🇳🇴 Irene Mjelde (61) får nei til å få testa ny medisin
@nordic.skyen.live
@nordic.skyen.live🇳🇴 Irene Mjelde (61) får nei til å få testa ny medisin
@paulcoletti.bsky.socialBrooke Eby's passing is so very sad. My prayers are with her, her friends and family, and the #ALS community.
37 is too young. So is 47. 57. 67. 77. Any age is too young for something as devastating as ALS. Brooke was relentless in her advocacy, and we must continue to be relentless in her honor.
@bridgingvoice.bsky.socialSwipe through to learn when to start thinking about AAC, what the different types of tools are (from lite-tech to high-tech), and where to find resources to dig deeper.
#AACAwarenessMonth #AAC #ALS #BridgingVoice
@alsnewstoday.bsky.socialDiscover more: https://bit.ly/4jtayXO
Advocates are cheering as legislation to renew the ACT for ALS headed to President Trump's desk days before the program is set to expire.
@alsnewstoday.bsky.socialKiersten, who lives with Friedreich’s ataxia (FA), speaks to that unseen exhaustion and why understanding from others can matter.
Join the ALS News Today Forums to connect with others affected by ALS: https://bit.ly/47daX9H
@alsnewstoday.bsky.socialExplore the details: https://bit.ly/4hTaM9r
A walk past fruit trees reminds columnist Kristin Neva of her father, and she thinks about what will remind her children of their dad.
@fonkmag.bsky.socialAmsterdam City Swim haalt recordopbrengst van ruim 3 miljoen euro op
#goededoelen #als #onderzoek
https://fonkmagazine.com/artikelen/inclusiviteit/amsterdam-city-swim-haalt-recordopbrengst-van-ruim-3-miljoen-euro-op-79055.html?utm_source=latest
@alsnewstoday.bsky.socialYou’re moving through something complex, and it’s okay if your emotions are, too.
#ALS
@alsnewstoday.bsky.socialSome moments carry a kind of meaning that only you can define.
#ALS
@scienceofpd.bsky.socialNew review provides an overview of mechanisms of lysosomal dysfunction in neurodegenerative conditions, particularly #Parkinsons, #Alzheimers, frontotemporal dementia & amyotrophic lateral sclerosis #ALS
www.nature.com/articles/s41...
@alsnewstoday.bsky.socialGet the scoop: https://bit.ly/4AH1QLQ
Early rehabilitation and a care team that works together are crucial for helping people with neuromuscular disease stay active and safe.
@reganelite.bsky.social@seanrosssapp.bsky.social of @fightful.com delivering some much needed positive news indeed ❤️
Well done everyone who helped made it happen. 👏🏻👏🏻👏🏻
@alsnewstoday.bsky.socialThe everyday, challenging moments, such as repositioning in bed, bathing, and waiting for help with the restroom, can be some of the hardest parts of this disease. Your experiences during these times are recognized within this community.
#ALS
@alsnewstoday.bsky.socialA computer-based analysis of whole-blood samples identified 10 genes with altered activity that researchers say may have potential as biomarkers for diagnosing and tracking ALS.
🔗 Read more: https://bit.ly/4hD5DRF
@alsnewstoday.bsky.socialExplore the details: https://bit.ly/4iVGUdG
Voice Back, an AI app, helps people with ALS and other causes of speech loss communicate using a voice that sounds like their own.
@alsnewstoday.bsky.socialFor parents with ALS: the love you show your kids, even if it comes across differently, still reaches them.
#ALS
@bridgingvoice.bsky.socialChoosing a speech-generating device is a big decision for people with ALS. Join us Oct 20 at 3pm ET to compare iOS and Windows SGDs and make a more informed choice.
@alsnewstoday.bsky.socialOver 16 years of living with ALS, Dagmar Munn says she has changed the way she responds when her body does not move the way she expects: https://bit.ly/4e39UN4
@researchconnect.bsky.social