explore | Grilled Cheese

Tracking my symptoms for just two weeks helped me spot a pattern I'd been missing for years. Turns out my worst flare days lined up with certain foods. Sometimes data reveals what intuition can't.

#SymptomTracking #ChronicIllness #HealthTracking

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

"Some people have to-do lists. When we’re living with #pain, we need #priority lists. Some things in life are more important than others..Sometimes we need to make #choices that are difficult to make.": buff.ly/PwKC2ne

by @despitepain.bsky.social
#ChronicPain #ChronicIllness #FlareUps #pacing

"With the death of every #language comes the death of #perspective, a way of #thinking, a way of solving problems. As a result, our worldviews shrink, and our approach to #ProblemSolving slides into rigidity.": buff.ly/PHrH1EU

#BucketList #ChronicIllness #education #disability #humanity #culture

Looks like we are getting an infantesimal increase in our COLA for 2027 to the tune of 3.5%😪🫩

#Disability #Chronicillness #SocialSecurity #SSI #COLA

www.aol.com/articles/soc...

“Most of us know what #grief is supposed to look like..There’s a name for it, a shape to it, permission built into the word itself. The grief that comes with #ChronicIllness rarely gets that same recognition, even from the person living thru it”: buff.ly/de5iXTk

By @thethrivingspoonie.com
#NEisVoid

“With #ChronicIllness you’re in a state of constant guilt. We blame ourselves for the situation we find ourselves in. We didn’t ask to be sick yet we still feel guilty for being so… We put unnecessary pressure on ourselves…with guilt and shame mixed in.” https://buff.ly/43za2xs #ChronicPain

Know what it's like to have a load bearing part of your daily routine potentially be harming you?

To spend months or years troubleshooting all the various parts of your life that could be making you ill?

Never suspecting it could be something you were convinced was helping?

#ChronicIllness

"'It would be great to repeat some activities..Long #RoadTrips in Malaysia, staying at all kinds of lodgings.' (I do remember staying at #motels that cost $1 a night, which my #dad seemed to consider a 'victorious find'. They were gross 😉)": buff.ly/4vwpvbj

#ChronicIllness #father #parenting

The @afspnational.bsky.social Out of the Darkness Walk is coming soon. Here’s why it’s so important to me (and a few ways you can help support the cause).
🦋
#StopSuicide #MentalHealthMatters #ChronicIllness #ChronicPain #OutOfTheDarkness

buttahflyk.substack.com/p/creating-h...