@hdreach.bsky.socialASHEVILLE! We are back and hosting a meetup TOMORROW in AVL. Erika will be ready to greet you and will be bringing pumpkins and paint 🎃 If you can, please RSVP via Heylo and get all the updates there.
www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #raredisease #huntingtonsdisease
@medindonews.bsky.socialAccess to Huntington’s pathway risks becoming ‘postcode lottery’
#HD #huntingtons #huntingtonsdisease #hse #slaintecare @HSELive @Slaintecare
@hdreachgameoverhd.bsky.social
@medindonews.bsky.socialDespite the recent publication of a HSE plan, access to the care pathway for people with Huntington’s disease is likely to become a ‘postcode lottery’, according to Prof Orla Hardiman
#HD #huntingtons #huntingtonsdisease #hse #slaintecare @HSELive @Slaintecare
@medindonews.bsky.socialAccess to Huntington’s pathway risks becoming ‘postcode lottery’
#HD #huntingtons #huntingtonsdisease #hse #slaintecare @HSELive @Slaintecare
@goddessfish.bsky.socialTold from alternating voices of author Corinne Brown and her mother, the #memoir ME, MOM, & THE MONSTER is a candid account of the harrowing effects of living with a fatal, genetic disease. Enter to win a $10 Amazon//BN GC. buff.ly/uCfPUrm #huntingtonsdisease
@hdreach.bsky.socialPatient advocate groups join Skyhawk Therapeutics staff for a day of sharing and learning.
#HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
@gmj-georgia.bsky.social🧠 BREAKTHROUGH: The first disease-modifying treatment for Huntington's disease shows measurable slowing of cognitive… #Clinicalbreakthrough #Diseasemodifyingtherapy #Huntingtonsdisease #Neurodegenerativedisease #Raredisease #Clinicalbreakthrough #Diseasemodifyingtherapy #Huntingtonsdisease #Neu…
@hdreachgameoverhd.bsky.social#LIVE playing #Grounded2 on #Twitch! Come hang out and catch some fun gameplay and ask questions about #huntingtonsdisease
@hdreachgameoverhd.bsky.social#LIVE on #Twitch playing #BigWalk. Come hangout!
www.twitch.tv/hdreachgameo...
@soundomachine.bsky.socialDon’t sentence me yet. I still want to live. 💙
A plea to look beyond the disease and see the person who is still here.
Inspired by my step-nephew Michael and his journey with Huntington’s disease.
@hdreach.bsky.social⛳️ Only 2 days to go!
A huge thank you to our Gold Sponsor, Angels of the Abbey, for supporting the Cindy Canning Memorial Drive Hope Home Golf Tournament! 💙
Thank you for helping us Drive Hope Home!
See you October 5! 🏌️♀️
#HDReach #DriveHopeHome #HuntingtonsDisease #GolfTournament #HDHeroes
@hdreach.bsky.social⛳️ Just 3 days until the Cindy Canning Memorial Drive Hope Home Golf Tournament!
#HDReach #DriveHopeHome #HuntingtonsDisease #GolfTournament #HDHeroes
@socialhdlancos.bsky.socialThe East Midlands HD Network (UK) recently held a regional #HuntingtonsDisease (HD) event at the Leicester Tigers Stadium, the home of the Leicester Tigers Rugby Club.
@gmj-georgia.bsky.socialRoche has ended its Huntington's disease gene-silencing program, marking a key shift in neurodegenerative drug development. Meanwhile, ARPA-H launches a new … #ARPAH #Genetherapy #Huntingtonsdisease #Neurodegenerativedisease #Roche #ARPAH #Genetherapy #Huntingtonsdisease #Neurodegenerativedisea…
@hdreachgameoverhd.bsky.socialEveryone is trying hard...but Brad.
Make sure to tune in to our livestream shenanigans on Twitch and Youtube and follow our socials!
linktr.ee/HDReachGameo...
#mecchachameleon #FYP #stream #hdreachgameoverhd #viral #funny #hilarious #huntingtonsdisease #streamer
@ehdn-news.bsky.socialEHDN-Endorsed Study: AMT-130 (uniQure)
On 29 Sept, uniQure announced additional data from its ongoing phase 1/2 studies, comparing updated 36-month and 48-month outcomes with propensity score-matched external controls: uniqure.gcs-web.com/news-release...
@hdreach.bsky.socialA huge thank you to our Silver Sponsors for supporting this year’s tournament and helping HD Reach continue providing support, resources, and hope to families affected by Huntington’s disease. 💙
#HDReach #DriveHopeHome #HuntingtonsDisease #GolfTournament #HDHeroes
@hdreachgameoverhd.bsky.socialThe Ultimate Jailbreak in #mecchachameleon
Make sure to watch the entire video!
#FYP #stream #hdreachgameoverhd #hilarious #viral #shorts #huntingtonsdisease #jailbreak
Follow our shenanigans!
@hdreach.bsky.socialBrandi is in Houston for the HSG conference! Always great to connect with others in the HD community, learn what's happening in research and care, and bring new ideas back. 💙
#HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons