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@rarectadvocate.comSep 8, 2026, 2:00 PM

Left Ventricular Noncompaction Cardiomyopathy (LVNC) is a rare heart disorder causing a spongy, grooved heart wall that raises the risk of heart failure and dangerous arrhythmias.

Learn more: https://dub.sh/LVNC

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Left Ventricular Noncompaction Cardiomyopathy (LVNC), a rare heart disorder in which the lower left heart chamber develops a spongy, deeply grooved wall instead of smooth muscle. The card notes it affects roughly 0.014 to 0.26 percent of people and can cause heart failure, palpitations, and fainting. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@rarectadvocate.comSep 7, 2026, 2:00 PM

Sjögren's Syndrome is a rare autoimmune disease attacking moisture-producing glands, causing chronic dry mouth and dry eyes, with possible joint, skin, and organ involvement.

Learn more: https://sjogrens.org/

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Sjögren's Syndrome, a rare autoimmune disease attacking the moisture-producing glands. The card notes it affects 1 to 4 million Americans, mostly women, causing chronic dry eyes and dry mouth. Key symptoms include joint pain, fatigue, and brain fog. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@rarectadvocate.comSep 6, 2026, 2:00 PM

Friedreich Ataxia is a rare inherited disease from a GAA repeat expansion in the FXN gene, causing progressive loss of coordination, muscle weakness, and heart problems.

Learn more: https://www.curefa.org

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Friedreich Ataxia, a rare inherited neurodegenerative disease. The card notes it affects about 1 in 29,000 to 50,000 people and results from a GAA repeat expansion in the FXN gene. Key symptoms include loss of coordination, slurred speech, and heart problems. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@angioedemanews.bsky.socialSep 5, 2026, 6:46 PM

One person's HAE diagnosis journey: https://bit.ly/4myCbh8

#PatientStory #HAEJourney #RareDiseaseAwareness #PersonalExperience #HealthAdvocacy #AngioedemaNews #Bionews

@rarectadvocate.comSep 5, 2026, 2:00 PM

Prader-Willi Syndrome is a rare genetic imprinting disorder causing infant hypotonia followed by insatiable hunger, developmental delay, and endocrine problems in children.

Learn more: https://www.pwsausa.org

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

@rarectadvocate.comSep 3, 2026, 2:00 PM

Marfan Syndrome is a genetic connective tissue disorder from FBN1 mutations, affecting the skeleton, eyes, and heart, most seriously by weakening and enlarging the aorta over time.

Learn more: marfan.org

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness