I get three different kinds of infusions at the infusion center. I guess I can't blame them for getting confused and trying to cancel this morning's infusion because they thought I was trying to sneak in an extra dose of another drug.

#ms #multiplesclerosis #chronicillness #chroniclife #autoimmune

Intense therapy session on Friday, weekend away, stressful train journeys, back to work today. My eyes want to close, my brain cannot function and body checked out before lunch. #ms #mssucks #fatigue #autoimmune #chroniclife #chronicillness

You start appreciating the little things when they take maximum effort. #ChronicLife

" #Scotland has so many beautiful sights. I suppose I’m a wee bit biased, but we do hv the most beautiful #scenery in the world. I was fortunate to hv seen much of it when I was more able to #travel, but #YouTube lets us revisit old favs.": buff.ly/mmaYMtO

by @despitepain.bsky.social
#ChronicLife

"I really enjoy #RoadTrips & find them relaxing, but that’s not something that’s possible within the #country ..there are nice nature trails & small #island getaways, but no real camping spots where you just go into #nature for a couple days.": buff.ly/CzUrCvx

#ChronicLife #singapore #disability

"Not dying in the #ICU was just the beginning. Now I had to learn how to live..Specialist after #specialist appeared until I had a #healthcare “team.” The trouble I was in was heavy & profoundly sobering.": buff.ly/QpJY8R6

by @stillrollingoutdoors.com
#ChronicIllness #ChronicLife #disabled #spoonie

I measure time in flares, fatigue, and the rare moments of calm. #ChronicLife

#ChronicLIfe

Living a rock ‘n’ roll life: doing laps of the local green air (300 metres) to check battery length of my electric wheelchair! 😜

Didn’t get a great angle for this photo when I was taking one of many breaks lying on a bench.

#MEcfs #PwME #MyalgicEncephalomyelitis #SpoonieLife #ChronicLife

After two IVs and one blood draw in three days, my veins are pretty beaten up. I had the husband take photos and I was going to post one, but...ew.

#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune

"Despite [her #ChronicIllnesses ], Cheyanne writes with such eloquence, fairness and joy. Her #blog posts are #authentic and filled with #wisdom & I love how she’s always willing to consider #perspectives different than her own.": buff.ly/FDEWOvB

#MCAS #ChronicallyIll #ChronicLife #ChronicIllness

In so much #pain that I cannot sleep. So, once again I have chosen to escape this reality and escape into a #book! Although it’s taking me much longer to read than usual, I have just finished my 100th book of the year which is a record for me!

#Painsomnia #ChronicLife

" #Home is where the… #medications are." — Yes, I feel 'safest' at home because I can reach out for any medication as needed. For more #ChronicIllness #memes & #humor: buff.ly/Evdi3QH

#ChronicLife #ChronicPain #disability #spoonie #ChronicallyIll #awareness #meme

I don’t need comparisons. I need understanding. #ChronicLife

I’ve had to learn to celebrate what I can do instead of mourning what I lost. #ChronicLife

Healing is hard. My body healing from anything taps me out and makes all my physical symptoms worse. My teeth and gums need to hurry the hell up and heal. I'm exhausted.

#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune

Pace yourself today. The finish line isn’t going anywhere. #ChronicLife

"The true heartbreak of living with chronic illness is being forced to relive the worst moments of it over and over again." via @serenebutterfly.bsky.social at My Brain Lesion and Me
🔗
Read it: www.brainlesionandme.com/reliving-hea...

#Spoonie #ChronicIllness #ChronicPain #Disability #ChronicLife

Joy may look different now, but it still matters.

#ChronicLife

My body and I are still learning how to live together. #ChronicLife