My thoughts about the film Complicated, with children who have EDS/hEDS, where they and their families are not being take seriously. With child protective services as a result.

Medicine needs to do better!

www.facebook.com/share/p/1XDf...

#EDS #hEDS #pwme #myalgicE #millionsmissing

Fuck me I guess for being born with a genetic condition that screws with connective tissue.
I guess I must have chose it as some point while still in my moms belly, according to morons and the government.
Universal healthcare in Canada is not universal.
#EDS

24 hour NG tube PH test. Am I disabled enough yet? (That's a joke, this is part of a test of them evaluating a long term issue I've had - that started post blood cancer remission), some of it is likely an issue from the eds as well. #spoonie #disabled #eds

🦓 We get many questions about #EDS and #HEDS from patients in #NewMexico.

The closest facilities are in Arizona but with a #RDAC we can improve healthcare here with more doctors & better diagnostic panels for local patients to minimize medical travel.

#raredisease #ziazebras

"What if there was an image that summed up... wait, there is!" 👇😹

linktr.ee/thezebraalliance
#chronicillness #chronicillnessmemes #raredisease #chronicpain #invisibleillness #disability #EDS #ehlersdanlossyndrome

@chronicillness.bsky.social always has the best shares—from funny to compassionate 🩵🤗🩵

#chronicillness #raredisease #invisibleillness #disability #dynamicdisability #EDS #ehlersdanlossyndrome #HSD linktr.ee/thezebraalliance

I recently watched the film #Complicated just before bedtime. Well, it is no wonder that I could not sleep afterwards anymore. The film depicts the gruesome reality of children with systemic inflammatory (and genetic) diseases (in this case #EDS) so well. 1/3

openeyepix.org/complicated#...

Snazim se sbirat lzicky, rehabilitovat, hledat radost v drobnostech a travit cas s rodinou, protoze upadek schopnosti je v poslednich letech tak vyrazny, ze vlastne nevim, kolik spolecnych let jeste mame, nez to bude jen snaha me udrzet pri zivote.
#delamcomuzu #eds #narocnecasy