events/long-...

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@longcovidanswers.bsky.socialOct 15, 2026, 8:39 PM

Dr Alexandra Perel-Winkler, of the BC Centre for Long COVID, ME/CFS and Fibromyalgia, wants to turn scientific progress into practical support.

Her hope? Actionable advice, better treatments and reasons for patients to feel hopeful.

#LongCOVID #MEcfs #LongCOVIDResearch

@violetblue.bsky.socialOct 15, 2026, 8:31 PM

ICYMI:
-US doctors are freaked out seeing what measles does to previously healthy kids
-Wuhan’s "Covid mayor" sentenced to 14 years for bribery
-IRS sends out preemptive Covid tax claim denials
-a look at trans life with #LongCovid
-C19 surging in US/UK, and more:

www.patreon.com/violetblue/p...

@longcovidnieuws.bsky.socialOct 15, 2026, 7:10 PM

Tweede Kamer · “…en de Kamer hierover te informeren en gaat over tot de orde van de dag voorzitter. Op het punt van de PAIS - post covid he…” — Mirjam Bikker (CU), Begroting Volksgezondheid, Welzijn en Sport 2027 ……

https://longcovid.terbeke.org/kamer-citaten.php#tkr-24

#longcovid #longcovidnieuws

@mariasoleariot.bsky.socialOct 15, 2026, 7:08 PM

"It is a new and complex condition, recognition at this level also sends an important message to patients: their symptoms are being taken seriously."
#covid #longcovid #research #pots #ME #MCSA #retinalmaculopathy #dyspnea #pulmonarydiseases and more

minervafoundation.fi/genetics-unc...

@craziedaizee.bsky.socialOct 15, 2026, 6:45 PM

great article by @cortjohnson.bsky.social

> "Two of the JAK/STAT trials are so large, they could, if I understand correctly, immediately lead to FDA approval for long COVID"

I believed for years JAK/STAT inhibitors
will be best #LongCovid treatment yet

BUT no generics in US, extremely expensive!

@chronicallies.bsky.socialOct 15, 2026, 5:58 PM

#CriticalAppraisal, #ChronicAllies, #PatientAdvocacy #ChronicIllness #Post-ViralIllness #MECFS #LongCovid #POTS #MCAS

@chronicloaf.bsky.socialOct 15, 2026, 5:37 PM

The movie #DoNotEnter is replaying in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#Criptober #HauntedHouse #horror #ForTinu #FilmDis #ChronicPain #spookyseason #MutualAidMovies #Disability #longcovid

Do Not Enter movie poster
@workwellfoundation.bsky.socialOct 15, 2026, 5:04 PM

LATEST NEWS ON TODD'S SUBSTACK
ME/CFS is characterized by post-exertional malaise. PEM is variously defined, but it involves an abnormal multi-system & multi-symptom response to often-trivial levels of exertion.
Read more: conta.cc/4rQWitY
#MECFS #LongCOVID #PEM #Science @sunsopeningband.bsky.social

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@longcovidanswers.bsky.socialOct 15, 2026, 4:48 PM

Dr Funmi Okunola is at the 4th #Canadian Symposium for #LongCOVID, taking place at UBC.

Over the coming days, she’ll be sharing highlights from the talks, new research &her own insights into developments in LC.
Follow along for updates from Vancouver!
#LongCOVIDResearch