Celebrating small victories today: got out of bed, took my meds on time, and managed a short walk. On a rough week, that's a win.
@smartpatient.bsky.social
@smartpatient.bsky.socialCelebrating small victories today: got out of bed, took my meds on time, and managed a short walk. On a rough week, that's a win.
@smartpatient.bsky.socialTracking my symptoms for just two weeks helped me spot a pattern I'd been missing for years. Turns out my worst flare days lined up with certain foods. Sometimes data reveals what intuition can't.
@achronicvoice.com"I’ve often been asked #ignorant #questions. I have a very expressive face so I have to work hard to keep that in check, but people make it very difficult to remain neutral sometimes.": buff.ly/fIFTt1L
Featuring: roysamuelgeorge
#communication #ChronicIllness #NEisVoid #disability #RareDisease
@imchronicallyill.bsky.socialFibromyalgia problems
#chronicillness #chronicpain #pain #hurt #chronicillnessawareness #illness #fibromyalgia
@creative-flunky.bsky.socialI have been having a bad time with my illness. It has stolen so much from me. My freedom. Who I was. Everything. There are times, I fear it will break my mind. Chronic pain is a hellscape that just doesn't end. You're not alone though. We are out here🧡.
#chronicpain #chronicillness
@mgnews.bsky.socialA little space to acknowledge how unpredictable MG weakness can be🫶: https://bit.ly/4rj7kXu
#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessWarrior #MGJourney #MGWarrior #ChronicIllness
@smartpatient.bsky.socialYou don't owe anyone an explanation for your bad days. But if it helps, keeping a simple log of how you feel can be really powerful when talking to your doctor.
@smartpatient.bsky.socialTip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.
@crippledcryptid.bsky.socialA quiet week is still a health update. 🩹 Sometimes healing looks like rest, comfort food, family, a purring kitten, and dogs keeping watch. 💜🐾 #ChronicIllness #Disability https://linktr.ee/skylanarissa
@stpaulsbay.bsky.social@achronicvoice.com"Many people also [clarified], as #medications that enable 1 to function cover a wider range than [ #PainMeds ]. 1 woman said that HRT..helps her #migraines, & sometimes it is anti- #anxiety meds or steroids you need instead.": buff.ly/6KPPByp
@bluedx.bsky.socialI run an engine that projects my skin
the engine eats itself for fuel
#poem #poetry #photography #micropoetry #haiga #haiku #poetsofbluesky #fungus #chronicillness
@abarrelofpepper.bsky.socialWhen you catch yourself feeling pressured and overwhelmed, it might help to ask: “How much of this is what’s genuinely expected of me. and how much is what I expect of myself?
#chronicpain #chronicillness #disability #expectations
@apainprincess.bsky.social“It’s not fair to have the same expectations from us as you would from a perfectly healthy person. This is a never-ending struggle! Most people tend to forget that #ChronicIllness is something you have to deal with every day of your life.” https://buff.ly/47uYP2O #Fibromyalgia #pwME #ChronicPain
@germainehypher.bsky.socialA collaged card featuring an old photo of my stepdaughter & her dad, for her 30th. It’s been years since I’ve been well enough to join them on nature outings but I CAN remind them of good times & plant them in a mysterious forest of supersized fungi!
#art #collage #mecfs #chronicillness 🍄 🍄🟫 🌳 📷 🎈
@scumbagnobody.bsky.socialI have chronic fatigue syndrome. I literally slept from 11:15am to 5am today.
How do I live when I cant work hard?
@systemfound.bsky.socialYesterday, I felt out of breath trying the stairmaster at the gym. Subconsciously, I thought 30 minutes had passed, then I looked and only 3 min 50 sec had gone by.
Turns out I hadn't had my medicine.
Then I remembered: THIS (chronic tiredness) is the normal state.
#Hashimoto's #chronicillness 🐱