Some good news!
First person functionally cured of sickle cell in Louisiana!
@valjpauls.bsky.social
@valjpauls.bsky.socialSome good news!
First person functionally cured of sickle cell in Louisiana!
@ipro1984.bsky.socialSeptember is National Sickle Cell Awareness Month.
Approximately 100,000 Americans live with sickle cell disease, a rare chronic condition that causes the red blood cells to harden and form a sickle shape.
@sicklecelluk.bsky.social🧡 Do you know the difference between sickle cell trait and sickle cell disorder?
This #SickleCellAwarenessMonth, we’re breaking down the difference and how sickle cell is inherited.
👉 Swipe to learn more. Knowledge matters. Know your status.
@bma-library.bsky.social❤️This #SickleCellAwarenessMonth explore the title Management of Sickle Cell Pain — a practical resource for doctors supporting patients with sickle cell disease.
Free access for BMA members: bma.primo.exlibrisgroup.com/permalink/44...
@7islucky.bsky.socialFrom @pbs.org
#SickleCell #Disease is so #Painful that it is normal for its sufferers to have to take the most powerful opioids known to mankind. #GeneTherapy #Broke it. Because it is a disease solely of #Black people I am a bit astonished 😲 #Fascist #Amerikkka
@childrensresearch.bsky.socialPeople with #SickleCell disease can experience developmental and cognitive challenges even without major neurological complications. Dr. Alyssa Schlenz helped develop new national recommendations to identify concerns earlier and provide consistent care from infancy through adulthood. #HemeSky
@sicklecelluk.bsky.social🧡 Join us for Living Well With Sickle Cell, a community drop-in event this #SickleCellAwarenessMonth.
📅 22 September | 11am–2pm
📍 Sickle Cell & Thalassaemia Centre, East Ham
Come along to learn about sickle cell, treatments and local support.
@insidecroydon.bsky.socialNHS London makes call for black communities to give blood insidecroydon.com/2026/09/08/n... #Croydon #SickleCell @nhsmillion.bsky.social @keepournhspublic.bsky.social
@inviswarriorscd.bsky.socialSharing this amazing initiative from @nhsengland:
***Sickle Cell: A guide for schools and educators ***
➡️ learninghub.nhs.uk/catalogue/SC...
With an upcoming webinar on Tuesday 29 September:
➡️
www.eventbrite.co.uk/e/sickle-cel...
@reval-uom.bsky.socialGreat to give evidence to the APPG for #SickleCell last week on the implementation of bypass units for acute sickle cell care.
TLDR: bypass units can improve access to timely pain relief and person-centred care - Read our REVAL report at: pure.manchester.ac.uk/ws/portalfil...
@sicklecelluk.bsky.social🧡 This #SickleCellAwarenessMonth, we’re looking back at some special moments from Family Retreat 2026!
A chance for children, young people and families to connect, have fun and make lasting memories.
🐰 A special shout-out to Miffy for joining us again this year!
@sicklecelluk.bsky.social📢 Join us for the Sickle Cell Society AGM 2026!
📅 12 September | 10:30am
📍 De Vere Grand Connaught Rooms, London
Please note, there is a registration fee this year, which covers lunch.
Scan the QR code to secure your place! 🧡
@sicklecelluk.bsky.social📢 Join the SELSE HCC Sickle Cell Patient & Staff Education Day on 23 September, 10am–4pm via MS Teams.
Our Sickle Cell Society Mentoring Team will be presenting, alongside sessions for patients, families and healthcare professionals.
Scan the QR code to join!
@c-strebel.bsky.socialExpanding access to lifesaving sickle cell treatment and care.
Sickle cell disease contributed to an estimated 81 100 deaths among children under 5 in 2021. WHO is working to close that gap, especially in sub-Saharan Africa, where nearly 80% of cases occur.