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@achronicvoice.com Oct 7, 2026, 4:30 AM

"Watching my ex-partner jump out of bed, prep & head off to #work under 30 minutes is like watching an action movie right before my eyes. I have no idea how he does it, as my #body requires 2 hours to warm up to a decent speed.": buff.ly/ZQbWkHD

#ChronicIllness #ChronicPain #disabled #spoonie

The Superpowers of the Average Human Being — Check it out on A Chronic Voice .com

@newhologram.bsky.social Oct 7, 2026, 3:47 AM

10 years of having my handicap parking placard. A lot of thoughts.

#spoonie #invisibleillnesses #chronicillness #disability

New in an enby with a black jellyfish hime cut, holding a handicap parking placard

@angienash42.bsky.social Oct 7, 2026, 2:04 AM

The weather has done A Thing and now my spine feels like it's being shocked. Zero stars; would not recommend.

Please send affection.

#ChronicPain
#Spoonie

@smartpatient.bsky.social Oct 6, 2026, 11:00 PM

If your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.

#ChronicIllness #PatientAdvocacy #Spoonie

@achronicvoice.com Oct 6, 2026, 9:30 PM

"I remember thinking, “Well, if I can never have chocolate again, drink coffee again, have any of the foods I love, then I’m not me.” It sounds ridiculous, but I was having a major #IdentityCrisis over chocolate.": buff.ly/5ZxDF6o

#ChronicIllness #disability #identity #ChronicallyIll #spoonie

Finding Your Self Behind the Illness (Your Story Isn't Over Yet). Guest Post by: Callie Dixon of “River & Quill”.

@fabulousphoenixboy.bsky.social Oct 6, 2026, 6:24 PM

I just want some, any of my drive back, dammit 😭

anyway. Forthcoming sliver of hope: appt with the NHS Pain Management folks next Monday. Not sure how helpful it'll be, but you never know. Fingers crossed

#Spoonie #SpoonieLife #ChronicIllness #fibromalgya #fibrowarrior

@tomkindlon.bsky.social Oct 6, 2026, 6:16 PM

10/
What fatigue in ME/CFS feels like

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS
"Bone crushing. Always. I mean always present. But the intensity fluctuates. But ALWAYS present.
When other symptoms of ME/CFS worsen, so does the intensity of fatigue increase...."
RESEARCH i (. SCO36942
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Oct 6, 2026, 4:56 PM

9/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS
"ME/CFS-related fatigue is very different from ordinary tiredness. It feels like my body has an extremely limited amount of energy available, and even very small amounts of physical or mental activity can use up far more energy than they should. It can feel like my whole body is heavy, weak and drained, as though I have run out of fuel. Resting or sleeping does not
reliably restore that energy....
RESEARCH UK SCO,6942
INFORM. INFLUENCE. INVEST.

@smartpatient.bsky.social Oct 6, 2026, 4:30 PM

Some days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.

#ChronicIllness #InvisibleIllness #Spoonie

@tomkindlon.bsky.social Oct 6, 2026, 4:03 PM

8/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS
"...My hobbies went one by one, friends disappeared. Cooking, eating, showering, cleaning the house have all been reduced over time. I can rarely cook from scratch now, it's exhausting. I rarely go out and can't go far when I do, I can't drive far any more...."
Response from ME Research UK Symptom Saturday Fatigue Survey
hel% RESEARCH UK SCO369.42
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Oct 6, 2026, 3:10 PM

7/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

@mgnews.bsky.social Oct 6, 2026, 3:07 PM

You are not alone in your journey. Reach out, connect, and find your support system. #Spoonie

@tomkindlon.bsky.social Oct 6, 2026, 3:06 PM

8/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

$FATIGUE IN ME/CFS "Exhaustion in my bones. Like walking through treacle...." RESEARCH UK SCO36942 '\ INFORM. INFLUENCE. INVEST.$

@tomkindlon.bsky.social Oct 6, 2026, 2:14 PM

6/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS
"...I had to stop working, that had a huge impact on my mental health, I felt useless. My income and independence were gone and I felt like I wasn't a person who had anything to give anymore. I had to give up sports, hiking and anything that used my energy. My family life suffered, my partner became my carer. I couldn't do many things for my child and felt so guilty that she had a sick parent. Our lives changed from being very active to almost nothing...."
Response from ME Research UK Symptom Saturday Fatigue Survey
RESEARCH K ,CO36942
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Oct 6, 2026, 2:09 PM

7/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

$FATIGUE IN ME/CFS "Fatigue in ME/CFS is not tiredness as healthy people experience it. It is not tiredness after a busy day but more like the drained and weakened fatigue that healthy people would feel when they have a dose of flu and they are wiped out with all their strength gone...." 1414 RESEARCH UI SCC,6942 \ INFORM. INFLUENCE. INVEST.$

@tomkindlon.bsky.social Oct 6, 2026, 1:35 PM

6/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS
"Fatigue doesn't even begin to describe it. It feels like a whole body shut down...."
MI UK SCO36942
IN
FORM. INFLUENCE. INVEST.

@stpaulsbay.bsky.social Oct 6, 2026, 1:25 PM

@thesicktimes.org
@betsyladyzhets.bsky.social
@mileswgriffis.bsky.social
@spichaksimon.bsky.social
@amymaxmen.bsky.social
@patientled.bsky.social
@lancet.bsky.social

#LongCOVID
#LongCovidResearch
#MECFS
#Genomics
#Neuroimmune
#Spoonie
#rs5522

@tomkindlon.bsky.social Oct 6, 2026, 1:08 PM

5/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS
"I struggled through by pacing myself & a sympathetic system that allowed me up to 6 months unpaid leave , but I couldn't care for my daughters in the way I wanted to"
Response from ME Research UK Symptom Saturday Fatigue Survey
RESEARCH UK SCO36942
INFORM. INFLUENCE. INVEST.

@tomkindlon.bsky.social Oct 6, 2026, 11:42 AM

4/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS
"...The change to a completely sedentary lifestyle is a major challenge and I am missing out on my retirement and not enjoying it. I can no longer engage with the same circle of friends. Adjusting to living with the condition is depressing."
Response from ME Research UK Symptom Saturday Fatigue Survey
RESEARCH UK ,C0692
INFORM. INFLUENCE. INVEST.