explore | Grilled Cheese

"It looks like being told that your condition is common in people with yr #body & leaving the appointment with that info but no plan — as if the demographic fact is the answer rather than the context.": buff.ly/WEnZUH6

by @thethrivingspoonie.com
#ChronicIllness #InvisibleIllness #MedicalGaslighting

“We aren’t looking for anyone to feel sorry for us… We aren’t faking or exaggerating our symptoms. We know we “look fine” on the outside—but if you could turn our inside out, you would see the true face of our condition.” https://buff.ly/43tvd45 #Fibromyalgia #ChronicIllness #ChronicPain

After two IVs and one blood draw in three days, my veins are pretty beaten up. I had the husband take photos and I was going to post one, but...ew.

#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune

"Who is somebody you look up to? What qualities do you #admire about them? They can be famous or someone you know." — Get all the #October #journaling prompts for #SelfImprovement & #MentalHealth in the post 👉 buff.ly/ctewKTa

#ChronicIllness #WritingCommunity #disabled

Some days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.

#ChronicIllness #InvisibleIllness #Spoonie

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

Not dead yet, just fighting my immune system for control. No Stream today. Should be back Monday 9am!
#furryart #twitchstream #picarto #art #livestream #digitalart #chronicillness

In case of interest: “How do you deal with negative comments on social media” - SocialHealthNetwork (for health/illness advocates and similar)

socialhealthnetwork.com/forums/how-d...

#chronicillness #invisibleillness #spoonie

Fun Friday!

What brought joy to your life recently, no matter how big, small, or fleeting? Joy is the fuel that sustains and reminds us why we keep going.

#WitchSky #QueerSky #ChronicIllness #resist #wellness #support #depression #MentalHealth #SelfCare #community #disabled

... messaging can come across as insensitive or hurtful to patients, and how pharma and industry leaders can do better.
🦋
#AWNY26 #ChronicIllness #PatientAdvocacy #PatientVoice #SpoonieSky
newyork2026.advertisingweek.com/aw/schedule/...

“Last week, a federal judge agreed to strip out mentions of "integration" from federal regulations tied to Section 504 of the Rehabilitation Act, a landmark civil rights law that prohibits #disability discrimination.”
#ChronicIllness #ChronicPain #Education

www.npr.org/2026/10/01/n...

Thank you so much @apainprincess.bsky.social for taking the time to share my blog post on the lessons I’ve learned about living with #ChronicIllness and #ChronicPain whilst at sea #cruising. It’s much appreciated! 🫶

Tracking my symptoms for just two weeks helped me spot a pattern I'd been missing for years. Turns out my worst flare days lined up with certain foods. Sometimes data reveals what intuition can't.

#SymptomTracking #ChronicIllness #HealthTracking

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

"Some people have to-do lists. When we’re living with #pain, we need #priority lists. Some things in life are more important than others..Sometimes we need to make #choices that are difficult to make.": buff.ly/PwKC2ne

by @despitepain.bsky.social
#ChronicPain #ChronicIllness #FlareUps #pacing