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@mari-19.bsky.socialSep 25, 2026, 8:51 AM

I have hypothermia and had it ever since #SLE & Co´d broken out in 1992 yet, right now I´m so cold that I could actually wear fleece or thermo clothes and winter socks yet, as if it was the deepest winter yet.
en.wikipedia.org/wiki/Hypothe...
@wikipedia.org

@jinternmed.bsky.socialSep 25, 2026, 5:39 AM

The October issue is now online!

👉 Read our latest articles!

🔗onlinelibrary.wiley.com/toc/13652796/2026/300/4

#Genomics #Precisionmedicine #telangiectasia #biofilm #wounds #liverdisease #SLE #cardiacarrest #kidneydisease #glomerular #hypofiltration #cirrhosis

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@mari-19.bsky.socialSep 25, 2026, 3:27 AM

10 Strange Things Stress Can Do to Your Body.
Of course, stress can have a big influence on your physical health, too. In teens it can also cause acne or other skin issues. In me it might cause #SLE #Lupus flares.
health.clevelandclinic.org/things-stres...
@clevelandclinic.bsky.social

@oegrr.bsky.socialSep 23, 2026, 4:42 PM

Zu den bisherigen Aktivitäten zählen u. a. Fachartikel zu aktuellen Aspekten des SLE sowie die Initiative „Leben mit Lupus“, die die Perspektive von Patient in Österreich in den Mittelpunkt rückt. 🦋

#ÖGR #Rheumatologie #SLE #Lupus

@ndosie.bsky.socialSep 22, 2026, 2:49 PM

Lupus Brain Fog Severity Scale has been developed to assess brain fog and related cognitive symptoms in #SLE

Factor analysis identified a single dominant dimension accounting for 62% of total variance supporting the use of a global summary score

Arnaud L et al (2026) doi.org/10.1136/lupu...

@mari-19.bsky.socialSep 22, 2026, 10:18 AM

Does Your Child Need One or Two Flu Shots This Year?
I never had kids, but I got the flu shot ever since #SLE´d been diagnosed in 08/02, 10 years after its breakout. But my internist won´t get this year´s vaccination before 10/26.
www.bannerhealth.com/healthcarebl...
@lupus.org @lupusuk.bsky.social

@mari-19.bsky.socialSep 21, 2026, 3:23 AM

Heat Check: How To Take Your Temperature.
I live alone, actually I have 3 digital thermometers that I use below my tongue because I´m always hyperthermic due to the #SLE. Not all at the same time, of course LOL.
health.clevelandclinic.org/thermometers...
@clevelandclinic.bsky.social

@mari-19.bsky.socialSep 21, 2026, 3:18 AM

bsky.app/profile/mari...
No wait, I think here it´s the GS or CE plus the UV safe label, I messed it up, but it´s been 10+ years since I´d bought my last sunglasses at the optician store. I avoided the sun due to the #SLE since then.
@clevelandclinic.bsky.social

@mari-19.bsky.socialSep 21, 2026, 2:58 AM

bsky.app/profile/mari...
Due to #SLE (since 1992, but not diagnosed before 08/2002) my kidneys´re at risk anyway, and I really don´t want to get #LupusNephritis.
I´m lacto-veggie, but no low-carb or keto supporter at all.
👍👍👍
@lupus.org @lupusuk.bsky.social @clevelandclinic.bsky.social

@mari-19.bsky.socialSep 21, 2026, 1:31 AM

en.wikipedia.org/wiki/Myalgic...
Due to the #MECFS that´d caused horrible pains in my whole body yesterday (Or were it #SLE flare symptoms???? I don´t know) I got up at 2 am German time yet, after having slept for about 11 hours. Outside it only cooled down to 20°C/68°F in SW Germany.
#ManicMonday

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@mari-19.bsky.socialSep 20, 2026, 3:22 AM

7 Ways To Lose Weight Without Exercise, from a Doctor of Obesity Medicine.
Due to #SLE I´m chronic underweight, lowest BMI was 12 in autumn of 2000, 2 years before the #Lupus was diagnosed & treated with cortisone.
www.thehealthy.com/weight-loss/...
@lupus.org @lupusuk.bsky.social

@stocktitan.netSep 17, 2026, 1:00 PM

#SLE New Super League White Paper Sizes Up the Web’s Most Overlooked Ad-Friendly Audience: 100M+ Browser-Based Gamers

https://www.stocktitan.net/news/SLE/new-super-league-white-paper-sizes-up-the-web-s-most-overlooked-ad-foyzxlbip2g8.html?utm_source=stocktitan-bluesky&utm_medium=social

@mari-19.bsky.socialSep 17, 2026, 3:30 AM

Weight Loss Can Cause This Surprising Ear Symptom, Says an ENT Doctor. The post doesn´t tell if this can happen at unwanted weight loss too, I´m chronic underweight due to #SLE.
www.thehealthy.com/news/weight-...

@mari-19.bsky.socialSep 16, 2026, 4:04 AM

How Probiotics Support Healthy Weight Loss.
So it´s good that I don´t take them, I´m chronic underweight due to #SLE.
health.clevelandclinic.org/could-probio...
@clevelandclinic.bsky.social

@mari-19.bsky.socialSep 15, 2026, 2:53 AM

12 High-Protein, Low-Carb Foods to Help You Lose Weight.
No, thanks. I´m chronic underweight due to #SLE, which means that I need an extra soft anti decubitus matress (prescribed) & 2 or 3 cushions on my chair.
www.thehealthy.com/food/high-pr...

@mari-19.bsky.socialSep 14, 2026, 6:26 AM

bsky.app/profile/mari...
Dear #CélineDion, we can´t win over our auto immune diseases, but we may keep them at bay, I´ve been flare-free from #SLE for 10+ years yet, and I wish the same for you.
I 💖U and your music. I always did.
@lupus.org @lupusuk.bsky.social @clevelandclinic.bsky.social

@mari-19.bsky.socialSep 14, 2026, 3:23 AM

New Study: This Surprising Behavior Appears To Contribute to Overeating.
Not my problem, I´m chronic underweight due to #SLE.
www.thehealthy.com/nutrition/ne...

@mari-19.bsky.socialSep 14, 2026, 3:15 AM

bsky.app/profile/mari...
Another #SLE symptom is the horrible fatigue and weakness that´s even powered by ME/CS that I additionally got in 07/22.
@lupus.org @lupusuk.bsky.social @clevelandclinic.bsky.social

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