progress
@splitleaf.bsky.social
@sma-europe.bsky.socialKind reminder! The registration and the call for abstracts still open for the 2nd International Clinical Care Symposium on SMA, taking place on 4–5 March 2027 in Prague, Czech Republic. 📣
🔗https://www.sma-europe.eu/clinical-care-symposium-prague-2027
@timgrecco.bsky.social“Now we have a model to better understand these devastating diseases, and work toward regenerative therapies for them.”
@mauinow.comThe public is invited to attend a series of in-person meetings for Assessment and Recommendation of the New Special Management Area boundary for the island of Maui, hosted by the County of Maui Planning Department. #SMA #Maui
@homescoop.bsky.socialFinally ditched my heavy old vacuum for this featherlight cordless beast! 🤩 Cleaning actually feels effortless now, and grabbing it for quick messes takes two seconds. Total game changer for daily chores. Full honest thoughts here: https://review.scope-media.workers.dev/home/a/article-1091 #Sma
@mauinow.comThe Department of Planning is holding community meetings to share information and gather feedback on the Maui Island Special Management Area boundary assessment project. #SMA
@rrguyasgakgr.bsky.socialAvoid common pitfalls when choosing your Raja7 Login! Research the seller, look for reviews, and verify legitimacy to save money and steer clear of scams. Don't let scams steal your gaming joy! Dive in securely! 🌟 Check it out: https://www.rajaa7game.org/ #Raja7Login #GamingTips #ScamAwareness #Sma
@medchemexpress.bsky.socialThe #FDA has approved #Isembyld (#apitegromab-mstn) for adults and children ≥2 years with spinal muscular atrophy (#SMA) who are receiving an SMN2-targeted treatment.
🔬MedChemExpress offers apitegromab for research use only: https://www.medchemexpress.com/apitegromab.html
@filnemus.bsky.social📰Découvrez les initiatives du centre de référence des maladies neuromusculaires CHU de Lille dans le 7e numéro de la revue Horizon SMA de Rare à l'écoute.
👉https://www.filnemus.fr/les-evenements-filnemus/actualites/article/parution-du-7e-numero-de-la-revue-horizon-sma
@sma-europe.bsky.socialSMA Europe’s 13th Call for Research Proposals closes on 30 September 2026!
Submit your proposal before the deadline:
🔗 https://www.sma-europe.eu/our-call-for-research-proposals
@cocoverde.bsky.socialAch, und das fällt den Ex #SMA Chef 15 Jahre später auf? Dieser Werner Stohler hat maßgeblich den Kapazitätsbetrug bei ##S21 gestützt. Ohne seinen (Gefälligkeits-)Stresstest stünden wir heute nicht vor diesem Scherbenhaufen. Geld stinkt nicht, nicht wahr Herr Stohler?
www.swr.de/swraktuell/b...
@sma-europe.bsky.socialScholar Rock announced FDA approval of apitegromab (Isembyld) for SMA on 11 September 2026. SMA Europe is in close contact with Scholar Rock and will share further information on the European marketing authorisation as soon as possible.
@mage-bole.bsky.socialReally excited about this manga I’m cooking up for #SilentMangaAudtion! Whether I get selected or not, it just feels good to work on a project with a clear objective and deadline 🤩
@corterve.bsky.socialFDA 9/11 approved ISEMBYLD (apitegromab) for SMA ages 2+ already on SMN2 therapy. First muscle-targeted add-on, not a replacement. SAPPHIRE NCT05156320. Cure SMA webinar Sep 30. Clinic decides access. Not medical advice. #SMA #ClinicalTrials
@neozoneorg.bsky.socialLa semaine dernière, en fouinant dans le grenier de mes parents, j’ai découvert un étrange appareil doté d’un clavier ! J’ai demandé à ma mère à quoi servait ce truc, elle m’a raconté que c’était son tout premier téléphone portable : un BlackBerry. #kickstarter #sma
https://www.neozone.org/?p=307992
@neozoneorg.bsky.socialLa semaine dernière, en fouinant dans le grenier de mes parents, j’ai découvert un étrange appareil doté d’un clavier ! J’ai demandé à ma mère à quoi servait ce truc, elle m’a raconté que c’était son tout premier téléphone portable : un BlackBerry. #kickstarter #sma
https://www.neozone.org/?p=307992
@forbes.itChip, autonomia, sicurezza dei dati e #AI: cosa serve sapere prodotto per prodotto, con tutti i prezzi italiani #airpods #apple #apple-intelligence #apple-watch #apple-watch-series-12 #dave-pakula #intelligenza-artificiale #iphone-18-pro #iphone-duo #john-ternus #kaiann-drance #pieghevoli #sma...
@sma-europe.bsky.socialHave you read Lassi’s story yet?
For years, adults with SMA were excluded from treatment reimbursement while their conditions continued to progress.
“Access delayed is never neutral.”
Read Lassi’s story here: https://odysma.sma-europe.eu/stories/Lassi
@ensonhbr.bsky.social
@anonturk.bsky.social