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@tomkindlon.bsky.socialOct 6, 2026, 11:30 AM

5/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS "Remember the time you were so exhausted you couldn't wait to go to sleep? I feel like that everyday. The difference is that when I wake up, I feel the same. Remember when you came down with the flu and felt like you were hungover, your head throbbed, you had no energy, and everything hurt? I feel like that everyday." RESEARCH UK SCO36942 \ INFORM. INFLUENCE. INVEST.
@achronicvoice.comOct 6, 2026, 10:30 AM

"It helps to separate 2 questions that get tangled together: who did I lose & who am I building now. The 1st one is #grief & it deserves its own space & its own timeline. Rushing past it to get to “finding yrslf” usually backfires.": buff.ly/9JQ8khR

by @thethrivingspoonie.com
#disability #spoonie

@delighteddisorder.bsky.socialOct 6, 2026, 8:07 AM

With all the ableism lately, I want to follow more disabled baddies! Where are my spoonies at?!
#disability #spoonie #autoimmune #chronicpain

@achronicvoice.comOct 6, 2026, 7:30 AM

"I have seen people keeping a #SelfCare cart or basket so they can keep everything at hand..By keeping them together it makes it easier to reach for, or ask someone to bring, on those low spoon days.": buff.ly/PRxJ80w

by @beverleybutterfly.bsky.social
#spoonie #ChronicPain #SelfLove #disabled

@achronicvoice.comOct 6, 2026, 5:30 AM

"But when I finally started treating my #capacity as info rather than #limitation, something shifted..from #honesty, I could make the right #decisions at the right time, not out of fear or false hope.": buff.ly/Cw6fYJQ

by sarahwellslifecoach
#mindset #ChronicallyIll #ChronicPain #disabled #spoonie

@achronicvoice.comOct 6, 2026, 4:00 AM

"Some things I find #beautiful in my everyday life (or am #grateful for), despite #ChronicPain include.. #Flowers. Did I say I love flowers? To me, they represent life so perfectly — fragile, short-lived, but so, so beautiful.": buff.ly/TtDYJne

#MondayBlogs #nature #spoonie #ChronicallyIll #life

#ProjChronicWisdom: Things I Find Beautiful In My Everyday Life Despite The Pain
@unveilingunicorns.bsky.socialOct 5, 2026, 11:28 PM

POTS (postural orthostatic tachycardia syndrome-form of dysautonomia. Heart rate climbs when standing. Dizzy, fainting, brain fog & fatigue are reported. AI assisted; do your own research.

#UnveilingUnicorns #InvisibleIllness #Spoonie #POTSAwareness #Dysautonomia #ChronicIllness #ButYouDontLookSick

@smartpatient.bsky.socialOct 5, 2026, 11:00 PM

Celebrating small victories today: got out of bed, took my meds on time, and managed a short walk. On a rough week, that's a win.

#ChronicIllness #SmallWins #Spoonie

@tomkindlon.bsky.socialOct 5, 2026, 10:23 PM

4/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS "Like a battery that only partially charges and then drains ridiculously fast. I can feel the energy leave my muscles with every step I take or word I speak...." lit:. C H UK SCO36942 \ INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 5, 2026, 10:17 PM

3/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS "I have mild ME. Everyone assumes because it's mild it isn't that bad and in the scale of ME I'm lucky but it has changed my life. I can barely attend college and when I do it makes me very ill. If I go to college I don't have the energy to do anything else really. I can't read regularly and go out with my friends. I don't know if I will ever be able to work. My mental health took a massive hit especially when you watch people your age thrive and be able to do everything they want when you are so often stuck inside...." Response from ME Research UK Symptom Saturday Fatigue Survey RESEARCH UK SCO36942 INFORM. INFLUENCE. INVEST.
@smartpatient.bsky.socialOct 5, 2026, 9:30 PM

Celebrating small victories today: got out of bed, took my meds on time, and managed a short walk. On a rough week, that's a win.

#ChronicIllness #SmallWins #Spoonie

@tomkindlon.bsky.socialOct 5, 2026, 9:18 PM

3/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS "...Feels like a huge overcoat of concrete is over me..." REM UK SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 5, 2026, 9:14 PM

2/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS "...My partner finds it difficult to understand how things are for me. There can be tension there - he doesn't want to hear about how rough I feel, or what research has shown, and why I've not unloaded the dishwasher for example, when he's been at work all day...." Response from ME Research UK Symptom Saturday Fatigue Survey INFORM. INFLUENCE. INVEST. RESEA,CH UK SCO,6942
@newhologram.bsky.socialOct 5, 2026, 9:00 PM

Being a burned out caretaker/parent doesn’t excuse abuse. I refuse to accept the normalization of using/abusing a vulnerable dependent to self-regulate because the caretaker is struggling.

youtube.com/shorts/Cvkha...

#abuse #ableism #chronicallyill #disabled #spoonie #abusesurvivor

@smartpatient.bsky.socialOct 5, 2026, 7:31 PM

Some days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.

#ChronicIllness #InvisibleIllness #Spoonie

@adarawrites.bsky.socialOct 5, 2026, 6:51 PM

Recording My Own Audiobook - Autumn Update

#WritingCommunity #WritersLife #Spoonie

youtu.be/xFNz32bK8UE