HI. I THINK WE SHOULD BE FRIENDS. 🪼🩵
Spoonies, VTubers, PNGTubers, cozy creators ~ come find me. 🫶
#VTuber #VTuberCollab #SmallStreamer #Spoonie #ChronicIllness #VTuberFriends
@sickchan.bsky.social
@sickchan.bsky.socialHI. I THINK WE SHOULD BE FRIENDS. 🪼🩵
Spoonies, VTubers, PNGTubers, cozy creators ~ come find me. 🫶
#VTuber #VTuberCollab #SmallStreamer #Spoonie #ChronicIllness #VTuberFriends
@chronicloaf.bsky.socialS1E1 of #Avenue5 is playing in the #ChronicLoaf stream this morning
#comedy #scifi #NEISvoid #mecfs #DisCo #ForTinu #spoonie #cannabiscommunity #ChronicPain
@achronicvoice.com"Turning 33 was a turning point for me. Not 30, not 35, somehow 33. Is it the double digits? With the #BrainFog I do admit that it’s been easier to recall my age. I kept having to do double takes when I was 32.": buff.ly/KHuoKOS
#ChronicIllness #NEisVoid #cognition #spoonie #InvisibleIllness
@myseveralworlds.com"The true heartbreak of living with chronic illness is being forced to relive the worst moments of it over and over again." via @serenebutterfly.bsky.social at My Brain Lesion and Me
🔗
Read it: www.brainlesionandme.com/reliving-hea...
#Spoonie #ChronicIllness #ChronicPain #Disability #ChronicLife
@stpaulsbay.bsky.socialHow did the genetic cause of ME/CFS stay hidden this long? One big reason: the assumption that lab values can ever tell you what is happening in the cell. The elevation of lab values over patient experience is one of the biggest scandals of modern medicine. #rs5522
#MECFS #LongCOVID #PwME #Spoonie
@achronicvoice.com"Previously #GPs were only permitted to prescribe #stockings (not #tights ) and some GPs do not know that regulations have changed and that some tights can now be prescribed [in the #UK ].": buff.ly/fMea0VG
via @ukpots.bsky.social
#prescription #medical #ChronicIllness #POTsie #spoonie #POTS
@smartpatient.bsky.socialReminder: rest is not giving up. Rest is how your body heals. You don't have to earn the right to take care of yourself.
@smartpatient.bsky.socialIf your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.
@smartpatient.bsky.socialStarted writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.
@smartpatient.bsky.socialStarted writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.
@smartpatient.bsky.socialCelebrating small victories today: got out of bed, took my meds on time, and managed a short walk. On a rough week, that's a win.
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@achronicvoice.com"I spend a lot of time dealing with #stoma issues, pain, and doctors’ appointments, and if #vacations were anything like being #disabled, no one would ever go on #vacation.": buff.ly/UbCV72X
by sarahlynn358
#NEisVoid #spoonie #ChronicPain #ChronicallyIll #disabled #InvisibleIllness
@chronicloaf.bsky.socialHop into the #ChronicLoaf stream to enjoy some #SpiderMan movies with us
#MarvelComics #MCU #ForTinu #FilmDis #ChronicPain #spoonie #cannabiscommunity #insomnia
@achronicvoice.com"I don’t deal with #emotional pain well. At that point of time [after my 1st #breakup ], I actually thought it hurt more than even my worst #FlareUp. Or rather, I would actually choose physical pain over emotional pain.": buff.ly/QKYsIbF
@achronicvoice.com"In single-loop learning, we modify the method to get the result we want. Whereas in double loop #learning, the object itself needs to change to achieve the desired result. Thus, we can #change our mental models by being #SelfAware.": buff.ly/ARrOa9A
@apsfaorg.bsky.socialHow long did it take for you to get diagnosed with #APS? #antiphospholipid #autoimmune #spoonie #APSFA
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.