Never let the things you cannot do prevent you from doing the things you can. #ChronicIllness

Never let the things you cannot do prevent you from doing the things you can. #ChronicIllness
"Understanding something and being in a place to act on it are two entirely different things."
A grocery store encounter. An unexpected email. Years before any of it could land.
Celebrating small victories today: got out of bed, took my meds on time, and managed a short walk. On a rough week, that's a win.
Celebrating small victories today: got out of bed, took my meds on time, and managed a short walk. On a rough week, that's a win.
Tracking my symptoms for just two weeks helped me spot a pattern I'd been missing for years. Turns out my worst flare days lined up with certain foods. Sometimes data reveals what intuition can't.
Am I sad about missing the event, or am I sad about missing the version of me that would have had the energy to go? A profound question to ask when FOMO shows up. Sometimes it's the loss of the energy, freedom and spontaneity you are missing more than the event... #fibro #mecfs #chronicillness
The October slide is hitting me super hard right now so I’m probably not going to do a SFW stream before my NSFW stream tonight
Send for my chronic illnesses supply’s to keep me going
#spoonie #chronicillness #findom #femdom #paypig #humanatm #pots #eds #mcas #gastroparisis
Celebrating small victories today: got out of bed, took my meds on time, and managed a short walk. On a rough week, that's a win.
" #Pacing isn’t about doing less. It’s about distributing what u have across what matters in a way that you can sustain..sometimes the thing that looks like #GivingUp ..is the exact right #choice ..that left u something for tomorrow.": buff.ly/seSam9h
Some days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
When we ask, "What is my purpose?" the most direct way to answer it is by asking, "What do I wish to create?"
Jacob Nordby, Blessed are the Weird
What would you create if you could?
#art #CraftSky #chronicpain #chronicillness #chronicfatigue #ME/CFS #mecfs
@jacobnordby.bsky.social
Know someone tired of managing their health alone? Repost this. It might hand them the clarity they've been missing.
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A flare is not a failure. Symptoms can change without warning, and adjusting your day is self-management, not weakness. 💜
Celebrating small victories today: got out of bed, took my meds on time, and managed a short walk. On a rough week, that's a win.
The worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.
If your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.