❤️ Our family-focused #Haemcast series with #LFWBD explores what it's really like to live with a bleeding disorder — and there's more to come soon.

🎧 Available across #podcast platforms and via link

🔗 https://loom.ly/A4UWu6M

#bleedingdisorders #families

#VonWillebrandDisease #VWD #CriticalMedicines #MedicineShortages #BleedingDisorders #EUHealth

The#WorldMentalHealthDay theme "Lived experiences heard: Real voices, real change" speaks to us. In our research, people impacted by #bleedingdisorders tell us they need more #mentalhealth support. #Livedexperience can inform positive change in policies, services & care.

#HemeSky #MedSky

📣 #WorldMentalHealthDay: EHC launches its #MentalHealth Toolkit for the #BleedingDisorders community, built on the lived experience of 325 patients, carriers & caregivers in 27 countries. For patients, carriers, caregivers, HCPs & EHC NMOs 👉️ buff.ly/m1xyzPX

We're proud to share the news that Dr Kate Khair has joined the board of #bleedingdisorders charity Save One Life.
She shares some of what has brought her there on the Haemnet #blog.

https://loom.ly/fYr3h78

@katekhair.bsky.social #HemeSky #MedSky

#EHC2026 day 3️⃣

www.facebook.com/share/p/1DRZ...
#hemophilia #bleedingdisorders #istanbul #conference @ehc-news.bsky.social

#EHC2026 day 2️⃣

www.facebook.com/share/p/1Eoj...
#hemophilia #bleedingdisorders #istanbul #conference

#EHC2026 day 1️⃣

www.facebook.com/share/p/1MSf...
#hemophilia #bleedingdisorders #conference #Istanbul @ehc-news.bsky.social

The #EHC2026 conference is taking place in #Istanbul today—three days of invaluable experience sharing, new knowledge, and #bleedingdisorders community networking across Europe! 🌍🤝
#hemophilia 🇹🇷 @ehc-news.bsky.social

A heartfelt thank you to all the speakers, patients, & partners who made this year of learning and connection possible! 🙏

#UNIDOP2026 #OlderPersonsDay #LivingWellAgeingWell #BleedingDisorders

As the #LivingWellAgeingWell project comes full circle today, its resource hub (recordings, podcasts, guides, & one-pagers) remains open for the #BleedingDisorders community to explore. 👉 buff.ly/e431dLT

#UNIDOP2026 #OlderPersonsDay

Where relevant, these #LivingWellAgeingWell discussions were turned into practical guidelines & highlights that the #BleedingDisorders community can put to use directly.

📣Today marks the #InternationalDayOfOlderPersons. As people with #BleedingDisorders live longer than ever before, #HealthyAgeing has become a real & growing priority for our community. 🧵👇

#UNIDOP2026 #OlderPersonsDay

This is part of our #VWD100 campaign, marking 100 years of #VonWillebrandDisease throughout 2026. Each month, we shine a light on a different aspect of #VWD.
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders #RareDisease

Thank you to everyone who connected with us at #inSPire2026! We appreciated the opportunity to engage with #SpecialtyPharmacy professionals dedicated to improving care for people living with #BleedingDisorders

This talk is part of #LivingWellAgeingWell (2025–2026), supporting people with bleeding disorders as they age. Explore the resource hub 👉️ buff.ly/fATZ0kR

#BleedingDisorders #Haemophilia #MentalHealth #HealthyAgeing

🎙️ New EHC #LivingWellAgeingWell Virtual Café Talk on #MentalHealth and Isolation in Ageing People with #BleedingDisorders! Two critical issues in our community which yet don't always get the spotlight in clinical settings. Here's why this conversation matters 🧵👇️

👉 Read the guide: www.ehc.eu/wp-content/u...

#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease

It gives adults with #BleedingDisorders a practical framework — #TILT (Type, Intensity, Location, Time) — to describe what their pain feels like, where it is & when it happens.

Pain that is named is pain that can be managed, together. That's the idea behind our new EHC guide, "I want to talk about my pain today!", launched on #WorldPatientSafetyDay today 🧵👇 #SafeCareForLife #BleedingDisorders