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Version devBuilt at: 2026-10-13 06:05:14 EDT

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@lakwad.bsky.socialOct 6, 2026, 2:37 PM

HealthOS: 10 modules, 28 sub-modules, built in free Notion.

One-time payment. Lifetime access. No subscription.

Get it here: notion.com/templates/he...

Repost for someone who's tired of doing this alone.

#ChronicIllness #Notion

@angioedemanews.bsky.socialOct 6, 2026, 2:02 PM

#HAE #HereditaryAngioedema #LifeWithHAE #HAEAwareness #ChronicIllness #HaeCommunity #HaeWarrior #RareDiseaseAwareness #LivingRare #PatientEducation #ChronicCondition #SelfAdvocacy #InvisibleIllness #RareDiseaseCommunity #BioNews #AngioedemaNews

@nikabeamon.bsky.socialOct 6, 2026, 2:00 PM

After lending my voice to dozens of radio programs, podcasts and websites, I’ve decided to enter a contest to try to win my own podcast. If you have the time and want o support vote today and everyday. Thank you. #igg4 #chronicillness #WomensHealth #tophost

tophost.org/2026/nika-be...

@grumpyhobbit.bsky.socialOct 6, 2026, 1:54 PM

This. Retweeting to amplify. #ChronicIllness #InvisibleIllness

@smartpatient.bsky.socialOct 6, 2026, 12:31 PM

The worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.

#ChronicIllness #ChronicPain #InvisibleIllness

@smartpatient.bsky.socialOct 6, 2026, 12:30 PM

Tip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.

#PatientAdvocacy #ChronicIllness #HealthTracking

@elbi23.bsky.socialOct 6, 2026, 11:22 AM

Alpine Forget-Me-Not
#WritersCommunity #authorsky #5amwritersclub #amwriting #6amwritersclub #Booksky #Poetry #BookLovers #poem #nature #arts #bebrave #chronicillness #liverdisease

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@chikocfm.bsky.socialOct 6, 2026, 11:01 AM

Chronic illness can change your routines, relationships and independence. Missing your old life doesn’t mean you’re ungrateful for the life you have now. It means you’re acknowledging what has changed. Your feelings deserve space💜
#Fibromyalgia #MECFS #ChronicIllness #ChronicPain #InvisibleIllness

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@wordwitchlife.bsky.socialOct 6, 2026, 4:13 AM

Check out the #poem I wrote the other day. Stop and read others when you stop by. I've got #FlashFiction and a gallery of #pictures (mostly #cats!), too!

#amwriting #writingcommunity #poetsofbluesky #chronicillness #mentalhealth #writersofbluesky #blueskypoetry

buymeacoffee.com/wordwitchlif...

@beck7422.bsky.socialOct 6, 2026, 2:51 AM

#ChronicIllness and #ChronicPain, there has to be a position I can move my body where I don't pass out from the pain in my right leg, right? Although I swear I have tried them all. Whimper. Even though I know the cause and am doing all the things to try to keep the pain under control, it just isn't

@crischalcedony.bsky.socialOct 6, 2026, 1:34 AM

#chronicillness timeline timelining! 👌

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@buttahflyk.bsky.socialOct 6, 2026, 12:25 AM

Real Patients™ is looking for people with a variety of health conditions.

Share your experience with researchers working to imprоvе treatments, products, and care. Get compensated for your time.

To apply, visit:
apply.savvy.coop/speakers-bur...
🦋
#ChronicIllness #PatientExperience #SpoonieSky

FLaB background w/ promo for Real Patients:
Savvy Cooperative is now Real Patients™
Real Patients™ is looking for people who have experience
with a variety of health conditions and are willing to speak
about their experiences.
Your voice can change healthcare.
Share your experience with researchers working to improve treatments, products, and care. Get compensated for your time.

Details
• Real Patients often works with our partners to help bring the patient voice to a variety of conferences (both virtual and in-person). If you
are interested in being a speaker for us in the future, please fill out
the screener. When we have an opportunity for participation, we will reach out to you.

Purpose
• To informally chat with conference attendees to give them real patient insights

Compensation
• Varies

For more information and to apply for this gig, visit:
share.realpatients.com/speakers-bureau?ref-kerryd91d60dd
@apainprincess.bsky.socialOct 6, 2026, 12:23 AM

“Life with a health condition is unpredictable. Spoons are unpredictable too. When living with #chronicpain or a #chronicillness (including many #mentalhealth illnesses), people don’t always wake up with 12 spoons…sometimes even less.” https://buff.ly/kFyWFcZ @despitepain.bsky

@misserichan.northsky.socialOct 5, 2026, 11:42 PM

Hellllp why does adulting while disabled have to be so exhausting

#chronicillness #disabled #disability #chronicpain #mentalhealth

@unveilingunicorns.bsky.socialOct 5, 2026, 11:28 PM

POTS (postural orthostatic tachycardia syndrome-form of dysautonomia. Heart rate climbs when standing. Dizzy, fainting, brain fog & fatigue are reported. AI assisted; do your own research.

#UnveilingUnicorns #InvisibleIllness #Spoonie #POTSAwareness #Dysautonomia #ChronicIllness #ButYouDontLookSick

@smartpatient.bsky.socialOct 5, 2026, 11:01 PM

Tracking my symptoms for just two weeks helped me spot a pattern I'd been missing for years. Turns out my worst flare days lined up with certain foods. Sometimes data reveals what intuition can't.

#SymptomTracking #ChronicIllness #HealthTracking

@smartpatient.bsky.socialOct 5, 2026, 11:00 PM

Celebrating small victories today: got out of bed, took my meds on time, and managed a short walk. On a rough week, that's a win.

#ChronicIllness #SmallWins #Spoonie

@taliasmith2021.bsky.socialOct 5, 2026, 10:55 PM

You dismissed me. You dismissed US.
#cipro #dismissed #gaslighting #wedeservebetter #chronicillness #floxed #ciprofloxacin #awareness