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@mari-19.bsky.socialSep 27, 2026, 9:47 AM

Study Highlights Racial Differences in Pregnancy Outcomes Among People With Lupus.
I´m 55 1/2 yet, I never had any kids, but not because of #SLE, it´s because I´m asexual as previous victim of sexual abuse.
www.lupus.org/news/study-h...
@lupus.org
Our "father" deceased from #CFJ in 04/04.

@mari-19.bsky.socialSep 27, 2026, 9:44 AM

Research We Fund, from the @lupus.org newsletter.
www.lupus.org/for-research...
I´m a German longtime #SLE survivor since 1992, but hadn´t been diagnosed before 08/2002, have been flare-free for 10+ years yet. I´ll #KeepFighting, I´ll #NeverGiveUp.
💖💖💖

@mari-19.bsky.socialSep 26, 2026, 9:12 AM

bsky.app/profile/mari...
In the 2010s I got additional asthma, and in 07/22 additional ME/CFS. But I #NeverGiveUp, I keep fighting.
My chronic diseases won´t bring me down so fast. I can´t win, but obviously I can keep #SLE at bay,
@lupusuk.bsky.social

@mari-19.bsky.socialSep 26, 2026, 9:11 AM

Newly Diagnosed? We’re Here for You, I´m an "old" #SLE patient, I´m 55 1/2 now, it broke out in 1992, together with then 2 other auto immune diseases, but wasn´t diagnosed before 08/2002.
Actually I´ve been flare-free for 10+ years so far.
👍👍👍
lupusuk.org.uk/need-to-talk/
@lupusuk.bsky.social

@mari-19.bsky.socialSep 26, 2026, 9:08 AM

Are You a Young Person Living in Scotland? We Want to Hear From You!
Scottish #Lupus patients can sign up here, I live in Germany and am a longtime #SLE survivor since 1992, but wasn´t diagnosed/treated before 08/2002.
💖💖💖
Waving to UK.
forms.cloud.microsoft/pages/respon...
@lupusuk.bsky.social

@mari-19.bsky.socialSep 25, 2026, 8:51 AM

I have hypothermia and had it ever since #SLE & Co´d broken out in 1992 yet, right now I´m so cold that I could actually wear fleece or thermo clothes and winter socks yet, as if it was the deepest winter yet.
en.wikipedia.org/wiki/Hypothe...
@wikipedia.org

@jinternmed.bsky.socialSep 25, 2026, 5:39 AM

The October issue is now online!

👉 Read our latest articles!

🔗onlinelibrary.wiley.com/toc/13652796/2026/300/4

#Genomics #Precisionmedicine #telangiectasia #biofilm #wounds #liverdisease #SLE #cardiacarrest #kidneydisease #glomerular #hypofiltration #cirrhosis

@mari-19.bsky.socialSep 25, 2026, 3:27 AM

10 Strange Things Stress Can Do to Your Body.
Of course, stress can have a big influence on your physical health, too. In teens it can also cause acne or other skin issues. In me it might cause #SLE #Lupus flares.
health.clevelandclinic.org/things-stres...
@clevelandclinic.bsky.social

@oegrr.bsky.socialSep 23, 2026, 4:42 PM

Zu den bisherigen Aktivitäten zählen u. a. Fachartikel zu aktuellen Aspekten des SLE sowie die Initiative „Leben mit Lupus“, die die Perspektive von Patient in Österreich in den Mittelpunkt rückt. 🦋

#ÖGR #Rheumatologie #SLE #Lupus

@ndosie.bsky.socialSep 22, 2026, 2:49 PM

Lupus Brain Fog Severity Scale has been developed to assess brain fog and related cognitive symptoms in #SLE

Factor analysis identified a single dominant dimension accounting for 62% of total variance supporting the use of a global summary score

Arnaud L et al (2026) doi.org/10.1136/lupu...

@mari-19.bsky.socialSep 22, 2026, 10:18 AM

Does Your Child Need One or Two Flu Shots This Year?
I never had kids, but I got the flu shot ever since #SLE´d been diagnosed in 08/02, 10 years after its breakout. But my internist won´t get this year´s vaccination before 10/26.
www.bannerhealth.com/healthcarebl...
@lupus.org @lupusuk.bsky.social

@mari-19.bsky.socialSep 21, 2026, 3:23 AM

Heat Check: How To Take Your Temperature.
I live alone, actually I have 3 digital thermometers that I use below my tongue because I´m always hyperthermic due to the #SLE. Not all at the same time, of course LOL.
health.clevelandclinic.org/thermometers...
@clevelandclinic.bsky.social

@mari-19.bsky.socialSep 21, 2026, 3:18 AM

bsky.app/profile/mari...
No wait, I think here it´s the GS or CE plus the UV safe label, I messed it up, but it´s been 10+ years since I´d bought my last sunglasses at the optician store. I avoided the sun due to the #SLE since then.
@clevelandclinic.bsky.social

@mari-19.bsky.socialSep 21, 2026, 2:58 AM

bsky.app/profile/mari...
Due to #SLE (since 1992, but not diagnosed before 08/2002) my kidneys´re at risk anyway, and I really don´t want to get #LupusNephritis.
I´m lacto-veggie, but no low-carb or keto supporter at all.
👍👍👍
@lupus.org @lupusuk.bsky.social @clevelandclinic.bsky.social

@mari-19.bsky.socialSep 21, 2026, 1:31 AM

en.wikipedia.org/wiki/Myalgic...
Due to the #MECFS that´d caused horrible pains in my whole body yesterday (Or were it #SLE flare symptoms???? I don´t know) I got up at 2 am German time yet, after having slept for about 11 hours. Outside it only cooled down to 20°C/68°F in SW Germany.
#ManicMonday

@mari-19.bsky.socialSep 20, 2026, 3:22 AM

7 Ways To Lose Weight Without Exercise, from a Doctor of Obesity Medicine.
Due to #SLE I´m chronic underweight, lowest BMI was 12 in autumn of 2000, 2 years before the #Lupus was diagnosed & treated with cortisone.
www.thehealthy.com/weight-loss/...
@lupus.org @lupusuk.bsky.social

@stocktitan.netSep 17, 2026, 1:00 PM

#SLE New Super League White Paper Sizes Up the Web’s Most Overlooked Ad-Friendly Audience: 100M+ Browser-Based Gamers

https://www.stocktitan.net/news/SLE/new-super-league-white-paper-sizes-up-the-web-s-most-overlooked-ad-foyzxlbip2g8.html?utm_source=stocktitan-bluesky&utm_medium=social

@mari-19.bsky.socialSep 17, 2026, 3:30 AM

Weight Loss Can Cause This Surprising Ear Symptom, Says an ENT Doctor. The post doesn´t tell if this can happen at unwanted weight loss too, I´m chronic underweight due to #SLE.
www.thehealthy.com/news/weight-...

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