@achronicvoice.com"I remember thinking, “Well, if I can never have chocolate again, drink coffee again, have any of the foods I love, then I’m not me.” It sounds ridiculous, but I was having a major #IdentityCrisis over chocolate.": buff.ly/5ZxDF6o
#ChronicIllness #disability #identity #ChronicallyIll #spoonie
@thezebraalliance.bsky.socialDo you live with a health condition that makes it hard to consume enough #VitaminA Food Sources? If so, any tips other than vitamin supplements? There are millions of folks who have strict diets due to health conditions, like #Gastroparesis.
@achronicvoice.com"I have learned that #disappointment comes in many forms. Sometimes, it arrives as a storm rolling across the horizon. At other times it arrives quietly, in the form of a #body that simply cannot do what my heart longs for.": buff.ly/1PWVPql
@spooniethreads.bsky.socialAdaptive clothing isn't about changing who you are. It's about making clothing fit more easily into real life.
This is the Spoonie Threads community—and this is why we do what we do. ❤️
@mekimberlite.bsky.socialListen to your intuition to help you pick the right doctors. #psychicmedium #invisibledisabilities #chronicillness #spiritualhealing #mekimberlite
@markeronmyhands.bsky.socialOkay so I'm at 36.5 straight hours awake now. I might be broken.
I'm getting sore and have zero energy. I'm being that useful. Just sort of sitting here trying to get sleepy and failing.
I hope nothing serious comes of this.
@cwengaard.bsky.socialIt’s about time doctors educate themselves 😡😡😡
#Endometriosis #Adenomyosis #pain #fatigue #chronicillness #invisibleillness
@achronicvoice.com"Rest isn't the reward. It's the reason u can keep going. Treat it as optional & you'll burn out fast. You don't #recover after you recover through. #Rest gets woven into every phase: pre, mid, post.": buff.ly/FsybRC5
by @stillrollingoutdoors.com
#hiking #fitness #ChronicIllness #ChronicPain
@fabulousphoenixboy.bsky.socialI just want some, any of my drive back, dammit 😭
anyway. Forthcoming sliver of hope: appt with the NHS Pain Management folks next Monday. Not sure how helpful it'll be, but you never know. Fingers crossed
#Spoonie #SpoonieLife #ChronicIllness #fibromalgya #fibrowarrior
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@apainprincess.bsky.social“When people ask if I’m OK I always say yeah I’m fine when I’m far from fine. If I told the truth I don’t think people would understand and I hate feeling like I’m depressing people.” When Pain Is Your Normal https://buff.ly/3ILHwjc #chronicpain #chronicillness #disability
@woodgateroberta.bsky.socialHelp celebrate World Cerebral Palsy Day with us! IN.GAUGE supports the unique voices, lived experiences, and personal stories of individuals with cerebral palsy.
#worldcerebralpalsyday2026 #chronicillness #neurologicaldisorder #disabilites #umanitoba #UM_RadyFHS #Research
@danasmovie.bsky.socialI just walked into my rheumatologist office for an appointment. The office assistant said she couldn't find me in his appointments at all 😡 I've only been coming here for almost five years! They're trying to work me in now 😤 and acting like it's my fault of course sigh #ChronicIllness
@lakwad.bsky.socialHealthOS: 10 modules, 28 sub-modules, built in free Notion.
One-time payment. Lifetime access. No subscription.
Get it here: notion.com/templates/he...
Repost for someone who's tired of doing this alone.
@nikabeamon.bsky.socialAfter lending my voice to dozens of radio programs, podcasts and websites, I’ve decided to enter a contest to try to win my own podcast. If you have the time and want o support vote today and everyday. Thank you. #igg4 #chronicillness #WomensHealth #tophost
@stopthestigma.bsky.social
@angioedemanews.bsky.social