Because PSC is a rare, often invisible, autoimmune liver disease, explaining it to friends, family, or colleagues can feel exhausting. We want to make those conversations easier. Learn more ➡️ buff.ly/hUKnRTq
#PSCSupport #PrimarySclerosingCholangitis #ExplainPSC #RareDiseaseAwareness #LetsBeatPSC

From liver transplant surgery to a half marathon finish line in 365 days! Gemma ran for #TeamPSCSupport exactly one year after receiving her life-saving liver transplant. A triumph of personal determination and the incredible gift of organ donation. #OrganDonationSavesLives #PSCSupport #LetsBeatPSC

Tickets are going FAST for our London Information Day on Sat, 5th Dec!
Join us at The Cumberland Hotel, Marble Arch for expert talks, Q&As & community connection. Free to attend, but spaces are limited!
🎟️ Register now: buff.ly/Z1xhLyJ
#LetsBeatPSC #PSCSupport

If you’re going to run a marathon, Milan seems like a pretty incredible place to do it! Join #TeamPSCSupport at the Wizz Air Milano Marathon raise crucial funds for PSC research, patient resources, and global advocacy.
👉️ buff.ly/yemzd3M or email [email protected]
#LetsBeatPSC

Recognising the need for psychological support duringn the liver transplant journey is critical. Following Mark Chatterley’s presentation at #BASL2026, he caught up with Dr. Yeoman to discuss why mental health support must be central to clinical care. #WorldMentalHealthDay #PSCSupport #LetsBeatPSC

A record-breaking milestone for #TeamPSCSupport this Sunday! 34 runners are representing us across the #RoyalParksHalf & #AmsterdamHalf, our largest single-day team EVER! From researchers & patients to family, friends & corporate teams, our community shows up BIG. Good luck everyone! #LetsBeatPSC

It’s #BASL2026 and we're on the ground all week! Why are we here? To fly the PSC flag: building relationships with clinicians & researchers to ensure the patient voice is impossible to ignore. Watch this space & subscribe to stay in the loop: buff.ly/BYvqkzi #PSCSupport #LiverDisease #LetsBeatPSC

Huge congratulations and a massive thank you to Shane and Regina, who smashed the Antrim Coast Half Marathon and raised an incredible £1,484 for PSC Support! Explore our places in major events today, and join the team: buff.ly/yemzd3M
#PSCSupport #AntrimCoastHalfMarathon #TeamPSCSupport #LetsBeatPSC

Mark (PSC Support Head of Ops & Finace and liver recipient) & Liz (Donor family member) represented our community at the @NHSBT Patient & Donor Engagement Policy meeting last week. NHSBT is working to ensure lived experience directly shapes decision-making. #PatientVoices #LetsBeatPSC

With around 8 in 10 people with PSC also living with IBD, understanding PSC-IBD is vital for our community. Our latest session offers expert insights on management, symptoms, and ongoing care of #PSCIBD.
👉 Watch the PSC-IBD session here: buff.ly/Jc0uOHd
#PSCSupport #LetsBeatPSC

Clinical definitions do not always capture the daily reality of living with #PSC.
The International #PSCTreatment Evidence Survey gathers true real-world lived experiences to build accurate clinical guidance.
Help bridge the knowledge gap: buff.ly/xF4UJEX
#LetsBeatPSC #RareDisease

PSC affects everyone differently. Some people remain stable for years, others experience progressive liver scarring or face serious complications such as cancer. Dr Ghada Nouairia breaks down results from her study: buff.ly/vK12JRP
#LetsBeatPSC #PSCResearch #LiverDisease #RareDisease #PSC

URGENT: Clinical trial data alone won't get new PSC treatments approved. Regulators (like @MHRAgovuk & FDA) need real-world evidence from patients & caregivers to evaluate new therapies.

Your voice is vital to building this evidence. 👇 buff.ly/ifIS3mC #LetsBeatPSC #primarysclerosingcholangitis

20 minutes today, could pave the way to finding effective treatments for PSC. This International #PSCTreatment Evidence Survey is collecting critical data that will help shape trial designs, clinical guidelines & research priorities for years to come.
➡️ buff.ly/3KZjqaZ #LetsBeatPSC

Every patient’s experience deserves to be heard, measured, and improved.
💬 Talk to your loved ones about organ donation today.
✍️ Register your wishes with @NHSOrganDonor.

#LetsBeatPSC #OrganDonationWeek #DonateLife

This #OrganDonationWeek, read Daniel's inspiring journey of living with PSC & receiving a life-saving liver transplant 💙

Transplants save lives. 💗 Speak to your loved ones and register your decision with @NHSOrganDonor today.

Daniel's story: buff.ly/xfzFM3b

#LetsBeatPSC #DonateLife

This #OrganDonationWeek we're sharing Maja's story, from an unexpected PSC diagnosis to a life-saving liver transplant just 2 months ago.
➡️ buff.ly/YewZS4w #LetsBeatPSC #LiverRecipient #OrganDonation @nhsorgandonor

This #OrganDonationWeek, we’re sharing stories from our community 💙 Diagnosed with PSC at 23, Katie went from liver failure at 28 to a second chance at life at 30 thanks to a donor’s kindness. Read her story & find out how to register your decision: buff.ly/3NBiCoo
#LetsBeatPSC #OrganDonation

Good luck Gillian and John, who are cycling London to Paris starting 23rd September! Join us in wishing them smooth roads, clear skies, and strong tailwinds! Show support by dropping a 💙 in the comments or donating:
pscsupport.enthuse.com/pf/john-gill... #TeamPSCSupport #LetsBeatPSC

Registration is OPEN for our PSC Support Info Day! Join us to learn, ask questions, & connect with others. Featuring expert talks from Prof Emma Culver & Dr Deepak Joshi.
📍 London
🗓️ Sat 5 Dec
Book your place: buff.ly/gqRVfK8
#LetsBeatPSC #PSC Support