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Version devBuilt at: 2026-10-13 02:55:00 EDT

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@nnhla-natcan.bsky.socialSep 28, 2026, 9:20 AM

We are honoured to work alongside you in seeking better care and outcomes for those with a dignosis of non-Hodgkin Lymphoma.

#BloodCancerAwarenessMonth #BCAM #Cancer #September #NonHodgkinLymphoma #NHL #NNHLA #Audit #ClinicalAudit #NATCAN #patientvoice #charity

@survivornetca.bsky.socialSep 25, 2026, 2:01 PM

#dostarlimab #jemperli #atezolizumab #tecentriq #patientvoice #HTA #chemotherapy #patientinput #patient #survivor #caregiver #survey #HTAsubmission #colorectalcancer #cancer #colorectal #colon #rectal #treatment #therapy #realworldevidence #patientexperience

@ikccorg.bsky.socialSep 24, 2026, 9:00 AM

💙 Your experience matters. Share your voice and help shape the future of kidney cancer care. The survey takes around 15 minutes to complete: bit.ly/IKCC_Kidney_...

#KidneyCancer #KidneyCancerResearch #GlobalPatientSurvey #PatientVoice #CancerResearch

@teamtouchdesign.bsky.socialSep 23, 2026, 9:35 PM

A powerful patient story that is changing healthcare conversations. Join our free #LexisLetter webinar on 15 October and hear from Lexi's family, NHS leaders and the team behind the project.
🎟 Register: https://tinyurl.com/426cvk5h
🎬 https://ow.ly/rOys50ZBp5Z
#PatientExperience #PatientVoice #NHS

Smiling young girl with curly hair sitting on a hospital bed holding a stuffed animal, framed by a pink background with text 'Lexi's Letter'.
@genial-project.bsky.socialSep 22, 2026, 8:38 AM

Within GENIAL, ELPA brings patient perspectives into research, communication and awareness activities, helping shape prevention, education, healthcare access and policy for more inclusive and equitable care across Europe.

#PatientVoice #ELPA #HealthEquity #PatientEngagement

@pickereurope.bsky.socialSep 21, 2026, 12:49 PM

The findings have provided valuable evidence to help identify unmet needs and inform improvements in awareness, information and support.

Read the case study to find out more: bit.ly/MarfanTrustCS

[2/2]

#PatientExperience #PatientVoice #RareDisease #HealthcareImprovement #PickerInsights

@lupusuk.bsky.socialSep 17, 2026, 1:30 PM

Share your experiences and ideas about what young people in #Scotland need, and the support, services and opportunities that Lupus UK or partner organisations could provide!

#YouthSupport #PatientVoice

@lupusuk.bsky.socialSep 17, 2026, 1:20 PM

📢 Aged 11-30 and living in #Scotland with #lupus or a similar condition?

Complete our short survey and help shape the future of support for young people! 

🔗https://forms.cloud.microsoft/e/YLxjqjRXN0

#YouthSupport #PatientVoice

@teamtouchdesign.bsky.socialSep 16, 2026, 9:35 PM

A powerful patient story that is changing healthcare conversations. Join our free #LexisLetter webinar on 15 October and hear from Lexi's family, NHS leaders and the team behind the project.
🎟 Register: https://tinyurl.com/426cvk5h
🎬 https://ow.ly/rOys50ZBp5Z
#PatientExperience #PatientVoice #NHS

Smiling young girl with curly hair sitting on a hospital bed holding a stuffed animal, framed by a pink background with text 'Lexi's Letter'.
@moicni.bsky.socialSep 16, 2026, 8:47 AM

MOIC at #ICCH Day 2: Dr Serena Barello’s “Speaking to Listening” highlighted how communication connects patients, healthcare, research and policy. Health literacy, shared decision-making and the patient voice are central to better care. #PatientVoice #HealthLiteracy

@teamtouchdesign.bsky.socialSep 14, 2026, 4:00 PM

A powerful patient story that is changing healthcare conversations. Join our free #LexisLetter webinar on 15 October and hear from Lexi's family, NHS leaders and the team behind the project.
🎟 Register: https://ow.ly/2pnj50ZBpkc
🎬 https://ow.ly/cuRw50ZBpke
#PatientExperience #PatientVoice #NHS

Person with shoulder-length hair in a pink shirt looks at their reflection in a mirror, feeling self-conscious about their body.Illustration of a girl trapped in the centre of a maze with the text expressing confusion about feeling stuck in an unfamiliar system.
@lymediseaseuk.bsky.socialSep 11, 2026, 8:40 AM

“Lyme disease made me so ill I couldn’t recognise my own mother.”

Thank you Morven-May, for everything you continue to do.

Read Morven-May’s story in @telegraph.co.uk www.telegraph.co.uk/health-fitne...

#LymeDisease #LymeDiseaseUK #BeTickAware #LymeAwareness #PatientVoice

@ihi-synthia.bsky.socialSep 10, 2026, 9:29 AM

What concerns you most about #syntheticdata in healthcare?

We want to hear your perspective. Take the #SYNTHIA survey and help shape the future of healthcare innovation in Europe: forms.cloud.microsoft/e/NnBzgN3MQi

#PatientVoice #PatientEngagement #EUResearch #IHITransformingHealth #HorizonEU

@teamtouchdesign.bsky.socialSep 9, 2026, 9:35 PM

A powerful patient story that is changing healthcare conversations. Join our free #LexisLetter webinar on 15 October and hear from Lexi's family, NHS leaders and the team behind the project.
🎟 Register: https://tinyurl.com/426cvk5h
🎬 https://ow.ly/rOys50ZBp5Z
#PatientExperience #PatientVoice #NHS

Smiling young girl with curly hair sitting on a hospital bed holding a stuffed animal, framed by a pink background with text 'Lexi's Letter'.
@teamtouchdesign.bsky.socialSep 7, 2026, 4:00 PM

A powerful patient story that is changing healthcare conversations. Join our free #LexisLetter webinar on 15 October and hear from Lexi's family, NHS leaders and the team behind the project.
🎟 Register: https://ow.ly/2pnj50ZBpkc
🎬 https://ow.ly/cuRw50ZBpke
#PatientExperience #PatientVoice #NHS

Person with shoulder-length hair in a pink shirt looks at their reflection in a mirror, feeling self-conscious about their body.Illustration of a girl trapped in the centre of a maze with the text expressing confusion about feeling stuck in an unfamiliar system.
@healthwatchbh.bsky.socialSep 7, 2026, 9:28 AM

Ahead of this week's Health Bill debate, we're proud to share what Healthwatch does for local people. See what we've achieved in our annual reports:

2025/26: buff.ly/NPD3EI4
2024/25: buff.ly/jpIIT2n
2023/24: buff.ly/SVVMiQ3

@sianberry.bsky.social @chriswardmp.bsky.social #Healthwatch #PatientVoice

Two women talking outside a hospital, and one showing the other information in a folder.
@retinaint.bsky.socialSep 3, 2026, 1:58 PM

A new editorial explores the challenges of enriched trial designs and the need for research to deliver meaningful evidence and treatment options for all patients.

Read the editorial: https://ow.ly/mJaM50ZIPbc

#RetinalResearch #ClinicalTrials #PatientVoice #Ophthalmology

@imab-qi.bsky.socialSep 3, 2026, 11:52 AM

Good patient involvement doesn't happen by accident. It needs time, support and the right partnerships. That's why IMAB-Qi is working with Blood Pressure UK to build a more sustainable approach to involving people in research. #PatientVoice #PPI #Research

@digestivecancerseu.bsky.socialSep 3, 2026, 9:30 AM

The CANCERSurvey is live. Pan-European. 15 languages. Anonymous. Independent.

If you have been through cancer in Europe - or cared for someone who has - your experience is what this study needs.

✍️ bit.ly/EuropeanCanc...

#CANCERSurvey #PatientVoice