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@patient-advocates.bsky.socialOct 5, 2026, 5:17 PM

Support is just a click away with our National Financial Resource Directory! It's designed to help you connect with organizations dedicated to improving access to quality #healthcare and reducing medical costs. Start your search today: https://bit.ly/3QuaL0q

#ChronicIllness #RareDisease #OncSky

A person is sitting on a couch using a laptop, browsing the National Financial Resource Directory website. The page displayed features search options and a blue and white color scheme.
@serenebutterfly.bsky.socialOct 5, 2026, 5:02 PM

"But it’s been ten years, and I haven’t learned how to actually live with a chronic illness. I don’t know how to be the real me in my life anymore." thought.is/how-my-chron...

#ChronicIllness #ChronicallyIll #NEISVoid #Identity

@jamiesonwolf.comOct 5, 2026, 4:56 PM

Took a day off today. I had a fever last night and had insomnia really bad. I didn't get any sleep, even with medication. I have been dizzy for a few days now, but that's a side effect to one of my medications. Chronic illness is super fun (said no one ever!). #chronicillness

@ses7463.bsky.socialOct 5, 2026, 4:47 PM

#chronic #ChronicIllness #RAsucks

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@achronicvoice.comOct 5, 2026, 3:31 PM

[New] "To ' #approach ' is to 'come..nearer to something or someone in space, time, quality, or amount' — so that opens up plenty of areas to talk about (u could even cover a few diff dimensions if you like) 🙂": buff.ly/vFghpyK

#MondayBlogs #ChronicIllness #WritingPrompts #ChronicPain #disability

October/November Writing Prompts for people with chronic illness & disabilities: Approaching, Dreading, Naming, Depending, and Regaining. Join us at: A Chronic Voice .com
@serenebutterfly.bsky.socialOct 5, 2026, 3:30 PM

"The world moves on, but still, I remain trapped, my body tethered to the confines of my home, wishing, like Ariel, that I could be part of the world outside my prison." www.brainlesionandme.com/why-im-not-f...

#ChronicIllness #ChronicallyIll #NEISVoid #InvisibleIllness

@sidneyeileen.bsky.socialOct 5, 2026, 3:00 PM

Made-it Monday!

What did you make, or make it through, recently? Let's celebrate your personal victories and accomplishments, no matter how big or small!

#WitchSky #QueerSky #ChronicIllness #resist #wellness #support #depression #MentalHealth #SelfCare #community #disabled

@smartpatient.bsky.socialOct 5, 2026, 2:30 PM

Some days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.

#ChronicIllness #InvisibleIllness #Spoonie

@brainsandbones.bsky.socialOct 5, 2026, 2:17 PM

Day 5 - The Paradox that Shook Archaeology—would you have made the same mistake?

Reading: DeWitte, S.N. & Stojanowski, C. (2015) The Osteological Paradox 20 Years Later: Past Perspectives, Future Directions.

#skeleton #anthropology #scienceteacher #halloween #chronicillness #scienceoutreach

@serenebutterfly.bsky.socialOct 5, 2026, 2:01 PM

"This isn’t cool. This isn’t a lifestyle trend; it is a lifestyle destroyer." medium.com/illumination...

#ChronicIllness #ChronicallyIll #NEISVoid #Disability

@dustthebaseboards.bsky.socialOct 5, 2026, 1:13 PM

#Autoimmune

One of the things that really bothers me is that the ads can almost make light of the conditions being treated.

They show happy people getting on in the world. Even with treatment I’m still not fully functional. Ads show you a very censored version of #ChronicIllness.

@achronicvoice.comOct 5, 2026, 12:30 PM

"The #shame of no longer being able to #work consistently feels #personal. As though my body’s inability to keep pace with #capitalism says something fundamental about who I am" (I’m 38 and I Can’t #Support Myself Anymore): buff.ly/LoTfXkO

by itsmevox
#ChronicIllness #NEisVoid #identity #disability

@serenebutterfly.bsky.socialOct 5, 2026, 12:30 PM

"What doesn’t work is pretending the illness has nothing to do with who I am. It’s in how I plan, what I notice, and how I decide what matters on a limited budget." www.thethrivingspoonie.com/the-hidden-r... via @thethrivingspoonie.com

#ChronicIllness #ChronicallyIll #NEISVoid

@lakwad.bsky.socialOct 5, 2026, 12:15 PM

$21.98 one-time. Lifetime access. No subscriptions. Works in free Notion.

Get it here: lakwaddivyendu.gumroad.com/l/HealthOS

Know someone drowning in appointments and pill bottles? Repost this. It might be the nudge they need.

#ChronicIllness #Caregiver

@elbi23.bsky.socialOct 5, 2026, 12:02 PM

Cut off Bellow the Head
#WritersCommunity #authorsky #5amwritersclub #amwriting #6amwritersclub #Booksky #Poetry #BookLovers #poem #nature #arts #bebrave #chronicillness #liverdisease

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@serenebutterfly.bsky.socialOct 5, 2026, 11:00 AM

"There is nothing fashionable about chronic pain, crushing fatigue, brain fog or having to think about the consequences of an activity that most people would never give a second thought to." crackednailsandsplitends.co.uk/blog/disable...

#ChronicIllness #ChronicallyIll #ChronicPain #Disability

@apainprincess.bsky.socialOct 5, 2026, 8:23 AM

“It’s so easy to feel alone…I know I am not…there are millions…fighting the same fight. Fighting to be heard, fighting to be understood, fighting to be believed… Lately, I have felt drawn to lighthouses… Beacons of light in the darkness.” https://cme.sh/7EFjk5/ #ChronicIllness #ChronicPain #Spoonies

@achronicvoice.comOct 5, 2026, 7:30 AM

"I used to believe #resilience meant pushing thru #pain at all costs. Now I understand it means listening..My #body has taught me #discipline ..It has taught me that #rebuilding is possible, even when u have to start over.": buff.ly/GTaMIkD

via tinybuddha
#disability #ChronicIllness #surgeries

@ptswithpower.comOct 5, 2026, 6:01 AM

And it's wild that statements like this seem so obvious they barely feel like they bear repeating when you have a chronic illness, but to healthy people they seem barely possible. #ChronicIllness #MedicalGaslighting

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