For example, were you diagnosed with a specific type of #EhlersDanlosSyndrome (EDS), a #hypermobilityspectrumdisorder (HSD), or were you initially told you had joint hypermobility without a diagnosis of EDS or HSD?

Has your diagnosis changed or become more specific over time?

How would you explain the effort it takes to stay stable so that people might understand?

linktr.ee/thezebraalliance #hypermobility #EDS #hEDS #HSD #ehlersdanlossyndrome #hypermobilityspectrumdisorder #connectivetissue #raredisease

Do you have a favorite adaptive device or mobility aid?⁠
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Mars Lombardi talks about dynamic disability & various types of adaptive aids and devices that can be helpful when managing pain and fatigue: youtu.be/03VfEULK65w?...

#PainAwarenessMonth #EhlersDanlosSyndromes #HypermobilitySpectrumDisorder

EVERY doctor should know this: Share it far and wide 👌😀

linktr.ee/thezebraalliance (found this comment on a FB post) #EDS #ehlersdanlossyndrome #HSD #hypermobilityspectrumdisorder #connectivetissue #raredisease #chronicillness #chronicpain #disability

Have you learned to pace yourself? What tips do you have? What has worked for you? All the questions & answers 😉👉 I want all EDS types to share, because all have (co)morbidities.

#hEDS #HSD #EDS #chronicillness #chronicpain #invisibleillness #hypermobilityspectrumdisorder linktr.ee/thezebraalliance

Who wants to share what its like when you have a hip subluxation? Hip subluxations aren't discussed as much as shoulders, jaws, hands, and knees. Share your experience(s) 🩵🦓🩵
linktr.ee/thezebraalliance
#hEDS #EDS #HSD #hypermobility #hypermobilityspectrumdisorder #subluxations #ehlersdanlossyndrome